Rozbruch- Internal Femurs with Stryde

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Quote from: InFullStryde on May 30, 2019, 09:32:52 PMGlad to assist.  Regarding Duck Ass; in addition to the quad and hip stretches, also see about incorporating some glute/lower ab exercises if not already.  Whatever you can tolerate at this stage, of course. I know it can be painful. 

I understand the paranoia.  Rest assured, however; that the nails will not break.  You're safe and secured on those metal rods. 

Talk soon!

IFS

What would be some glute/lower an exercises IFS?

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Quote from: azman on May 30, 2019, 10:22:11 PMCan you walk up/down the stairs with the Stryde in your femurs?  How soon, a week or two or within a month?

Azman,
I walked up the stairs in my house 2 weeks post op in order to take a shower (my shower is upstairs). To do this I used a walker to get to the staircase and then while holding on to the rails with one hand I used a crutch to give me support to go up. This is what the PT showed me when he came over. The same process is used to go back down. However I was completely drained of energy after this trip up and down.

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Hey everyone,
A quick update, I am 3 weeks post op and will be hitting 19mm today. I also drove my car today for the first time since surgery! The trip wasn't a long one, I'd say about 3-4 miles back and forth but it felt very good to get out of the house and do something on my own. My right leg did get a little tired so I really wouldn't drive somewhere much farther away, still it was a nice trip. Being stuck in the house is starting to get to me but I just need to suck it up and push on.

Another update re sleeping, I must say I slept better during the first week post op than I do now. Now  I get sore from sleeping on my back and my legs actually get tired from being stretched out all night. So I try sleeping on my sides. Because sleeping on my sides is still uncomfortable, I wake up often to switch sides. But again I must say that I feel progress on that front because it does get slightly easier to sleep on the sides with each passing day. I imagine that within a week or 2 it will get significantly easier and less uncomfortable. That's it for now guys. I'm seeing dr R next week for a follow up and will update the forum accordingly. Be well.

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Hey, tiggy. Thank you very much for the diary. Very kind of you to share your experience with us here. Wishing you the best of luck through the entirety of your CLL journey.

Do you want to share more on how you came across CLL, your motivations for it, and what made you decide to finally go with it?

All the best, man.

MLA

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Quote from: myloginacc on June 03, 2019, 06:35:01 PMHey, tiggy. Thank you very much for the diary. Very kind of you to share your experience with us here. Wishing you the best of luck through the entirety of your CLL journey.

Do you want to share more on how you came across CLL, your motivations for it, and what made you decide to finally go with it?

All the best, man.

MLA

Hey man, thanks for your wishes. Sure thing.

I wanted to do LL because at my height of 5'3 life isn't easy. Other males don't take you very seriously and overall I just felt insecure around other men and women who were taller than me. After this surgery I will hopefully be 5'6 and while that is not tall or even average for males in US, it is still a decent height when wearing shoes. Even with regular dress shoes I would be 5'7 and to me that is a decent height. Moreover, I would no longer stick out in the crowd as the shortest guy, and that, in and of itself, means a great deal to me.

I first learned of LL about 7 yrs ago, I believe it was from the old forum  community site. Back then I had no means to go forward with it but I knew I would proceed with the surgery some day. But through all these years I frequented both the old forum  community and this site to learn as much as I could about the procedure. Fast forward to present time, my plans were to have the surgery next summer. However, about 3 months ago a close family friend was diagnosed with a brain tumor at a very young age. This came as a wake up call to me. I knew I couldn't postpone the surgery any longer because I did not want to have any regrets in my life when my time came. I know this is very morbid but it's the truth. I also realized that waiting another year made little sense because if I did LL now, by next summer I would be healed and could just move on with my life. Plus it would give me 1 extra year to enjoy my new height. When one thinks of it that way, it all starts falling into place.

I also knew that I had to have this surgery because it was eating me alive, it was constantly on my mind everywhere I went. It became a disease and I just had to get it out of my mind by taking the plunge. All these things ultimately led me to where I am today. This is not to say that I wasn't scared of the surgery. I was immensely afraid of complications and pain. But after that incident with our family friend, I knew all of those things were secondary because we only get 1 chance in life to make the most of it. And in theory most people already know this, and I did too 4 months ago, but when something truly horrific happens to a close family member or a friend, it really changes your perspective. Theory no longer mattered when it wasnt accompanied by action. So I had to act.

Anyway that's my story. Sorry for the long write up but I hope it was useful to you or others reading.

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Quote from: tiggy on June 03, 2019, 08:40:05 PMHey man, thanks for your wishes. Sure thing.

I wanted to do LL because at my height of 5'3 life isn't easy. Other males don't take you very seriously and overall I just felt insecure around other men and women who were taller than me. After this surgery I will hopefully be 5'6 and while that is not tall or even average for males in US, it is still a decent height when wearing shoes. Even with regular dress shoes I would be 5'7 and to me that is a decent height. Moreover, I would no longer stick out in the crowd as the shortest guy, and that, in and of itself, means a great deal to me.

I first learned of LL about 7 yrs ago, I believe it was from the old forum  community site. Back then I had no means to go forward with it but I knew I would proceed with the surgery some day. But through all these years I frequented both the old forum  community and this site to learn as much as I could about the procedure. Fast forward to present time, my plans were to have the surgery next summer. However, about 3 months ago a close family friend was diagnosed with a brain tumor at a very young age. This came as a wake up call to me. I knew I couldn't postpone the surgery any longer because I did not want to have any regrets in my life when my time came. I know this is very morbid but it's the truth. I also realized that waiting another year made little sense because if I did LL now, by next summer I would be healed and could just move on with my life. Plus it would give me 1 extra year to enjoy my new height. When one thinks of it that way, it all starts falling into place.

I also knew that I had to have this surgery because it was eating me alive, it was constantly on my mind everywhere I went. It became a disease and I just had to get it out of my mind by taking the plunge. All these things ultimately led me to where I am today. This is not to say that I wasn't scared of the surgery. I was immensely afraid of complications and pain. But after that incident with our family friend, I knew all of those things were secondary because we only get 1 chance in life to make the most of it. And in theory most people already know this, and I did too 4 months ago, but when something truly horrific happens to a close family member or a friend, it really changes your perspective. Theory no longer mattered when it wasnt accompanied by action. So I had to act.

Anyway that's my story. Sorry for the long write up but I hope it was useful to you or others reading.

Thank you very much for sharing your story, tiggy.

If it's also not too personal, may I ask how you went about preparing for the logistics and the finances for CLL during these last 7 years?

Wishing you the best, and a safe lengthening journey!

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Quote from: myloginacc on June 04, 2019, 08:16:20 PMThank you very much for sharing your story, tiggy.

If it's also not too personal, may I ask how you went about preparing for the logistics and the finances for CLL during these last 7 years?

Wishing you the best, and a safe lengthening journey!

Not exactly sure what you mean by logistics but in terms of paying for it, 7 years is a long time to save if you spend little. As they say, if there is a will there is a way. Thanks for reading.

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Quote from: tiggy on June 03, 2019, 08:40:05 PM
I first learned of LL about 7 yrs ago, I believe it was from the old forum  community site. Back then I had no means to go forward with it but I knew I would proceed with the surgery some day. But through all these years I frequented both the old forum  community and this site to learn as much as I could about the procedure. Fast forward to present time, my plans were to have the surgery next summer. However, about 3 months ago a close family friend was diagnosed with a brain tumor at a very young age. This came as a wake up call to me. I knew I couldn't postpone the surgery any longer because I did not want to have any regrets in my life when my time came. I know this is very morbid but it's the truth. I also realized that waiting another year made little sense because if I did LL now, by next summer I would be healed and could just move on with my life. Plus it would give me 1 extra year to enjoy my new height. When one thinks of it that way, it all starts falling into place.

I also knew that I had to have this surgery because it was eating me alive, it was constantly on my mind everywhere I went. It became a disease and I just had to get it out of my mind by taking the plunge. All these things ultimately led me to where I am today. This is not to say that I wasn't scared of the surgery. I was immensely afraid of complications and pain. But after that incident with our family friend, I knew all of those things were secondary because we only get 1 chance in life to make the most of it. And in theory most people already know this, and I did too 4 months ago, but when something truly horrific happens to a close family member or a friend, it really changes your perspective. Theory no longer mattered when it wasnt accompanied by action. So I had to act.

Anyway that's my story. Sorry for the long write up but I hope it was useful to you or others reading.

Thank you for sharing your story. I connected with this in so many ways. The key take away for me was time is valuable. Such a painful yet powerful experience this is. The realization and perspective that time is valuable and taking action through LL, while at the same time, embarking on one of the longest, most painful journeys through LL. I've never felt this level of anxiety, fear and optimism all at once.

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Quote from: TheAlchemist on June 05, 2019, 05:59:19 AMThank you for sharing your story. I connected with this in so many ways. The key take away for me was time is valuable. Such a painful yet powerful experience this is. The realization and perspective that time is valuable and taking action through LL, while at the same time, embarking on one of the longest, most painful journeys through LL. I've never felt this level of anxiety, fear and optimism all at once.

Hey Alchemist,

The things you are feeling are totally normal and I had the exact same feelings. In fact, as I was being wheeled into the OR I still couldn't believe that I was about to have my perfectly healthy legs broken and all because of my mental height dysphoria. But I also knew it was too late to turn back and at that point you just let go. Honestly this experience, so far, has been nowhere near as difficult pain wise as I've imagined and read about on this forum. Perhaps it's because of the Stryde nail, perhaps it's the drs skill, or maybe it's just my own body's reaction to this or maybe it's a little bit of each. Either way there are so many people out there who are dealing with death and loss of a kind someone healthy can hardly imagine. My point is, take the plunge if you know it must be done, try to minimize anxiety and fear by realizing how lucky you are to be healthy and able to do something like this, deal with discomfort for 3 months and move on. Live your life the best you can, do what makes you happy and hope for a long and healthy life. It's such a simple concept yet often overlooked and overthought by many, including myself (until this horrific news came my way 3 months ago). It's interesting actually because as soon as I found out about it, I literally called dr Rs office within I think 3 days to schedule a consultation. I had surgery about 2 months later. So you can see the impact all of this had on me. And guess what, I don't regret a single thing. Of course I may regret it later but I hope not and I doubt I will knowing myself. Sorry for the long speech but I thought it important to share this with the community.

Also, for those reading, please do not take this post as an encouragement to proceed with this surgery with sub par drs at sub par facilities. It is immensely important who you choose as your surgeon and if I wasn't truly at peace with my choice, I would never had put my health and healthy legs at such a risk. Please do your due diligence because you owe it to yourself. Be well.

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Hey guys, I've hit 22cm today and I'm having somewhat of an issue. Since yesterday the front portion of my right tibia has been getting numb. First it would appear when my leg was motionless for a few minutes, for example when sitting or laying on my stomach. Today it's been more frequent and the numbness extends to my knee if I don't shake off my leg and switch positions. I've contacted dr R and he advised that I slow down to 3 times a day. I'm very upset about this because it means the lengthening phase will be extended. My question for those LL veterans reading, have you experienced something similar and has the numbness subsided for you? If so what caused the numbness to go away? I'm just worried that if it doesn't go away after I drop down to 3 sessions a day, I may be forced to stop so as not to cause nerve damage. Any and all responses are welcome