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Posted on Jan 20, 2017, 7:10 pm
#341

Quote from: TIBIKE200 on January 20, 2017, 06:10:15 PM bashing? You said you have non union and you might need a bone graft. How's stating my opinion about having what's considered a complication bashing? Should I tell you I am happy for you for suffering a non union that could potentially result in the loss of some of the height you gained? Should I clap for you for this? I am sorry that unlike the monegal patients (at least the new duo) I am not overly enthusiastic for having a complication.

 anyway, hope you will get better.

Wow!  "...could result in loss of height that you gained"
REALLY?   I'm not even undergoing a bone graft, how did you decide that for me?

Making fear mongering comments to people who are struggling to heal and make the best of their situation - is just a new LOW.

It is because of people like YOU that real folks who brave and survive this procedure SHY AWAY from sharing their experiences and help others on this forum.  Real shame.

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Posted on Jan 20, 2017, 7:58 pm
#342

Hi Unicorn, please ignore tibike's comments like I hope most other users do. he's just an angry dude and has no idea what he's talking about most of the time. internet is full of those types unfortunately...

Anyways, glad to hear that you're upbeat and doing ok! I had no idea that callus could even go backwards from not using your leg enough, but glad to hear that the bone is growing again. I hope everything goes smoothly for you with the next surgery. Best of luck! 

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Posted on Jan 20, 2017, 8:59 pm
#343

Getting attacked by monegal patients  and guichet patients... Typical.. You have a non union and you said that you will get injected with bone marrow which is a last step before a bone graft.. Again, wanna be happy about it? Fine.. I am not happy for it (for you... Btw, I didn't even blame guichet for the non union, nor did I say he cant fix it..).

. From your reaction, its clear you are an unstable person (just like most llers when you think about it).
. Happy to see llcaptain is back... Just like almost all monegal patients, he discredit all critisism...

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Posted on Jan 20, 2017, 10:49 pm
#344

Quote from: TIBIKE200 on January 20, 2017, 08:59:28 PMFrom your reaction, its clear you are an unstable person (just like most llers when you think about it).

I don't think you even realize who's the unstable one in this scenario. the lady is being upfront and sharing her complications with the forum while trying to keep optimistic. And now she has to defend herself from you attacking her literally in her own diary. regardless of your opinion on doctors, your social awareness is just so awful man.

I'll leave it at that. sorry unicorn if I'm feeding his trolling in your diary. I'm usually better about ignoring this kinda stuff  UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

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Posted on Jan 21, 2017, 8:21 am
#345

This is really, incredibly sad.

What's interesting is that Unicorn gave us so much data about her experience throughout her journey. She took the time to email and inform other members - myself included. I can tell you that the data points Unicorn provided me were crucial to my decision making in regards to my upcoming procedure. And now she's being attacked, for what, exactly?

TBIKE, you owe her an apology, and in general, quite a few of the folks here. I'm pretty certain you're not in a position to determine whether someone is unstable for desiring CLL. I'm certain medical opinion has done that for you in classifying this condition as height dysphoria, not mental instability. Honestly. I thought you were better than that.

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Posted on Jan 21, 2017, 8:29 am
#346

Also, to hopefully get this thread back to a positive note:

Thank you Unicorn for your contributions to the forum, as well as for taking the time to answer our questions - especially during the excruciating process of your lengthening. Enjoy your new height and I wish you nothing but the best, get well soon!!

-jbc

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Posted on Jan 21, 2017, 11:40 am
#347

Thanks JBC! 

In truth, you'll see... once you get to your height, nobody can take that achievement away UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

Hence, all the criticisms in the world won't shake my new 5'6" frame!  This is about realising a lifelong dream and hell be damned if I got so easily discouraged.

It's important that we continue to share our experiences, learn from and support each other on this forum.

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Posted on Jan 21, 2017, 2:44 pm
#348

Hello, Unicorn. I'm  very happy to see you posting again. I was starting to worry a little. You share a lot of useful info with us, you could easily  not caring and dedicating your time to healing only. You're kind enough to share your experience and give hope and advices to the many others people who share your own great dream. Please, ignore any negative comments. We all know that this operation has risks, being positive and resilients is the only way we can survive it. Self-pitying doesn't solve anything. Because of my non perfect grasp of english, I'm having some difficulties understading the bone lack discussion. Have you had a bone reduction due to your fracture? How it happened? It seem strange the reduction would be so much, to needing a graft.

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Posted on Jan 21, 2017, 6:06 pm
#349

wow unicorn! nice to see you back... can you tell us what happened all this time??

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Posted on Jan 21, 2017, 7:03 pm
#350

Quote from: Annalisa on January 21, 2017, 02:44:11 PMHello, Unicorn. I'm  very happy to see you posting again. I was starting to worry a little. You share a lot of useful info with us, you could easily  not caring and dedicating your time to healing only. You're kind enough to share your experience and give hope and advices to the many others people who share your own great dream. Please, ignore any negative comments. We all know that this operation has risks, being positive and resilients is the only way we can survive it. Self-pitying doesn't solve anything. Because of my non perfect grasp of english, I'm having some difficulties understading the bone lack discussion. Have you had a bone reduction due to your fracture? How it happened? It seem strange the reduction would be so much, to needing a graft.

Hi Annalisa,

Good to hear from you!  How are you deciding on your lengthening?

Firstly, I am not doing a bone graft.  Guichet is suggesting a marrow injection to stimulate faster growth.
My bone consolidation is slow on my lengthened right leg (he says can take up to 6 months).  And I think me being 41 and female have something to do with it.

Sometime before December on my last X-ray, it looked like the bone got resorbed (I didn't know that can happen - but it did - it means whatever little calluses you developed got absorbed back by your body) but my left leg that had the fracture in August and didn't get lengthened, is fully healed.

So it is strange that one leg heals perfectly and the other doesn't.  And the one healing perfectly is the fractured one, whereas the perfect one is not healing.  Ahhhhhhh!   The conundrum but we shall cross one bridge at a time UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

Guichet's theory is that it could be my bad walking/exercising habit...  because one leg is short and one leg is long, I put all my weight on the short one and do not bear weight/use my long leg.  Hence, my short left leg formed bones and healed very quickly.

This theory is further proven by the fact that while I was on holiday, I consciously walked much more using my right leg, and my new X-rays show new calluses/bones being formed.

So the conclusion is yes, bearing weight and adding stress to your legs (within safe limits) do promote bone growth and healing UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016   That's why I was so surprised that my vanished bones grew back UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

And there are other factors which can be determined by blood tests (as another patient kindly shared with me) where one could suffer from poor circulation and blood flow issues, which can affect the healing process.

Does this make more sense?   Let me know if you guys have questions.

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