suggestions to reduce misinformation and bias

Member

Posts: 309

Joined: Apr 2018

Posted on May 14, 2018, 4:42 am

#1

here are my humble suggestions:

1. some diaries get to have a "[WITH PROOF]" tag in the title which is added only if the patient provides reasonable evidence in the form of pictures of x-rays, legs, hospitals, etc. to their level of comfort. people who don't want to provide any photographic evidence are still welcome to post diaries but readers will be able to read the diary with caution.
2. more moderators. for the successful implementation of point 1 it is important to have more moderator because most old moderators are not active any more.

what do y'all think?

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A

Android

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Posts: 350

Joined: Oct 2017

Posted on May 14, 2018, 8:21 am

#2

I'm in agreement, I posted a similar topic a while back:
http://www.limblengtheningforum.com/index.php?topic=4906.0

I'll leave the logistics up to Admin and crew, but something resembling verification would add some credibility to the threads. It's not that I personally don't trust them, but it's tiring when a thread derails into a conspiracy. I imagine it's frustrating for the authors as well.

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fokid

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Posted on May 15, 2018, 3:12 pm

#3

how do we get the moderators to respond to this?

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Penguinn

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Posted on May 27, 2018, 9:57 pm

#4

I encourage this too. However, only the admin can edit posts after a certain period, not the mods- so the admin would need to edit every title and reaching them is difficult sometimes. I will try.

Also I'm unsure what constitutes as proof because in my diary, I posted tons of X-rays and some people (granted it was only 2 or 3 and they didn't seem to have all their marbles intact) called it fake.

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fokid

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Posted on May 28, 2018, 4:30 am

#5

Quote from: Penguinn on May 27, 2018, 09:57:08 PM
Also I'm unsure what constitutes as proof because in my diary, I posted tons of X-rays and some people (granted it was only 2 or 3 and they didn't seem to have all their marbles intact) called it fake.

those were a vocal minority.

x-rays are the bare minimum though...

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Penguinn

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Posted on May 29, 2018, 9:21 am

#6

I agree, x-rays should be mandatory. They don't even pose a privacy problem but if the patient's worried about the doctor finding out in case of a bad result, they can show them to just the mods and we can testify to their legitimacy.

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myloginacc

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Posts: 494

Joined: May 2018

Posted on Jun 10, 2018, 2:52 pm

#7

Should we get this thread back on track?

Quote from: fokid on May 14, 2018, 04:42:10 AM1. some diaries get to have a "[WITH PROOF]" tag in the title which is added only if the patient provides reasonable evidence in the form of pictures of x-rays, legs, hospitals, etc. to their level of comfort. people who don't want to provide any photographic evidence are still welcome to post diaries but readers will be able to read the diary with caution.

We could have even "levels" or degrees of verification. Not too many, or it'd get confusing and cumbersome soon. Maybe two:

Level 1. The minimum. Consistent x-ray pics throughout the diary. These can be easily reverse image searched so as to ensure they were never posted somewhere else before. This should happen in all cases before diaries get a verification. They should be uploaded by non-accounts of imgur and similar image hosting websites. This way the pictures can't be deleted later and won't be possibly re-utilized for fake diaries in the future. This is a burden that anyone who wants to have a verified diary would have to accept. Maybe we should have a level 0 (better than nothing) verification for diaries with x-rays pics, but that have the possibility to be deleted at any point in time.
Level 2: for those who went above and beyond. These diaries would have included videos showing the person's full body (aspects such as the face being blurred out not being a problem), leg pictures, handwritten usernames (ideally compared against their doctor's own handwriting if such information is known, or any document that the patient has signed, even if parts of it have to be censored out for anonymity), in addition to the x-rays throughout the diary.
(If it ever happens) Level 3. For those who went public with their CLL, making their real identity public to the forums, in addition to providing all the aforementioned evidence in the other levels.

Edit Post

Should we get this thread back on track?

Quote from: fokid on May 14, 2018, 04:42:10 AM1. some diaries get to have a "[WITH PROOF]" tag in the title which is added only if the patient provides reasonable evidence in the form of pictures of x-rays, legs, hospitals, etc. to their level of comfort. people who don't want to provide any photographic evidence are still welcome to post diaries but readers will be able to read the diary with caution.

We could have even "levels" or degrees of verification. Not too many, or it'd get confusing and cumbersome soon. Maybe two:

Level 1. The minimum. Consistent x-ray pics throughout the diary. These can be easily reverse image searched so as to ensure they were never posted somewhere else before. This should happen in all cases before diaries get a verification. They should be uploaded by non-accounts of imgur and similar image hosting websites. This way the pictures can't be deleted later and won't be possibly re-utilized for fake diaries in the future. This is a burden that anyone who wants to have a verified diary would have to accept. Maybe we should have a level 0 (better than nothing) verification for diaries with x-rays pics, but that have the possibility to be deleted at any point in time.
Level 2: for those who went above and beyond. These diaries would have included videos showing the person's full body (aspects such as the face being blurred out not being a problem), leg pictures, handwritten usernames (ideally compared against their doctor's own handwriting if such information is known, or any document that the patient has signed, even if parts of it have to be censored out for anonymity), in addition to the x-rays throughout the diary.
(If it ever happens) Level 3. For those who went public with their CLL, making their real identity public to the forums, in addition to providing all the aforementioned evidence in the other levels.

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fokid

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Posted on Jun 10, 2018, 3:26 pm

#8

maybe we should just let things be. we don't want 2-3 mods endorsing diaries using their own fallible judgement.

it is not hard for doctors come here and post fake diaries with pictures they have taken of their patients.

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myloginacc

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Posted on Jun 10, 2018, 4:12 pm

#9

Quote from: fokid on June 10, 2018, 03:26:26 PMmaybe we should just let things be. we don't want 2-3 mods endorsing diaries using their own fallible judgement.

it is not hard for doctors come here and post fake diaries with pictures they have taken of their patients.

Well, other users can call the mods' judgement if the community finds it flawed.

@2nd point: It is not hard, but it'd be good. The biggest money hungry surgeons would be opening themselves to all kinds of legal problems.

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T

totallyred

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Posted on Jun 10, 2018, 5:06 pm

#10

Quote from: Penguinn on May 29, 2018, 09:21:31 AMI agree, x-rays should be mandatory. They don't even pose a privacy problem but if the patient's worried about the doctor finding out in case of a bad result, they can show them to just the mods and we can testify to their legitimacy.

Sorry to interrupt, but for a novice like me, first of all one need to verify or prove that this forum itself is an indepedent forum and not driven by any doctor/promoter/advertiser/collaborater/vested interest. How is it funded. What is the proof that there are indeed multiple members and not a single person taking multiple roles. Then only could anything said by mods or members should be an unbiased opinion.
May be too much to ask for but would help in calming down any skeptics in future.

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