Thanks HeightJourney2021. I have been following your youtube channel and pretty much watched all the videos and liked them as well. What you are doing in your channel is an amazing task and helps the future LLers. Even before my Femurs surgery I watched some of your videos and prepared mentally for it. Thanks for your videos.
Feb-12-2022 - Tibia+26 - Femur+9
Sorry guys for the late update. For the last 3 days I have been suffering with lots of pain. Unable to sleep at all. Looking like a zombie. Every 4 hours taking 2 Tylenol (325mg each) and 2 oxy (10mg each) even that doesn't seem to help with the pain. I sent an email to Dr. Robbins that the painkiller is not working as expected on me. Please suggest me something else for a while. I don't feel much discomfort in tibia. Just the tightness and stiffness which goes away with little massage and stretches. Tibia is absolutely fine. Even from 5 days before the femur surgery I only took 2 oxy before the PT session and rest of the times I was able to manage the pain only with the Tylenol in tibias. But after femurs surgery everything was manageable in the hospital but of course with more pain when compared to tibia. On Feb-7th I got discharged with the same set of prescribed medicines and I started with 2 Tylenol 325 mg and 1 oxy every 6 hours and it was ok for the first 2 days. But from the 3rd day onwards it didn't work so I started increasing the dose and now I am taking 2 Tylenol and 2 oxy every 4 hours even that doesn't help at all. I am afraid that I am taking too much of oxy a day and I am running out of oxy quickly. Let's see what Dr. Robbins is responding back.
Any Quadri-lateral (also non-QL) veterans, if you had come across this situation or experienced this same situation please feel free to give me an advice or suggestion and see if that works for me.
As long as the painkiller works for me and I am able to sleep at least for 4-5 hours then I am good. I just need a painkiller that works well on me. I hope Dr.Robbins would help me out with my situation.
Lengthened so far,
Tibia: 14.5 mm
Femur: 3.25 mm
Total: 17.75 mm
Femurs very painful for 3-4 weeks. You can ask for a pain specialist at Paley (it'll cost a bit)
Your intake seems high but at the same time you are QL so...
Thanks for the information, tallerwouldbenice. I have an appointment with Dr. Robbins on Wednesday (16-Feb-2022) but since I sent an email and also spoke to the physician assistant they moved that appointment to tomorrow (Monday 14-Feb-2022). Hopefully he gives me some good pain meds at least for a short term which works well on me. Fingers crossed.
GodsGrace, schedule a meeting w/ Dr. Guiffrida. He/she is specialized in pain remedy. Explain the pain & they will prescribe you the right medication. I learned this from talking to other LL patients during my PT wait times.
Godspeed! Do you best at PT and move the legs as much as you can. I know it hurts like a b*tch at the beginning, but it will help get rid of the stiffness in your legs.
Yes motoboarder, I had an emergency meeting with Robbins on Monday (yesterday) and he recommended me to meet him asap. Dr. Guiffrida's scheduling team is very poor and I have been trying to schedule an appointment since yesterday and left a bunch of voice messages. He was here in West Palm Beach today and I was requesting them to have a meeting with him as I am coming for my PT today at west palm beach but they never agreed for it. And they said again on next Tuesday only he is available in West Palm Beach clinic. I said I can't wait that longer and where else or in which other office I can meet him. He is available at Fort Lauderdale office and finally I spoke to his assistant and got my appointment for tomorrow (Feb-16-2022) at 9.30 AM. Hope I will get a good pain med that works for me. There was a little quarrelsome between me and his assistant but I explained her you need to understand my situation also I didn't sleep for 3-4 days and my pain level at night is constantly 8-9/10. That's why I was little frustrated in leaving 5-6 voice messages and she understood my situation and got the earliest appointment for me for tomorrow. Hopefully it works out well.
Also motoboarder, despite all these sleeplessness and pain level I never skipped my PT and never skipped my personal sessions at home and still standing at least 5 times (each 30 secs) a day without fail.
Also yesterday I did only one turning session due to ridiculous pain in my legs. Just 0.25 mm in tibias and 0.25 mm in femurs.
The main set back I have is that the pain meds are not working for me. Hopefully I will have a solution with the other narcotics doc Giufridda tomorrow.
Feb-16-2022 - Tibia+30 - Femur+13
Alright guys today was a very tiring and rough day for me. Slept only for 2 hours (disturbed sleep with lots of pain) and woke up at 6.30 AM. My wheelchair van service came to pick me up by 7.30 AM and reached the Fort Lauderdale office (Canterspine - seems like a franchise or other office of paley institute, IDK exactly) by 8.45 AM. My appointment was at 9.15 AM so waited for 30 mins and met Dr. Giufridda at 9.30 in his office. He was asking me few questions about when the surgeries happened and what's going on with the pain med situation. I explained him everything very clearly and he said sometimes different bodies react differently to the set of medications. So he finally prescribed Percocet for me. And as it has acetaminophen in it already I should not take the tylenol. The dosage level still goes like the same as oxy meaning one tablet in every hours. Also he was asking did they already prescribe you gabapentin. Yes during my last visit with Dr. Robbins on Monday (Feb-14-2022) his assistant prescribed me gabapentin. I believe it helps with nerve pain. The dosage level for gaba goes like this, first 2 days 0-0-1 (meaning only one 1 in the night) the next 2 days 1-0-1 and the next 2 days 1-1-1 and the next 2 days 1-1-2 and the next 2 days 2-1-2 and the next 2 days 2-2-2. Once you reach this level you will continue with this dose (basically 6 tablets a day) and they will evaluate you in your every 2 weeks follow up and make any adjustments if needed. For now this is what I am going to follow for the next 2 weeks as my next follow-up appointment with Dr. Robbins is on Feb-28th and with Dr. Giufridda on March-8th.
I asked Dr. Giufridda what could be the reason oxy is not working for me? He replied there is no one definite answer for that question, aging factor and different body types there are so many reasons like that. I am in my late 30s so thought for me aging could be a thing but I could be wrong and who cares. As long as the the percocet does what I am expecting I will be so happy to achieve my target. Fingers crossed.
Then From there I directly went to my PT at 12.00 PM. Reached there by 11.20 AM and waited for 40 mins before the PT and after the PT is done my wheelchair van service was late by another 40 mins to pick me and by the time I reached home it was 2.30 PM and was very tiring. On top of that I finished my 3 lengthening sessions with 2 hours apart and now my quad muscles are very tight. SMH, Hopefully the percocet works.
Lengthening statistic so far,
Tibia: 16.25 mm
Femur: 5.75 mm
Total: 22 mm
Wish me luck guys. Thanks.
Best of luck GodsGrace! Try your best at hamstring & stomach stretches. They will help loosen quad muscles.
Thanks buddy. Yes, I am doing my best to keep up with those stretches.
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