Rozbruch- Internal Femurs with Stryde

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Quote from: azman on May 22, 2019, 07:00:47 PMDo you get muscle cramps during the lengthening phase?

If so, how do you control the pain?

I wouldn't say what I feel is muscle cramps. It just feels like regular type of pain like an additional level 1 pain added to what's already there. After I finish the session the pain usually goes away on its own. I haven't felt any pain during a lengthening session that would warrant taking an oxy for. And as I've said earlier, I only feel pain on the left leg. That right doesn't respond to the lengthening whatsoever.

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Hey guys, here is a quick update:

Day 12:
Yesterday I've reached 1cm. I also had a PT come to my house. I'm happy to report that according to him I am very flexible and doing great so far in terms of how well I am bending the knee and doing all the other exercises. He even said he was going to contact dr R and update him on my good progress. I asked whether he thinks I should be able to reach the 3 inch mark and he observed that I should have no problems reaching it. I keep my fingers crossed that he is right. I realize that I'm still in the very beginning of this process so I'm not letting anything he said get into my head.

In other news, pain remains at about a 0-1 during the day in my left leg, the right has no pain. Evening time the pain in my left leg reaches a 3 or 4 sometimes but an oxy brings it down to 0-1. Funny thing is, oxy is taking at least an hour and half to start working for me. I don't know if this is a norm or just my body being weird.

I continue using the walker. I haven't tried crutches yet and I asked the PT whether transitioning  to crutches would speed up the healing process. He said it makes no difference and I should use what I feel comfortable with. I will ask dr R about this as well when I see him for a follow up next week. I'm also moving faster when walking and I'm putting almost all of my weight on my legs.

 I still get 6-8 hrs of sleep every night though it is not uninterrupted sleep. I wake up once at night to pee and once more toward early morning hrs like 5 or 6am. During this time I also get bothered because of discomfort of sleeping on my back. So I try stretching a little and go back to sleep until about 8am.

So that's about it for now. Let me know if you have questions. My plan is to update the forum again in few days after I see dr R for a follow up. Thanks for reading guys.

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Hey ... Tiggy... thanks for the update.. it's great to hear your doing well.. just take it easy and I'm sure you will reach your ... hight goal..,

Panda 

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Quote from: tiggy on May 26, 2019, 04:57:11 PMHey guys, here is a quick update:

Day 12:
Yesterday I've reached 1cm. I also had a PT come to my house. I'm happy to report that according to him I am very flexible and doing great so far in terms of how well I am bending the knee and doing all the other exercises. He even said he was going to contact dr R and update him on my good progress. I asked whether he thinks I should be able to reach the 3 inch mark and he observed that I should have no problems reaching it. I keep my fingers crossed that he is right. I realize that I'm still in the very beginning of this process so I'm not letting anything he said get into my head.

In other news, pain remains at about a 0-1 during the day in my left leg, the right has no pain. Evening time the pain in my left leg reaches a 3 or 4 sometimes but an oxy brings it down to 0-1. Funny thing is, oxy is taking at least an hour and half to start working for me. I don't know if this is a norm or just my body being weird.

I continue using the walker. I haven't tried crutches yet and I asked the PT whether transitioning  to crutches would speed up the healing process. He said it makes no difference and I should use what I feel comfortable with. I will ask dr R about this as well when I see him for a follow up next week. I'm also moving faster when walking and I'm putting almost all of my weight on my legs.

 I still get 6-8 hrs of sleep every night though it is not uninterrupted sleep. I wake up once at night to pee and once more toward early morning hrs like 5 or 6am. During this time I also get bothered because of the discomfort of sleeping on my back. So I try stretching a little and go back to sleep until about 8am.

So that's about it for now. Let me know if you have questions. My plan is to update the forum again in few days after I see dr R for a follow up. Thanks for reading guys.

Sounds like everything is going great so far.   I'm just going to do my daily reminder to stretch those hams, quads and hip flexors! :-) Sounds like your PT routine is covering it all.  Good job, buddy. 

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Thanks Panda and IFS for your kind replies. You are also doing great IFS, keep up those stretches my friend. It's funny how since surgery, the days have been flying by so quickly. Yet today I'm reaching 11cm, and that seems sooo far from the 75mm I hope to gain and it feels as though it will never happen. I envy you for having completed the distraction phase already! This process requires a lot of patience man

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Day 15: 13.25mm

Guys, as promised, here is my update after seeing dr R for my first follow up since surgery. So far everything is looking good. I am to continue lengthening at the same pace and stretching at the same pace as well. Previously I had expressed concerns that my left leg was growing faster than the right but Dr R officially put that concern to rest. The X-rays show equal distraction and I'm very relieved about that. I am due for another follow up in 2 weeks. Unless something comes up, I will update the forum again after my visit. Thanks for reading.

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Hi tiggy
I am so happy for you that everything is going so well so far.  Just one question is that you lengthened 13.25mm in 15 days after surgery.  That sounds too fast. How much do you lengthen everyday?

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Quote from: Ghostfish on May 29, 2019, 01:36:31 AMHi tiggy
I am so happy for you that everything is going so well so far.  Just one question is that you lengthened 13.25mm in 15 days after surgery.  That sounds too fast. How much do you lengthen everyday?

Hi Ghostfish,
I am lengthening .25 per day 4 times a day. But for the first 4 days I was lengthening 5 times a day. All of this was per dr Rs instructions. So those first days gave me a nice boost!

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Awesome progress so far Tiggy. We're rooting for you! Couple of questions for you

1) How's your sleep now? Still at 6 to 8 hrs?

2) Are you able to sit down? If so, how long?

3)  At this stage, do you still need aide 24/7 or just partial, or nothing at all?

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Quote from: TheAlchemist on May 29, 2019, 05:49:21 PMAwesome progress so far Tiggy. We're rooting for you! Couple of questions for you

1) How's your sleep now? Still at 6 to 8 hrs?

2) Are you able to sit down? If so, how long?

3)  At this stage, do you still need aide 24/7 or just partial, or nothing at all?

Hey Alchemist,

1. Yes sleep is still the same
2. I am able to sit down and was always able to. On a chair the longest I've sat was probably around 10 min when doing PT. I'm sure I can sit much longer, I just never tried because I feel more comfortable sitting on my bed with legs extended. These days my butt is feeling more discomfort the longer I sit or even when laying down. This contributes to my taking longer to find a comfortable position to fall asleep in. I hope it starts getting better soon because frankly it's quite annoying!
3. I certainly do not need an aide 24/7. Mostly I just need help with meal preparation and for someone to bring the plates to me. I'm using a walker so there is no way for me to do any of that on my own since those require at least one of your hands to be free. Everything else I do on my own.