Here's a new update—life is steadily improving, and I'm rediscovering the joys that I couldn't experience over the past few months. I now exclusively use crutches for walking; I've completely ditched the wheelchair, which feels like a significant accomplishment. Even indoors, I'm progressing with walking unaided, and the pain in my ankle has completely disappeared.
Yesterday marked my greatest triumph yet—I attended a festival for the first time in six months. I've always loved to party, so the past several months without being able to enjoy the nightlife were particularly challenging.
Being at the festival was incredibly liberating. I relished the freedom of moving around without feeling encumbered. It was a testament to how far I've come in my recovery journey. Of course, I paced myself and took breaks when needed, but overall, the experience was exhilarating and reassuring.
Looking ahead, I'm optimistic about my continued progress. Walking without crutches indoors is becoming more natural, and I'm gradually increasing my stamina and confidence. It's a relief to be free of the constant ankle pain that plagued me earlier in my recovery.
In addition to physical gains, there have been significant emotional milestones. Overcoming the fear and frustration that initially accompanied my injury and subsequent treatment has been empowering. While there were moments of doubt and difficulty, I now recognize the resilience and determination that have carried me through.
Looking back, I realize how far I've come from those early days of uncertainty and discomfort. My mindset has shifted from apprehension to anticipation—I'm eager to reclaim normalcy and resume activities that once seemed out of reach. As I continue to progress, I'm setting new goals for myself. By the end of next month, I aim to walk confidently without crutches in more public settings. Achieving this will be a testament to my perseverance and the unwavering support of my medical team, friends, and family.
I'll be sure to keep you updated on my journey. Until then, embrace every step forward and celebrate the victories, big and small.
It’s been a while since my last update. I've hesitated to share because my experience with a growth disorder might not be comparable to others'. However, I've decided to document this journey for myself to reflect on this time. I’m writing this from the edge of a swimming pool while on holiday where it’s a sunny 30 degrees.
This vacation is something I've eagerly anticipated. While I had to swim weekly for therapy, I can now fully enjoy swimming without thinking about it. Two weeks ago, I said goodbye to my physiotherapist, equipped with exercises to continue at home.
Recently, a new X-ray showed significant bone growth. The doctor expects my bones to be fully healed by my next appointment in July. I still use crutches in challenging situations like the beach or crowded places, but otherwise, I can walk without them. I'm also improving at climbing stairs while holding the handrail.
The progress has been remarkable. I've moved from using a wheelchair to walking with crutches and now mostly without them.
I’ll keep you all updated on my progress. Thank you for your support.
Until next time!
It’s now 4 months after my last update. The time went by so fast the last year. I wanted to update my experience because it’s October and that means its almost one year after the initial surgery. A lot has happened very good things but also so pretty bad stuff. But too say that I’ve grown is a understatement. Mentally and physically ofcourse. I’m still just manly using this diary to look back at my own journey, so that’s why I wanted to post again.
The last four months have been a bit of a rollercoaster. My walking and pain got worse we’re I could walk without crutches I was needing them fully again. I couldn’t understand why it was getting worse. After a consult with my doctor a lot became clear and I got a ankle brace to help stabilize. I had this on for about a month. After that I was willing to try again without the brace. It went well I had a new pt who helped a lot.
In august/ September everything started to look good, I now work fulltime and have no problem with the amount of walking I have to do. Sometimes I still feel pain and am sore. But with some tricks I got from my pt it all goes away relatively fast.
Last week I went to my doctor for a checkup. Everything looks great! And the best news I can get surgery in December to take everything out on the right side. Why only the right side? Because that side is bothering me the most, left is not strong enough to take the rod out so I was willing to do the right only. I’m nervous about a new operation but also very excited. There are a couple of things I have missed that I hope will come back once he takes everything out. Laying on my right side, I feel the screw in my femur and after a while it starts to hurt. So I normally lay on my left side or my stomach. Another thing is getting up from the ground. I have not found a good way to get up from the ground without sitting on your knees. I now cannot sit on my knees so I hope with one knee free of everything I can get up with just my right knee.
Getting my full flexibility back from my ankle. That’s the biggest one of all, that’s also why I want to get the right side out.
This was a little bit about the last four months.
So did you gain full flexibility in the end?
Happy you did this surgery?
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