I create this topic in hope of learning from a variety of experiences from all LL patients. What was your worst experience of pain? For now, my biggest fear would be about the catheter 
I looked for it on the internet, and that really freaks me out 
Haha, I'm an assistant nurse. I remember the first time I had to assist putting a catheter in. Nearly fainted. I've never felt that way about anything else before. I've seen disoriented people rip them out and it's messed up.
..... But, you'll be under an anaesthetic, so you'll wake up with it already in. The worst part is putting it in. Once it's in, it's fine.
Just don't get it caught on anything or else it'll be like pulling a marble through a straw... Joking haha.
Quote from: Daylight on December 01, 2015, 07:46:50 PMI create this topic in hope of learning from a variety of experiences from all LL patients. What was your worst experience of pain? For now, my biggest fear would be about the catheter I looked for it on the internet, and that crap really freaks me out
As someone who had a catheter taken out, then put back in and then taken back out again while not on pain meds, I can tell that that was one of the sharpest pains. It feels like stabbing your pee hole with an ice pick. BUT, the worst pain is actually when they release you from the hospital and you're off the powerful hospital pain meds. That's when you feel like someone is ripping your open wound apart. It's not as painful as the catheter, but at least the catheter pain only lasts a few minutes. The other pain lasts for hours and feels like torture.
Quote from: DoingItForMe on December 02, 2015, 01:46:02 AMAs someone who had a catheter taken out, then put back in and then taken back out again while not on pain meds, I can tell that that was one of the sharpest pains. It feels like stabbing your pee hole with an ice pick. BUT, the worst pain is actually when they release you from the hospital and you're off the powerful hospital pain meds. That's when you feel like someone is ripping your open wound apart. It's not as painful as the catheter, but at least the catheter pain only lasts a few minutes. The other pain lasts for hours and feels like torture.
regarding post discharge pain, what pain was the worst? open wound = surgery incisions? or catheter related wounds? or pain due to broken bones?
because you wouldn't have started distraction yet, I don't see why it should pain so much. how long did it last?
I had bilateral femur surgery yesterday. The pain on my right leg is a 2, my left leg 0.
The most discomfort I'm experiencing right now is not even my legs, but the IV needle on my back, especially when I move around.
I'm a little scared about the pain I'll experience after I leave the hospital..
@DoingItForMe: How many days were you hooked up to the drip? I'm expected to stay 5-7 days here. Hopefully the worst pains subside by then.
Quote from: DoingItForMe on December 02, 2015, 01:46:02 AMAs someone who had a catheter taken out, then put back in and then taken back out again while not on pain meds, I can tell that that was one of the sharpest pains. It feels like stabbing your pee hole with an ice pick. BUT, the worst pain is actually when they release you from the hospital and you're off the powerful hospital pain meds. That's when you feel like someone is ripping your open wound apart. It's not as painful as the catheter, but at least the catheter pain only lasts a few minutes. The other pain lasts for hours and feels like torture.
Well reading that made me feel queezy.. You definitely earned your 8cm haha
Quote from: treemonger on December 02, 2015, 01:15:42 PMI had bilateral femur surgery yesterday. The pain on my right leg is a 2, my left leg 0.
The most discomfort I'm experiencing right now is not even my legs, but the IV needle on my back, especially when I move around.
I'm a little scared about the pain I'll experience after I leave the hospital..
@DoingItForMe: How many days were you hooked up to the drip? I'm expected to stay 5-7 days here. Hopefully the worst pains subside by then.
Oh so you just started? May I ask just who exactly you're doctor is and if you're gonna start your own diary?
Good luck!
I haven't done the limb lengthening procedure yet but had a urethral catheter and was awake. The insertion was very painful, I will not lie. And then pulling it out really burned but it was at least quick. It depends on the doctor. If they do it while you're under GA, the insertion, it's ok. Don't let it be done while awake but that depends on the surgeon.
Quote from: Alu on December 02, 2015, 02:55:56 PMOh so you just started? May I ask just who exactly you're doctor is and if you're gonna start your own diary?
Good luck!
I don't plan to start a diary because the process for bilateral Fitbone/Precice are identical and is well documented on both forums. The Monegal train is really strong right now and don't see it stopping anytime soon. If you were a member of the old forum back in the early '00s there was a huge wave of people going to China. The same thing is happening with Monegal in Spain.
While theres a lot of useful information on this forum, the members themselves breed a lot of negativity in addition to not knowing what the hell they're talking about. Like I don't need someone who's not a doctor or a troll to enter my diary and tell me my proportions are going to be fked up at 6cm or something.
I've read your posts on this forum and you seem like a level headed guy. Hope you will be able to do it soon. I can only say good things about Monegal at this point.
Quote from: treemonger on December 02, 2015, 04:38:59 PMI don't plan to start a diary because the process for bilateral Fitbone/Precice are identical and is well documented on both forums. The Monegal train is really strong right now and don't see it stopping anytime soon. If you were a member of the old forum back in the early '00s there was a huge wave of people going to China. The same thing is happening with Monegal in Spain.
While theres a lot of useful information on this forum, the members themselves breed a lot of negativity in addition to not knowing what the hell they're talking about. Like I don't need someone who's not a doctor or a troll to enter my diary and tell me my proportions are going to be fked up at 6cm or something.
I've read your posts on this forum and you seem like a level headed guy. Hope you will be able to do it soon. I can only say good things about Monegal at this point.
Yeah I get you 100% mate. All things considering I really want to get this out of the way as soon as possible and move on with my life and this forum (even though not everyone here is that bad); so right now I'm just looking into my options. So far I'm looking into getting admission into the Monegal train because of my plan (4+4 CM in each); I would have done it with Paley but the price of QL (170K) just isn't worth it in my opinion.
Anyways, I wish you luck in your journey and if you could keep posted on your experience I'd very much appreciated it! 
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