starting my journey with Dr Paley

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Quote from: mrworldwide on February 05, 2018, 06:15:03 PMThanks Man !
Yes wanted to do with somebody who's an expert. By the way before finalizing Dr Palay, I went to Italy and South Africa too, and then decided to stick to somebody who does this day in and day out and is a PRO in it like big time.
Hopefully , it should be a smooth sail. Keeping my fingers crossed.

Great choice. Paley is the best one. Everyone should follow in your steps and only go for the best, if it is possible for them in their lifetimes.

I wish you a smooth (as far LL goes) journey.

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Quote from: mrworldwide on February 05, 2018, 10:24:30 PMThank You Brother !
Wish you a great recovery too. How many cms are you aiming at ?
I am 65 Kgs, and i am getting the biggest nail available with Precise, which can weigtbear around 70 Kgs. Having said that Doctors said that I cannot weight bare on my legs alone and have to use walkers or crutches. Do you think with your experience it 'll be difficult to move around for first few weeks ? Are you walking better now in 3rd week ?
What attention to details you are hinting at ?
I spoke to a a care that provides nursing , man they are expensive . They are quoting 20-24 USD per hour . But no option , I might have to use their services for minimum 10-12 days .

Thank you!   I'll be posting some detail and an update in my diary soon.

I live about 20-30 minutes from Dr. Mahboubian's office and have my wife helping me at home so it it less complicated for me than for those coming in to their doctor from out of town.

But from current firsthand expensive I can say that the pain has been very tolerable,  it does fluctuate, but it's not excruciating,  I realize that different bodies handle it different. However it's the little things that get overlooked,  things you don't realize until you're in and recovering.

I thought I'd be out and about on a walker after 2-3 weeks and partially on a wheelchair.  I can tell you that this is not realistic for most.  I'm doing well,  have no regrets,  but can tell you that at 2 1/2 weeks post op, I couldn't be alone.  The mobility simply isn't there,  some things I could possibly do but would risk falling and making it worse.  It's simply too dangerous.

The first couple of weeks,  just transferring from bed to the wheelchair can be an odyssey. Then moving from the wheelchair to the toilet is tough.  It takes time to figure out most convenient height for the wheelchair, toilet seat, etc.   These things you'll figure out with trial and error.

Bottom line,  you'll need to have help a minimum of three weeks,  if you can,  plan for four weeks.

I was 74kg at time of surgery and also had the larger screw and tube placed for max weight bearing of 75 lbs per leg. This doesn't however mean one can walk or fully weight bear.

I am aiming for 7.6 CMs.

I have my first X-rays since surgery coming up on Friday.

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Mr.Worldwide. Have you looked into hiring a nanny?

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Quote from: 40oz on February 06, 2018, 04:59:50 PMMr.Worldwide. Have you looked into hiring a nanny?



Quote from: myloginacct on February 06, 2018, 12:08:33 AMGreat choice. Paley is the best one. Everyone should follow in your steps and only go for the best, if it is possible for them in their lifetimes.

I wish you a smooth (as far LL goes) journey.

Wise decision

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Hi wideworld
Hope your surgery and recovery go's well, am also looking at Dr paley for my internal femur lengthening, he's the best out there but there have been some complications concerning knee pain on some of his patients, just make sure to follow his instructions and also work on your flexibility that's one of the key to quickly recovery.. Anyways Goodluck and please keep us posted, don't disappear like other diaries..

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Quote from: Joemoney on February 09, 2018, 11:34:43 AMHi wideworld
Hope your surgery and recovery go's well, am also looking at Dr paley for my internal femur lengthening, he's the best out there but there have been some complications concerning knee pain on some of his patients, just make sure to follow his instructions and also work on your flexibility that's one of the key to quickly recovery.. Anyways Goodluck and please keep us posted, don't disappear like other diaries..

Hi guys !
Wanted to update you all but the entire experience has been so overwhelming thus far , today I feel more in senses and wanted to reply emails and write .
Thanks for all your wishes . I will definitely keep this Diary on as I really feel it helps fellow LL ers or aspiring LLers .

I am still in hospital (ST Mary’s)
My surgery happened on Tuesday , the 6th . Doctor told me everything went well and surgery was done quickly without complications and I was thanking god for that .
Post surgery , that entire day was pretty much painless and I was also raising my legs a little bit , nurses were surprisingly happy . I realised it was probably the spinal morphine that was still working.
Day 2 was most excruciating pain so far . My legs were sore , and I was in pain for most of the day. But did manage to get off the bed and used walker for the first time with physiotherapist. She is amazing and very nice .
Day 3 , yesterday was mixed. But definitely better than day 2 .

St Mary’s facility I would rate 5 on 5 , great nurses , good care , clean and hygienic , and definitely a place that doesn’t feel too lonely or annoying .

I can post some pictures for you all .
I am typing from mobile and this site doesn’t seem too mobile friendly for typing .
In the evening probably , I’ll give more detailed updates with pictures .
Guys please give me suggestions along the way to get done with this as smooth as possible.

 I have managed to hire 24x7 care for first 2-3 weeks to assist me as I am all by myself and will see how it goes from there , and if I should extend their services or manage on my own .

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Excellent news, glad that surgery went well. Best of luck on the journey ahead.

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Quote from: mrworldwide on February 09, 2018, 10:53:36 PMGuys please give me suggestions along the way to get done with this as smooth as possible.

Have you read the forum pretty extensively before doing the surgery? Not that it's too late to ask for suggestions now, but for others reading this - DO YOUR RESEARCH well before the surgery!

• read all the patient diaries for your doctor
• make notes of important bits you learn
• set things up for yourself well in advance because you won't be functioning at full capacity during the recovery

That said, I've spent weeks reading all Paley patient diaries (I'll be doing quadrilateral CLL with his team too - tibias and femurs at the same time) and I've amassed a large number of tips for the best pain management and recovery. I plan to post that in a concise form here for you guys, so others don't have to spent all that time. I also believe my effort might be worth some compensation from others outside of the forum - quadrilateral is the most expensive of surgeries, $180k, and any bit helps, so I'm considering going public about my CLL, fundraiser-style.

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How is your recovery coming along mrworldwide?  Can you provide us an update ?

Thanks !    Wishing you well.

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Hoping you're past the apathy phase... how's it going?