Quote from: Renaissance on August 27, 2019, 02:55:04 PMI tiggy.
When you start the bone distraction phase during the first few weeks your doctor needs to be aware if the bone fusion is fast or slow.
In case it is slow why not use this as an advantage to reduce the number of bone distractions for example to 0.33 mm per day?
Of course the procedure will be 3 times longer to be exact but your soft tissues will suffer 3 times less damage and your recovery will be faster and the trauma will be much less.
Finally it seems to me but I may be wrong.
LL 1 mm a day and about 30 times faster than the natural lengthening of the human body in growth phase. And therefore very demanding for the body and especially for the soft tissues.
If you had the opportunity would you have chosen this method of distraction for 6 months with low risk and low level of pain or would you have chosen one mm per day to reduce the process to 2 months knowing that there is a risk of pain and trauma?
Thank you for your reply.
Hey,
Well we did drop the sessions to .75 per day after my growth appeared slow. I believe this was about a month in. To answer your question, no I would not prefer that method. Nor would I prefer 1mm a day. I think that's simply too much. But doing .33 a day is also too little. I believe somewhere in the middle is best, which is what we did (almost). The only thing is, I just wish I did what I am doing now about a month earlier. This would've given the tissues less gap to fill, which would have made filling that gap easier. This process is trial and error. I think the best route is anywhere between .5-.75 distraction a day assuming decent bone growth. Of course if the bone is filling in faster, you have no choice but to speed up the process and just deal with the pain and discomfort. If the growth is slow, as is the case with me, then it's really a matter of figuring out what works best given how much bone is filling in. None of this can be predicted ahead of time, and for that reason, speaking about what I prefer is really a fruitless exercise. I know what you meant to ask by your question, but your question assumes a perfect world with normal bone growth and the patient having the latitude to decide - something that is not as frequent as you may think.
Rozbruch- Internal Femurs with Stryde
Hey guys,
This question is for the vets. I've been experiencing knee pain in my left leg (the leg that's longer) and it started about 2 weeks ago. I notice it began after my last follow up appointment. The only thing that's changed since that appointment is that I started taking strontium for bone growth as recommended by my dr. I don't know if that's what's causing the issue but the pain is always there when I'm walking. I don't feel anything when at rest. Of course another possibility could be the length I've reached, which could explain that the pain is in the left knee only and not the right (which is the shorter leg). I was brainstorming that what if it hurts because I've lengthened too much. But I'm only at 6.5 cm which for femurs is more than normal. I'm 3.5 months post op. Any feedback would be greatly appreciated guys.
Thank you tiggy.
I'm sorry for the pain you feel during this process I hope everything will be ok at the end.
Unfortunately I don't have the answer to your question but I have another for you did you ever consider using an electro stimulator, a professional one like compex to relax muscles and reduce the pain during the process ?
Or maybe it is not recommended because you have an electromagnetic device in your bones what do you think ?
Quote from: Renaissance on August 29, 2019, 05:28:28 PMThank you tiggy.
I'm sorry for the pain you feel during this process I hope everything will be ok at the end.
Unfortunately I don't have the answer to your question but I have another for you did you ever consider using an electro stimulator, a professional one like compex to relax muscles and reduce the pain during the process ?
Or maybe it is not recommended because you have an electromagnetic device in your bones what do you think ?
No I haven't considered it, nor do I believe in any of that stuff. To me those machines seem like a gimmick to extract money from the gullible who are in pain. This is just my opinion. Perhaps they may work for some but in honesty this process, in terms of pain, was not at all bad. My issues were numbness, pins and needles and burning. Those are just nerve related issues and I doubt the machine would've made any difference with them
You must be really flexible then.
From what I read and I understood a lot of patients felt their muscles really stretched during the process and described that as a constant pain.
Just 1.5 cm to gain to reach your aim.
Be strong and please don't forget to keep us posted about your recovery after the lengthening.
Be strong.
Quote from: Renaissance on August 29, 2019, 10:33:18 PMYou must be really flexible then.
From what I read and I understood a lot of patients felt their muscles really stretched during the process and described that as a constant pain.
Just 1.5 cm to gain to reach your aim.
Be strong and please don't forget to keep us posted about your recovery after the lengthening.
Be strong.
Thanks man, I'm doing my best and will continue my updates. Stay tuned!
Hey everyone,
I'm happy to report good news. As of my post op this week I have had great improvement on my left leg (longer leg). Callus is filling in nicely and evenly. The right leg also had improved, though not as significantly and the callus is filling in unevenly. It appears the inner gap is filling better than the outer. Dr Rs advice was to equalize the legs, meaning lengthen more on the right to bring it even with the left, which is currently at 65mm and stop. I told him I have no intention to stop until I reach 7.5cm. That is a firm 3inches and I'd be happy with that result. This way I would cut my goal of 8cm and truthfully the difference between 7.5cm and 8cm is practically nonexistent since you really can't even tell the difference. It wouldn't make sense for me to push to 8cm and put stress on my legs.
Anyway I am due to see him in few weeks once I reach 7cm on both legs at which point we will reassess the situation.
I don't know what improved the callus situation since as you recall from my last update, I've made many changes to my regimen. It could be a combination of everything but I'm glad that there has been improvement which allows me to proceed. I wish the right leg was filling in better but no such luck. I just want to finish with the lengthening as quickly as possible and just let the legs start fully recovering. It appears that the right leg just needs longer time to recover and before resorting to any bone graft surgeries I want to give it at least a few months of recovery and see how things progress.
Another theory I have is that given my leg length discrepancy, it makes sense that I've been putting more weight on my left leg (as the longer leg) and perhaps that helped to speed up the callus formation in that leg. Surprisingly, it appears that dr R doesn't really believe that walking more would make a difference in terms of callus formation. The reason I say that is because when I saw him I did express optimism that I could try and walk more to improve the callus formation on the right, to which he replied that I'm already doing everything I can. Honestly that logic makes no sense to me. While yes I have read about patients who do practically no walking at all (as precise patients) and have their bones filling in very quickly, I believe there is another class of patients like myself who may need to help the process by putting on weight to stimulate growth. I think this is only logical, though as I've said, he appears to dismiss this reasoning.
Either way, my plan is to reach 7.5cm and wait out a few months to see the progress on the right leg. At which point I'll decide whether to go for bone graft or just give the leg more time. I do not want to jump to additional surgeries unless I see that the bone is not filling in with time at all.
So that's about it for the update. I'll touch base again after my next visit. Be well!
Great news tiggy.... your on your way to reach that milestone...
Stay positive ... 
Quote from: PANDA:BEAR.. on September 06, 2019, 05:32:29 PMGreat news tiggy.... your on your way to reach that milestone...
Stay positive ...
Thanks Panda 💪
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