Quote from: tallernacho on January 22, 2018, 01:30:29 AMI'm not an expert, but she says she has spoken to many doctors. It might not be as "easy" as that.
However, that is what I would try to do if I was in her situation, despite having to undergo another lengthy process. That might imply using external frames (painful) or using a device such as the precice/fitbone nail. The later might also imply shortening her other leg, as those nails extend only up to 8cm, and I don't remember any (maybe incorrectly) internal nail except the guichet/albizzia nail that can extend up to 10cm.
In any case, I'd like to wish Unicorn the best and I hope that she can recover rather sooner than later.
Hi TallerNacho,
You're absolutely right! I need to undergo another invasive procedure. One successful one if I'm lucky. NHS wants to bone graft me instead of exchanging nails as they find that less risky.
To remove nail and then insert a new one is not simple. And yes, Precice lengthens to 8cm which actually matches my left leg which was lengthened to only 8cm to be conservative.
However, because in my situation, my 13mm nail is too big for my femur bones, so removing it is a very risky surgery. Like during my 3rd surgery, when Guichet performed the osteotomy on my left leg, he broke the nail in the process and had to replace with a new one which he is now forcing me to pay.
So yes, there are several solutions and I really wish the ONE further surgery I take will be the LAST ONE. I'm exhausted with watching life go by and being the handicapped one.
Our non-union group is exhausted with our individual situations and our non healing. We've collectively tried so many things and we remain disappointed, helpless and desperate.
UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
Quote from: Unicorn888 on January 24, 2018, 12:22:42 PMThank you Cobalt. This is going to be my 4th surgery and 18 months from my 1st surgery. So, bear in mind people that this procedure can haunt you for a very long time causing you to lose everything in your life. The chain of events are like a domino effect. One bad thing leads to another and before you know it, you don't know how to get out from the abyss.
There's one guy in this forum who is suicidal because he thinks he is too short at 5´8. I told him to consider that complications can make him even more suicidal and begged him to read your diary. He basically told me he wasn't interested. Those people shouldn't be allowed to get LL. RETARDED. DELUSIONAL. STUPID. Yours is one of the greatest CAUTIONARY TALES about LL I've ever read. Please stay strong.
Quote from: Unicorn888 on January 24, 2018, 12:28:21 PMOur non-union group is exhausted with our individual situations and our non healing. We've collectively tried so many things and we remain disappointed, helpless and desperate.
This is so heart-breaking...I can't believe there is a NON-UNION GROUP out there??? How many people are in this unfortunate group? I think this definitely shows how risky this surgery is...People!!!
Quote from: observer on January 24, 2018, 04:05:37 PMThis is so heart-breaking...I can't believe there is a NON-UNION GROUP out there??? How many people are in this unfortunate group? I think this definitely shows how risky this surgery is...People!!!
Not 100% sure about that group but there are many patients from ALL doctors suffering from non union. It's a very common complication, especially among women and Asian people.
Quote from: backrandom on January 24, 2018, 05:54:17 PMNot 100% sure about that group but there are many patients from ALL doctors suffering from non union. It's a very common complication, especially among women and Asian people.
nonunion is mostly seen in complex or open fractures where immobilzation and fixation of the fracture does not happen in a timely manner. For example, car accidents.
a precise surgical cut with good technique of the femur bone along with immediate fixation should not generally cause a nonunion. Dr. Guichet has very questionable ways of performing osteotomies. I do not like his surgical approach to internal fixation either.
Furthermore unicorn lengthened 10 cm...
bad surgeon technique + bad advice to pt + lengthening too much too fast
led to this particular nonunion case.
The 10 cm lengthening only happened because Guichet's nail is irreversible and constantly clicked on accident. How can this happen with one of the most respected surgeons in the entire field of bone distraction, in a first world country? Like, seriously?
Quote from: MirinHeight on January 26, 2018, 05:45:56 AMnonunion is mostly seen in complex or open fractures where immobilzation and fixation of the fracture does not happen in a timely manner. For example, car accidents.
a precise surgical cut with good technique of the femur bone along with immediate fixation should not generally cause a nonunion. Dr. Guichet has very questionable ways of performing osteotomies. I do not like his surgical approach to internal fixation either.
Furthermore unicorn lengthened 10 cm...
bad surgeon technique + bad advice to pt + lengthening too much too fast
led to this particular nonunion case.
Unicorn is not the only one . There are cases of non union in many European doctors in that group
Quote from: IwannaBeTaller on January 26, 2018, 11:11:39 AMThe 10 cm lengthening only happened because Guichet's nail is irreversible and constantly clicked on accident. How can this happen with one of the most respected surgeons in the entire field of bone distraction, in a first world country? Like, seriously?
the fact that this nail is irreversible makes it even more risky.
Dr. Guichet is not a good surgeon because he has a bad technique when it comes to performing osteotomies. Irresponsible surgeon
Quote from: backrandom on January 26, 2018, 12:21:53 PM Unicorn is not the only one . There are cases of non union in many European doctors in that group
I would not trust any doctor outside of US, (besides maybe Dr. Parihar) to perform internal lengthening.
look at the long term complication rate in diaries of Dr. Paley, Rozbruch, Mahboubian, (+ maybe Parihar) when it comes to using the precise nail. It is 0%
Internal lengthening is much more invasive than external lengthening, therefore the physician must have good surgical technique and experience to deal with complications. They must also give good advice to patients so they do not harm themselves.
I do not trust any other doctors when it comes to internal lengthening. Especially Dr. Guichet, Dr. Monegal, any Indian surgeon besides Parihar. They are butchers. It's just a matter of luck whether you can walk normally again when it comes to these surgeons
Quote from: MirinHeight on January 26, 2018, 12:27:29 PMI would not trust any doctor outside of US, (besides maybe Dr. Parihar) to perform internal lengthening.
look at the long term complication rate in diaries of Dr. Paley, Rozbruch, Mahboubian, (+ maybe Parihar) when it comes to using the precise nail. It is 0%
Internal lengthening is much more invasive than external lengthening, therefore the physician must have good surgical technique and experience to deal with complications. They must also give good advice to patients so they do not harm themselves.
I do not trust any other doctors when it comes to internal lengthening. Especially Dr. Guichet, Dr. Monegal, any Indian surgeon besides Parihar. They are butchers. It's just a matter of luck whether you can walk normally again when it comes to these surgeons
Guys, it's all happening again...............
Another patient didn't heed my advice when I said go for Precice, there'll be less trauma with clicking.
Anyway, surgery went ahead and now he's in agony to continue clicking because it is extremely traumatizing to be twisting your broken leg in all directions trying to find a click in the beginning.
To add to this, the current xrays show zero calluses, so I'm begging him to stop because it will only be non-union for now. There's always time to lengthen later on since there's no risk of fast consolidation.
Anyway, I'm just saying... anyone can have a safe lengthening if they know what to look out for. Barring no doctor error or contaminated nails, complications, negligence etc.
Go slow and make sure your calluses bridge, and do not pass 6-7cm, otherwise, your recovery period (and I don't even mean bone consolidation), I'm talking about being able to get your soft tissues to lengthen enough to cure your duckass, your IT bands to enable you to walk without legs apart, your quads/hamstrings long enough that you can actually lie down on your stomach or your back without a severe arch... these are things DOCTORS don't show you. They like to show you how bones heal fast and how someone can "walk" out of surgery or "jump" after finishing lengthening.
Go talk to successful lengthening patients and all of them will tell you that the recovery journey to get your normal walking gait back + recover your previous athletic ability take years, not mere weeks or months as you're promised.
By the way guys, read the fine prints. A lot of docs will only follow you for 60 days after your osteotomy. Should you run into trouble like non-union, fracture (even if it's not your fault...), beyond the 60 days, you're liable to pay pay and pay.
So, get a grip on reality before putting your life at so much risk.
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