I want to address something that hasn't officially been addressed specifically, but after a lot of conversations with different fellow CLLers, a lot of us experienced what I've come to name "1 year post-op hell" which is pretty much self explanatory ... around the 1 year post op mark +-1 or 2 months I experienced excruciating pain in my knees, one week my right knee and femur would be on fire and pains up to 9/10, the next week my left would shoot up in pain. this lasted about a month or so, the pains still come sometimes if I exercise but nothing to complain about.
this is for Stryde nail femur patients not sure if other nails have this or if tibia procedures have this phenomenon.
Anybody else experienced this? if so care to share for other newer CLLers?
there's still people who did it before the recall
overandover: If you have pains like that already then expect them to be worse after LL if you do it, I never experienced those types of pains until after CLL
ahd1978: Yes early consolidations come with its pains, the body is healing and adjusting still, give it some time you should be soaring pain free around month 6-7 up until month 11-12 when you might encounter this 1 year post op hell, that left me almost crying and I'm very pain tolerant.
more: yup I researched and found those same answers, it varies with everyone.
want-3-inches: It's rare that someone gets their rods removed before the 1 year post op mark, I've only seen that once, SNC. Most people might experience this 1 year post op phase of crippling pain. to answer your question, Covid is the reason I haven't removed my nails yet.
I'm way past the 1 year post op pains, Dr. Mahboubian said that my body is still adjusting 1 year post op that pains are still normal.
Yeah I wouldn't ever hear of this 1 year post op pains. but when I mentioned it in my diary at least 4 other Stryde patients mentioned they had pain 11 months post-op, 1 year post op ETC around the 1 year mark and it lasted a couple weeks, pretty bad pains too.
Quote from: 5foot5justCheckingAround on June 20, 2021, 03:12:59 PMIn hindsight, so many people coming forward with lingering knee/pain problems post-CLL is really concerning. This goes against the claim that there are no complications from this surgery claimed by Paley and the other doctors. Has anybody tried stem cell therapy or any similar treatments to get rid of the pain? Would really like to know.
That's what comes with breaking a bone, I know a lot of people who had fractures and had them repaired normally and will still feel some pains sometimes, my girlfriend for example fractured her elbow and in rare occasions it'll hurt.
dreamigtall: It lasted a couple weeks for some, for me it lasted the better part of a month. some people went that route yes.
Quote from: 5foot5justCheckingAround on June 20, 2021, 03:12:59 PMIn hindsight, so many people coming forward with lingering knee/pain problems post-CLL is really concerning. This goes against the claim that there are no complications from this surgery claimed by Paley and the other doctors. Has anybody tried stem cell therapy or any similar treatments to get rid of the pain? Would really like to know.
That's what comes with breaking a bone, I know a lot of people who had fractures and had them repaired normally and will still feel some pains sometimes, my girlfriend for example fractured her elbow and in rare occasions it'll hurt.
dreamigtall: It lasted a couple weeks for some, for me it lasted the better part of a month. some people went that route yes.
dreamingtall: I never had significant height neurosis but yes I feel much more confortable and confident at 5'9 than I did at 5'6
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