Quote from: Johnson1111 on June 12, 2018, 11:09:16 PMIf I was guaranteed a process like yours I wouldn't even bother with STRYDE. That's a great outcome nearly perfect although you're right it doesn't look as consolidated as I would have originally thought based on clearing someone to walk but he knows more than us. Although RGKEY was cleared despite the formation looking a little off and he screwed himself up. From my understanding he went to a doc though
My initial thought when I heard about Stryde was that it is a complete game changer, and It very well may be. However, at this point my advice to anyone that is ready to book their surgery would be to just go with Precice 2.2 if you can't afford Stryde with Paley right now. It is proven and has a great track record as far as safety goes. I asked Dr. M today if he would be getting access to the Stryde nail (I posted this in the Stryde thread as well) and he said he will but he doesn't know when it will be available outside of Paley's clinic yet. He also indicated he would be a little hesitant to let his patients completely forgo the walker during lengthening. Although if Paley's patients prove it can be done he may change his mind.
Short2tall internal femurs with Dr. Mahboubian
Quote from: short2tall on June 12, 2018, 11:49:04 PMThanks! Dr. Mahboubian said anywhere between 3 to 5 weeks is typical. But keep in mind walking is very tough at this point, and the bone isn't actually consolidated, the rod is still supporting a lot of the weight.
Does he have the same criteria as Paley, that two or so sides have callused? Paley's assistant seems to tell people to expect 2 months before they can walk.
Quote from: short2tall on June 12, 2018, 11:59:47 PMMy initial thought when I heard about Stryde was that it is a complete game changer, and It very well may be.
My concern about Stryde is that I think a lot of people may be overestimating it. Yes, you'll hopefully be able to walk far sooner and maybe go back to your normal routine after lengthening rather than waiting several weeks, but during lengthening? Given the multiple daily lengthening, PT, and pain that's involved in the process, I don't think it's going to let people work full time jobs while lengthening as they seem to hope.
Quote from: short2tall on June 12, 2018, 11:49:04 PMThanks! Dr. Mahboubian said anywhere between 3 to 5 weeks is typical. But keep in mind walking is very tough at this point, and the bone isn't actually consolidated, the rod is still supporting a lot of the weight.
Does he have the same criteria as Paley, that two or so sides have callused? Paley's assistant seems to tell people to expect 2 months before they can walk.
Quote from: short2tall on June 12, 2018, 11:59:47 PMMy initial thought when I heard about Stryde was that it is a complete game changer, and It very well may be.
My concern about Stryde is that I think a lot of people may be overestimating it. Yes, you'll hopefully be able to walk far sooner and maybe go back to your normal routine after lengthening rather than waiting several weeks, but during lengthening? Given the multiple daily lengthening, PT, and pain that's involved in the process, I don't think it's going to let people work full time jobs while lengthening as they seem to hope.
Quote from: FormerKidd on June 13, 2018, 12:06:01 AMDoes he have the same criteria as Paley, that two or so sides have callused? Paley's assistant seems to tell people to expect 2 months before they can walk.
Yes he seems to have the same criteria, he didn't specifically say that 2 sides of the bone needed to have callus formation but that is more or less what he was looking for. Paley's staff might just be trying to under-promise and over-deliver so patients don't get disappointed if they can't walk as soon as they hope. 2 months seems a bit long to wait.
My concern about Stryde is that I think a lot of people may be overestimating it. Yes, you'll hopefully be able to walk far sooner and maybe go back to your normal routine after lengthening rather than waiting several weeks, but during lengthening? Given the multiple daily lengthening, PT, and pain that's involved in the process, I don't think it's going to let people work full time jobs while lengthening as they seem to hope.
Yes, I think you hit the nail on the head with your assessment here.
Quote from: FormerKidd on June 13, 2018, 12:06:01 AMDoes he have the same criteria as Paley, that two or so sides have callused? Paley's assistant seems to tell people to expect 2 months before they can walk.
Yes he seems to have the same criteria, he didn't specifically say that 2 sides of the bone needed to have callus formation but that is more or less what he was looking for. Paley's staff might just be trying to under-promise and over-deliver so patients don't get disappointed if they can't walk as soon as they hope. 2 months seems a bit long to wait.
My concern about Stryde is that I think a lot of people may be overestimating it. Yes, you'll hopefully be able to walk far sooner and maybe go back to your normal routine after lengthening rather than waiting several weeks, but during lengthening? Given the multiple daily lengthening, PT, and pain that's involved in the process, I don't think it's going to let people work full time jobs while lengthening as they seem to hope.
Yes, I think you hit the nail on the head with your assessment here.
Looking good! That's a nice bonus half an inch, you got so excited that you said you lengthened 7.5 inches instead of cm 😉
Haha thanks for correcting me Android. You're right, I couldn't even contain my excitement that I was able to walk again. As far as the extra half inch, I think I'll have to get a stadiometer and measure for myself.
Its been 3 days since I've been cleared to weight bear. I stopped using the walker after I got home from seeing Dr. M on the 12th. I have been walking without crutches since then. My walk definitely looks like more of a hobble at times, but I am walking unaided nonetheless. The most difficult part for me now is shifting my weight from one leg to the other when walking. It just doesn't feel natural to stand on one leg at a time after not being able to do so for such a long time. I can keep an almost natural looking gait for about 20 steps and then I start to get tired and hobble again. However I did go get a haircut yesterday and I don't think anyone in the salon noticed my walk. I am still doing PT 3 times per week, and I'm becoming more and more active each day. I think I'm even going to go grocery shopping in the next few days, because I can use the shopping cart for support if I get tired.
I want to reiterate how lucky I feel that I was able to get through this process with no complications so far, and seem to be making a quick recovery. I am definitely not taking this fact for granted after reading about fallen's experience, and there are many others who have faced serious complications. The only things I can really attribute to my success are being in very good shape prior to LL, and vigorous PT throughout lengthening.
Quote from: short2tall on June 15, 2018, 07:03:45 PM Its been 3 days since I've been cleared to weight bear. I stopped using the walker after I got home from seeing Dr. M on the 12th. I have been walking without crutches since then. My walk definitely looks like more of a hobble at times, but I am walking unaided nonetheless. The most difficult part for me now is shifting my weight from one leg to the other when walking. It just doesn't feel natural to stand on one leg at a time after not being able to do so for such a long time. I can keep an almost natural looking gait for about 20 steps and then I start to get tired and hobble again. However I did go get a haircut yesterday and I don't think anyone in the salon noticed my walk. I am still doing PT 3 times per week, and I'm becoming more and more active each day. I think I'm even going to go grocery shopping in the next few days, because I can use the shopping cart for support if I get tired.
I want to reiterate how lucky I feel that I was able to get through this process with no complications so far, and seem to be making a quick recovery. I am definitely not taking this fact for granted after reading about fallen's experience, and there are many others who have faced serious complications. The only things I can really attribute to my success are being in very good shape prior to LL, and vigorous PT throughout lengthening.
Hey! Good to hear that everything is going well for you. But are you walking now without crutches 4 weeks after you stopped clicking 
Quote from: Constantine on June 15, 2018, 08:44:16 PMHey! Good to hear that everything is going well for you. But are you walking now without crutches 4 weeks after you stopped clicking
Yes that is correct, it has only been 4 weeks since I stopped lengthening. The bones are not fully consolidated but it is considered safe to walk at this point because the Precice rod still supports much of your weight. Once you are cleared to walk, crutches are optional. Most people use them for a while but I chose not to, because I want to get back to normal as fast as possible.
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