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Posted on Feb 15, 2019, 4:08 pm
#1121

Quote from: Unicorn888 on February 15, 2019, 04:00:54 PMSo you’re essentially saying, a random CLL patient of Guichet’s like yourself, got access to MY medical files (by knowing EXACTLY how many people were in the operating theatre + that he did not break my nail) - which is a clear VIOLATION of doctor patient confidentiality. 

So obviously, the very professional Guichet and the ‘multimillionaire’ structure, Columbus Hospital, has committed a serious privacy infraction.  Thank you for this. 

Because if in fact, my nail was NOT broken during the Milan surgery as Guichet had so efficiently invoiced me for a new nail at £12k - then was that invoice actually financial fraud?  Now you’re helping me a lot.

Ps. And yes, each femur bone needs to be broken once (1) so that lengthening can happen.  My left femur was broken into 3 pieces.  Perhaps, that was your CLL experience, so I can sympathize with you.


1)  I told you exactly the opposite. Your ability to understand the opposite of what people say is incredible. I know about this case BEFORE meeting Guichet again. It means that he didn't tell me anything UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016 Try harder next time.

2) Invoice, financial fraud? You are totally crazy, sorry for the nasty word.

3) 3 pieces? Post proves UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016 or didn't happen.

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Posted on Feb 15, 2019, 5:27 pm
#1122

simons just leave the thread and hopefully the forum.
Just because you did LL and wrote a diary on the old forum doesnt mean you can misbehave like this.

We dont care about what you write, nobody is interested in you trying to setup perjury trap. Every post you make here, the more damage you are doing to Guichet.
Go back to Guichet and tell him to google 'Streisand effect'.

@Unicorn888, just ignore him. The more of his childish taunts you reply to, the more food you give fto Guichet and his shills/lawyers to twist your words and attack you. The rest of the community members will defend you. We know what Guichet did.

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Posted on Feb 15, 2019, 6:05 pm
#1123

Quote from: BladeRunner on February 15, 2019, 05:27:44 PMsimons just leave the thread and hopefully the forum.
Just because you did LL and wrote a diary on the old forum doesnt mean you can misbehave like this.

We dont care about what you write, nobody is interested in you trying to setup perjury trap. Every post you make here, the more damage you are doing to Guichet.
Go back to Guichet and tell him to google 'Streisand effect'.

@Unicorn888, just ignore him. The more of his childish taunts you reply to, the more food you give fto Guichet and his shills/lawyers to twist your words and attack you. The rest of the community members will defend you. We know what Guichet did.


You know what? I'm done with you guys in this thread. I will keep updating my diary with positive vibes.

That said I wish Unicorn888 the best. I hope she will find her interior peace of mind.

Just in case you want to see more videos and pictures about my legs and my athletic abilities you are all more than welcome to my diary.

Cheers.

FYI: "I know her before meeting Guichet" means that I read her story in his diary.

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Posted on Feb 15, 2019, 11:09 pm
#1124

Hi guys,

I was just replying to a lot of personal messages and wanted to share one in particular because I think it resonates with a lot of people who discover this forum when googling 'leg lengthening'.  So maybe, here're some positive food for thought to end such an insidious week.

****************************

Thank you for the long and beautifully thought out message you've taken the time to write me.  Yes, I know exactly how you feel because where I grew up and where I live today, there's always discrimination and I think that has screwed up my head so much that it drove me to break my legs, be taller and appear to assimilate.

After 3 surgeries, I actually got worse and worse and lost all my savings and any career/love prospects.  I also lost a lot of friends and fought with my family because everyone judged me.  It's almost like they believe I deserve to be punished for being so vain and so stupid.  Hence, they let me hang and abandoned me.

It's like reading stories of people who do surgery to change their eye colour in India/Tunisia, and then going blind.  In the big scheme of things... most people have more sympathy towards someone who went blind due to cancer than someone who went blind because they were vain.  End result is BOTH are still victims.

I was so lucky to have met a former Guichet patient who was also in hiding because his bones didn't heal either, after several years.  He ran out of money and had no choice but beg the NHS (UK free hospitals) to take him in.  They helped him and then, with the NHS doctor's kindness, they helped me too - for free.

The thing is, we really tried everything possible to heal ourselves and grow bones but the mechanics of our body is... lengthening is easier than shortening BECAUSE once we lengthen, the skin and meat fill in but sometimes, not the bones.  And we cannot shorten because the nail we have from Guichet cannot stop/reverse.  So it means NHS doctors have to hammer out the g-nail, insert another (shorter) nail/external cage and restart the LL process to match both leg lengths.  Hence, the least invasive way was to bone graft and even then, I'm left with different leg lengths which became the least of my problems.  Did you know that most of us are born with minute leg length disparities?  Our hips literally adjust for any minor differences.

After so many years experiencing first hand and being a knowledge pool from speaking to/meeting so many patients and pre-LLers across the globe, my conclusion is this.  There are 4 steps to the lengthening process (which could happen simultaneously or in non-linear stages):

1.  Lengthening (2+ months)
2.  Bone fusing (can be too fast, normal, slow or never)
3.  Soft tissue stretching (can take an even longer time to recover posture)
4.  Deconditioning (loss of stamina / muscle mass / lingering pain / side effects) and recovering normal walking gait

So depending on our race, genes, gender, age, smoking/dietary habits, flexibility, tibia/femur segment, CLL method - number 1 is the simplest and most linear.  After lengthening, bone fusion and soft tissue stretching are actually not in our full control.  Each body will heal differently.  And depending on our personal willpower and discipline, no 4 can be achieved reasonably well with time and effort.

Most CLL doctors have gotten away with no responsibility because most patients travel to the country of the doctor, stay long enough to merely complete the lengthening process and then return home.  Then they run into complications, do not heal well and/or were not fully informed of the realisitic recovery process/timing/inherent risks/lingering pain/side effects.  In hindsight, patients come to realize they had just completed Phase 1 of 4 with their CLL doctors and the remainder of the recovery process is literally left at, "Goodbye and good luck!".  By then, most patients are too defeated, exhausted, out of funds, in pain, in shame etc to even find the energy/courage to make their original lengthening doctors accountable.

The fact is cosmetic leg lengthening is still a very nascent technology and it is lacking proper regulations in many countries (I'm referring to the entire process from proper screening of suitable candidates, all the way to after care - not simply FDA approval or superficial CE markings on nails).  I sincerely hope this changes so that it becomes SAFER for everyone.  Some countries are actually starting to regulate/ban certain CLL procedures because the risks are too high and victims have no recourse due to foreign jurisdictions, costs and shame.  There is always stigma attached to the desperation of wanting to be taller, the willingness to break one's legs and to risk losing everything in life, if things go horribly awry.

Most doctors who are willing to do lengthening for cosmetic reasons are usually the ones with compromised ethics and ruthless avarice.  They prey on our desperation and low self esteem.  The doctors who do orthopaedic repair for accidents and birth defects have been doing leg lengthening since the 70s and they do it with some variation of the Ilizarov external cage.  Patients with leg length disparities are repaired successfully most of the time because non-cosmetic orthopaedists take their time, have to be fully accountable and are very careful/conservative in their approach.

So that said, coming back to you... until your surgery, you can wear shoes with lifts in them to give you 5-6cm more height, which can instantly boost your self esteem to some degree, workout so that you've a great body and there is a myriad ways to enhance your facial features as well.   Most importantly, work on shining from the inside too because inner beauty trumps any superficial exterior.  But who am I to dispense any advice worth heeding?  I'm the first to capitulate and suffer from low self esteem when it comes to body image.

Do let me know how you do, I rarely come here anymore because the forum is so toxic and it depresses me to no end.  You can find me on Instagram and message me there with any questions, ok?  https://www.instagram.com/unicorn_gets_taller/

Giant hugs to you and remember... there are many things we can do in our lives to improve ourselves, inside and outside.  Leg lengthening is just a very small part of the equation because like most non-CLL doctors say... body dysmorphia starts with healing our heads first in lieu of taking extreme measures to alter our bodies.  Because the way we perceive ourselves will never change. 

I HATE looking at myself because as a child, my mother used to call me ugly.  So unfortunately, that is how I see myself today everytime I look in the mirror.  I've been programmed since early childhood to believe that I'm worthless, stupid, ugly and no man will want to marry me.  So, I have to fix my head first and probably, needed to spend all my money fixing my head instead of lengthening my legs. 

Maybe if I did that, I would be living my dream now, finding love, getting married and having a family instead of the precarious situation in which I find myself today - much worse off than I started in 2016 - poor, crippled, unemployed, not loved, estranged from family and friends, depressed, no stamina and attacked online.

Does this make any sense? 

Hugs,
Unicorn

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Posted on Feb 16, 2019, 3:03 am
#1125

Why don't you go to Dr.Robert Rozbruch? He seems to be one of the more morally compelled doctors(correct me if im wrong) and treats deformity and short limbs as his specialty. He is also a professor at Cornell University.

I was going to recommend Dr.Paley but he seems to be rather cold and some people even claim he lacks morals and he is very expensive.

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Posted on Feb 16, 2019, 3:05 am
#1126

Perhaps asking him wouldn't be hard to find out what's the problem. It may even help your doctors in fixing your current problem.

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Posted on Feb 16, 2019, 11:01 am
#1127

Quote from: epikness on February 16, 2019, 03:03:44 AMWhy don't you go to Dr.Robert Rozbruch? He seems to be one of the more morally compelled doctors(correct me if im wrong) and treats deformity and short limbs as his specialty. He is also a professor at Cornell University.

I was going to recommend Dr.Paley but he seems to be rather cold and some people even claim he lacks morals and he is very expensive.


Dear Epikness,

Yes, I actually agree with you.  Rozbruch seems to be one of the more ethical CLL doctors out there.  Don't get me wrong, not every doctor is a quack.  There're just a lot of opportunists in this surgical field due to the sheer desperation of pre-CLLers and the lack of proper regulation.

That said, I was the one who sent about 3 former classmates to Rozbruch for nail removal just because everyone was terrified that Guichet claimed his nail is proprietary and that only HE could remove the nail and nobody else.  It turned out, most of my classmates ended up going to Rozbruch and Betz for nail removals.  And yes, other orthopaedists could remove the g-nail successfully.

In regards to going to other doctors, believe me I would be the first to seek help but I actually cannot afford anything right now.  My bank account went down to only £300 last summer and I couldn't even pay my Council Taxes.  I have been living on credit cards and borrowed funds from close friends.  This is also why I've gone quiet because I'm just focusing my energy these days on constructive endeavours to get myself out of my abyss/dark place.  I know deep down somewhere, the old me is raring to emerge a champion.  Somewhere, some day.

I had 2 interactions with CLL doctors who offered to help me.  One promised me the world and would operate on me for free but I had to pay for new nails.  But he mentioned that one of his patients who had similar complications, has healed fully and walking beautifully (it turns out, I know this patient personally) and the ugly truth is, she has not healed and cannot walk.  Hence, I got traumatized again for the close brush to another charlatan.

Another doctor contacted me too and promised heaven and earth that he can graft a 10cm whopping gap.  I also dismissed him because it all sounded too good to be true.  This is why ex-CLLers will only truly understand my predicament, because this industry is mired with sinister hidden agendas and we don't see it until after our legs are broken and become vulnerable sitting ducks.

To end on a positive note, these 3 years have really given me a lot of perspective to how I lived my life before, what I deem are priorities and literally, all the toxic people have automatically dropped off.  In a way, I love the saying "I made a new friend today and I'm grateful, but I lost a ton of other friends, and I feel amazing"

I definitely feel blessed to be a part of the NHS system and under the vigilant care of the Royal National Orthopaedic Hospital (RNOH) because the panel of doctors there are using me as a case study of everything that could possibly go wrong in CLL. 

I actually think that their conservative approach of trying a bone graft first (instead of attempting to hammer out the old nail, shorten, insert a new device and restart lengthening) is wise because it is less invasive.  With just 1 surgery, they were able to:
-  Fuse half my femur bone
-  Remove all the chronic pain by finding and draining a fluid sac in my knee caused by tissue abrasion due to nail parts being hammered out through my knee when my nail was broken during the 3rd surgery in Milan
-  Allow me to have better gait/posture just from releasing my IT band

So, all I have to do now is keep being constructive and reclaim my old life back.  The only risk I run since half my femur is still non-union is if the g-nail breaks like it did for my other classmate after 2 years.  In her case, she had non-union as well and her g-nail broke in half and she was suicidal.  We all cannot believe one stupid decision has maimed us for so many years and has literally plagued all other aspects of our lives too.  Like our body mechanics, everything is interconnected - and so is the delicate balance of our sanity and life events.

This is why I began selling everything I own on eBay, just to make ends meet every month.  The very few good friends I have left, had been so supportive; they took me traveling with them, lent me money when I couldn't pay for utilities, even pooled funds together to buy me a Chanel bag before my 4th surgery so that I'm motivated to live long enough to use it (haha - that was too cute), took care of me at home (one came from Monaco to roast me a turkey for Thanksgiving and it was so raw we ended up ordering pizza) and they stuck around and did not abandon me.  They hunted me down when I went radio silent and banged at my door until my neighbours went barking mad.

So the good side of this unfortunate life event is - it has revealed who my true friends are, I'm learning more about myself everyday, I'm learning to forgive and love, and it has really narrowed down my priorities to several key elements.

So even though bittersweet, maybe this was a rights of passage like the Book of Job, and it is my 'Hero's Journey' to overcome.  I just cannot wait to put all this behind me, and close this chapter of my life.

Have a good weekend, hugs.

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Posted on Feb 16, 2019, 3:29 pm
#1128

the person who cannot walk is a patient of a German doctor? i heared something about that

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Posted on Feb 16, 2019, 3:37 pm
#1129

By the way, many people have asked me who these doctors are who scared me, and I’m really sorry.  I really cannot reveal which 2 doctors approached me to repair, but they were located in 3rd world countries where it felt really sinister that all they wanted was a free ride publicity of healing Unicorn.  So the NHS was still a better bet, according to my humble opinion.  Who knows?

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Posted on Feb 16, 2019, 4:18 pm
#1130

It's really strange 2 third world country doctors approached you on their own. Definitely sinister.

I thought the only people who knew about you are the people on this forum and your real life NHS doctors.

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