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Posted on Sep 8, 2021, 4:36 pm
#81

Quote from: DreamsComeTrue on September 08, 2021, 01:14:24 PMThe bone healing is way better now, but my doctor is not allowing re-lengthening at all. The only way is after bone healed, re-breaking the femur in different levels of the femur  ( not on the same gap ).

I started taking supplements and weight-bearing in the late stage ( after the distractions phase  ), and I do think if my doctor guided me well in terms of weight-bearing and diet, I could at least achieved  5 cms safely.

Currently, I do not think 4.2 cm was worth the procedure. At the same time, I do not think re-breaking legs and t re-lengthening for  2 cm more is worthing. The only consideration is to re-lengthening  3cm more at least. What do you think?
Why not try tibias? I think 4.2cm is a very good amount man that's almost 2 inches I'd get 4-5cm on tibias. Re-breaking your femurs seems extremely risky though.

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Posted on Sep 8, 2021, 11:07 pm
#82

Quote from: DreamsComeTrue on July 07, 2021, 06:46:33 PMUPDATE

here is my today X -RAY
after  2 weeks  from stop  lengthening, and I started  waking  with crutches  almost 10 days ago.   

https://ibb.co/1qjVj8x
https://ibb.co/PtX2hgH
https://ibb.co/L0T94SL

If you rebreak your bones , go for 7/8cm in total.

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Posted on Sep 9, 2021, 12:12 am
#83

No reason to fully consolidate now and them do another surgery and rebreak your bones and all this nonsense.
You shouldn't have stopped since your gap started to become thicker and I can't really understand why your doctor insist so much to stop lengthening.
I believe he just wanted to take the money and finish as soon as he could with his patient to save time for other cases.

Anyway, if you rebreak your bones go to another doctor that really want to help you to achieve your  target because clearly the one you have now didn't want.

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Posted on Sep 9, 2021, 1:48 am
#84

Quote from: Body Builder on September 09, 2021, 12:12:02 AMNo reason to fully consolidate now and them do another surgery and rebreak your bones and all this nonsense.
You shouldn't have stopped since your gap started to become thicker and I can't really understand why your doctor insist so much to stop lengthening.
I believe he just wanted to take the money and finish as soon as he could with his patient to save time for other cases.

Anyway, if you rebreak your bones go to another doctor that really want to help you to achieve your  target because clearly the one you have now didn't want.


Yeah you’re fine bro, as long as there is union even if it’s slow it doesn’t matter. Go for 6-6.5 at least. Your recovery might be longer because of your slow bone healing, but non union is when there is no growth for 8 months I believe, so I you do have union even if slow

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Posted on Sep 9, 2021, 5:03 pm
#85

"This is not a problem with the PRECICE nail since it has complete rate control. Poor bone healing can be recognized during the lengthening process. Once it is recognized, the rate of distraction can be slowed. With the PRECICE the lengthening can be reduced to any level or even stopped. If despite these changes, the bone healing remains poor, the lengthening can be reversed until better bone formation is seen"

https://paleyinstitute.org/centers-of-excellence/stature-lengthening/complications/#/




The attached image is today x-ray after two and half months of stop lengthening.

https://ibb.co/y6XCBDs


The doctor told me first palace that I can't be lengthening, and I had to stop due to poor bone healing which  makes sense in the beginning. Then a month latter , he told me the same thing.



I had consulted four doctors, and all agreed that I should not lengthen ( that's was one and a half months ago).

The last x-ray was fine after good nutrition  and weight -bearing , and my doctor told me that I impossible because the regenerated bone started to harden.


What is makes me mad is not about reaching the target as to why he did not allow me to lengthen 0.8 mm to reach 5 cm, I was asked I just need to reach 5 at least !! , if the bone is not healing well, and now  the bone is healed where I can't lengthening then there is must be a stage where the bone okay lengthens 8.mm even with .5  or 0.25 rate a day .

One more thing I had not mention, I had just noticed in the doctor report before the surgery is my right femur is shorter than the left one by almost 6 cm, and he never talked about it, and we did lengthen all 4.2 cm.

My right leg is not as good in function as the left one, plus the bone formation is less, and  I think this is due to the surgical technique where to worry about and just want to tell that's my body fault.
 
 





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Posted on Sep 9, 2021, 7:52 pm
#86

Now just doctor told me that  there is no improvement  in the  right leg and we should wait one month and mostly we need re surgery   to solve nonunion issue in the right leg
I'm really for the first time in bad mode and just want get out of this persuader safely, I even get feel of regret why should I involved with such persuader.
man this is not easy thing to do

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Posted on Sep 9, 2021, 10:06 pm
#87

Quote from: DreamsComeTrue on September 09, 2021, 07:52:13 PMNow just doctor told me that  there is no improvement  in the  right leg and we should wait one month and mostly we need re surgery   to solve nonunion issue in the right leg
I'm really for the first time in bad mode and just want get out of this persuader safely, I even get feel of regret why should I involved with such persuader.
man this is not easy thing to do
I think you should talk to another doctor to continue with him, like Giotikas.
Your doctor seems not trustworthy to me and for sure not capable as he wasn't even able to finish an LL.of 5cm with precise which has reverse shortening.

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Posted on Sep 10, 2021, 6:44 am
#88

Quote from: Body Builder on September 09, 2021, 10:06:22 PMI think you should talk to another doctor to continue with him, like Giotikas.
Your doctor seems not trustworthy to me and for sure not capable as he wasn't even able to finish an LL.of 5cm with precise which has reverse shortening.

I don't think it's the surgeon's fault tbh. If his body doesn't grow bone what can the surgeon do.

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Posted on Sep 10, 2021, 3:19 pm
#89

Quote from: Body Builder on September 09, 2021, 10:06:22 PMI think you should talk to another doctor to continue with him, like Giotikas.
Your doctor seems not trustworthy to me and for sure not capable as he wasn't even able to finish an LL.of 5cm with precise which has reverse shortening.


Yes, I lost trust in this doctor

I already talked to another doctor who told me that' how come my doctor told me the first time that I  can reach 8 cms safely as the best case  I should not exceed the length of 20% of original femur length, which is 8 cms even way too high for my case.

one more thing, he should perform tibia instead of the femur as the ratio goes for tibia, or I will end up out of proportion and exceed the 20% safe limit.

However, he recommends that not worth it to re-breaking the femur again, and he wonders why my doctor not considering precise shortening, which has a reverse shortening feature.

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Posted on Sep 10, 2021, 8:47 pm
#90

Quote from: DreamsComeTrue on September 10, 2021, 03:19:15 PM
Yes, I lost trust in this doctor

I already talked to another doctor who told me that' how come my doctor told me the first time that I  can reach 8 cms safely as the best case  I should not exceed the length of 20% of original femur length, which is 8 cms even way too high for my case.

one more thing, he should perform tibia instead of the femur as the ratio goes for tibia, or I will end up out of proportion and exceed the 20% safe limit.

However, he recommends that not worth it to re-breaking the femur again, and he wonders why my doctor not considering precise shortening, which has a reverse shortening feature.

I mean if I had this procedure with good doctor, in best case I could reach 5.5 or might  6 cm but 8 without exceed 20% and not going out of proportion very much

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