Hi Unicorn. I'm so sad to hear that. I hoped you had stayed longer in Milan after surgery so you could better recover. I'm amazed by your strength, going to a plane so soon, days after being in a major surgery. But you risked too much, because immobility plus orthopedic surgery are risks factor from pulmonary thromboembolism. I could have find you a very cheap philippino helper who charges less than 10 euro an hour 
but you never told me. In the state you were it's to be expected that you could not realize your wounds infection but hopefully your antibiotics will take care of that without further complications.
Another thing, I don't understand why you need to do clicks so fast. If you are at risk of non union and have delayed consolidation wouldn't it be better if you could click as slowly as possible? I don't understand the concept of clicking so fast someone who has delayed bone healing. Does Dr Guichet thinks you will pre consolidate??
I would suggest if you had some problems clicking and can't achieve your original goal. Contact a ORTHOPEDIC doctor, not a the greedy COSMETIC limb lengthening doctors. You now need correction, not cosmetics.
Finally, please don't be stubborn and proud, you need to rely on social services. You are NOT a cosmetic patient now, you are an orthopedic patient who is trying to get herself back to feet. Don't feel like you don't deserve it, you do. This help and a lot lot lot more. You deserve everything of life.
UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
Unicorn I am so sorry to hear of your continued struggles. I really don't know what to say. I can honestly see where Dr. G would have a jerk streak within him. I had a good result with him (I'm only just now 2.5 years later feeling almost entirely normal, finally have my knee pain under control through physical therapy) for the most part...but maybe I was lucky? Honestly I still think complications as bad yours (and Musicmaker's, and others) aren't the norm. I am in no way trying to minimize what you're going through! I do think Dr. G should be more understanding since he definitely had a hand in this, and he should try to help you out more with the cost.
I think the main draw with Dr. G (at least, when I was in the research stages) was the weight bearing rod. And at the time, he seemed to have a better rep than Dr. Betz (I still believe this is the case). If Precice comes out with a weight bearing rod, then Dr. G might not be the best option. He doesn't have a bedside manner, often takes long to respond to emails, and is disorganized (this was my experience too). And him working in two different countries is a pain to deal with too, especially when you need him to be there.
Hang in there Unicorn. Someday you will be on the other side of this and it will make you soooo much more appreciative of all the things you have in your life. You'll see.
Hi, I have tried to to send you an email but not sure you got it. If you would like a chat/visit/help i could come over to you on Sunday. Let me know
This is so incredibly painful to read.
(not Dr. bashing, a bit of context)
I considered Dr. Guichet myself, initially. The appeal was the weight-bearing nail. Talking to several doctors (Dr. Paley and Dr. Birkholtz were incredibly helpful with this), who explained the dangers of clicking through the break, and detecting some red flags myself with the way he runs his practice, I opted out and crossed Dr. Guichet off my list. I'm super glad I did.
Unicorn, reading through your diary, some severe medical mis-steps were made - this is pretty obvious. I don't know what you signed, and I'm not a lawyer, but you're first and foremost a human being, and have rights to premium healthcare, especially for what you've paid for it. Please consider consulting a barrister in the UK to see what your rights are.
Don't feel ashamed to ask for help. The government sets this up for people in need. Life happens. For everyone, at some point. You've paid into the system for others, it is more than fair for you to take advantage of it for yourself.
Last, this:
"He said I should be thankful to him that he didn't wake me up in the middle of general anaesthesia to make me pay him first. Apparently, he said in the US they will do that."
This is patently, unequivocally, and 100% false. No Dr. in the US would dare wake up a patient from general anesthesia to make them pay. They would lose their license and might face criminal charges for medical malpractice. For elective surgery, you simply won't go in if you haven't paid and/or you haven't made an arrangement with the Dr. to pay. For non-elective surgery, you would get all the treatment you would need - every bit, and then get a bunch of bills, which either insurance and/or you would cover. But no one would ask you for money up front.
I have been to the hospital a few times for personal issues (nothing major, thank goodness), have had family members go, and know of people who have received care that have no insurance and no means of payment. They received the care they needed for non-elective care, no questions asked. That's actually the law here in the US. Whatever happened to payment afterward happened, but they never lacked for care when they needed it.
So feel free to tell Dr. Guichet he's full of sh*t if he tells you that again. I'm praying for you, and hope you get well soon.
Best,
-jbc
Wow guichet is a real scumbag. People that go with him better hope they don't have fractures because he will treat them in the same harsh manner that he has treated unicorn. I never heard of a doctor saying that he could wake you up in surgery to make you pay up, sounds like a loan shark than a doctor. He showed lack of humaniity not to see her suffering and only focus in getting his money.
Yes there is no way that happens in the US. Doctors are very afraid of lawsuits there. What would happen is that the doctor would do what needs to be done and then the millionaire bill would arrive. That's why people with no insurance can lose everything after a stay in hospital.
@jbc could you explain to us the dangers of clicking through the break?
Yes living in the u.s I know that they wont.leave you to die on the street but will stick the medical bills after they help you. And if it's not a life or death situation then you would have to pay up first.
Dr Guichet is then second Dr Monegal as Unicorn is second Musicmaker, but you should know Dr Monegal DID woke Musicmaker up in the middle of surgery to tell her fitbone failed during surgery and if she wanted to be exfixed and also she wasn't hospitalited because nobody paid the bills. Patients from 2015 were there and told me the poor girl was sent home crying in pain after major surgery. I don't want to hijack this thread but think about this. Both doctors seem to be greedy men who don't care about patients wellbeing. Main difference is Musicmaker is weaker and brainwashed by her doctor. I congratulate strong Unicorn and send all my regard to Unicorn and also to Musicmaker because she needs strength.
Quote from: notimportant on May 09, 2017, 01:10:48 PMDr Guichet is then second Dr Monegal as Unicorn is second Musicmaker, but you should know Dr Monegal DID woke Musicmaker up in the middle of surgery to tell her fitbone failed during surgery and if she wanted to be exfixed and also she wasn't hospitalited because nobody paid the bills. Patients from 2015 were there and told me the poor girl was sent home crying in pain after major surgery. I don't want to hijack this thread but think about this. Both doctors seem to be greedy men who don't care about patients wellbeing. Main difference is Musicmaker is weaker and brainwashed by her doctor. I congratulate strong Unicorn and send all my regard to Unicorn and also to Musicmaker because she needs strength.
While I agree with the points you make this is not the thread to talk about mongeal. Please restrain yourself for once.
Such serious accusations vs Dr Guichet. I hope he can air his side.
And for Unicorn, I feel for you. Hopefully it ends up great. Don't lose hope, it's useless to regret things — those are beyond your control. What's within your control are the present and the future. You are brave for even undergoing CLL. This is what the forum is for, to push you, cheer you up, and say that you are not alone in this. We'll be there listening and will follow your progress.
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