Can I ask: Do we have to stay in Russia for more than 3 months?
The limb extension phase starts from the day after the surgery, and proceeds until 3 months?? Or does it go further past the 3 month mark?
At how many months are the frames removed for the calves??
Sorry I'm a bit confused.
I would be going to Volograd in December!! I can't wait. 
Quote from: old forum please on March 18, 2014, 10:43:45 AMCan I ask: Do we have to stay in Russia for more than 3 months?
The limb extension phase starts from the day after the surgery, and proceeds until 3 months?? Or does it go further past the 3 month mark?
At how many months are the frames removed for the calves??
Sorry I'm a bit confused.
I would be going to Volograd in December!! I can't wait.
Distraction starts aprox after 1 week post op.
It all depends on many many factors))))
But if you lengthen 7cms it usually takes about 3 or 4 months.
Consolidation takes about another 3, 4, 5, 6, months or even a year for some people so it will all depend on how much you walk how well you eat, and your own body ability to absorb nutrients. December uh!?? Nice)) send me PM ill give u my skype so we can chat if u want. I have a lot of time now, so take aadvantage of me while im here and free))))
Rgkey,
You said that you turned 4xday (7am, 11am, 3pm, 7pm). Does it really matter when to turn or does it have to be every certain time. For instance, the day has 24h, then can I turn every 6 hours (7am, 1pm, 7pm, 1am)? Another question, I read that a lot of time the X-rays don't reflect the exact amount that you lengthened and some times it is less. So, if for instance, I wanted 6cm, would I have to lengthen 6.2 or 6.3cm? Thank you.
Quote from: Leonardo2013 on March 18, 2014, 02:35:01 PMRgkey,
You said that you turned 4xday (7am, 11am, 3pm, 7pm). Does it really matter when to turn or does it have to be every certain time. For instance, the day has 24h, then can I turn every 6 hours (7am, 1pm, 7pm, 1am)? Another question, I read that a lot of time the X-rays don't reflect the exact amount that you lengthened and some times it is less. So, if for instance, I wanted 6cm, would I have to lengthen 6.2 or 6.3cm? Thank you.
It doesn't really matter about time as lon as you don't turn less than 4 hours each. The whole point is to feel pain the least possible by doing it gradually and give a full night rest to your muscles. The xrays there is usally 2mm difference to the actual length can be more or less. But 2mms is nothing thou)) no one will notice 2mms lol
Quote from: RGKEY on March 18, 2014, 11:06:04 AMDistraction starts aprox after 1 week post op.
It all depends on many many factors))))
But if you lengthen 7cms it usually takes about 3 or 4 months.
Consolidation takes about another 3, 4, 5, 6, months or even a year for some people so it will all depend on how much you walk how well you eat, and your own body ability to absorb nutrients. December uh!?? Nice)) send me PM ill give u my skype so we can chat if u want. I have a lot of time now, so take aadvantage of me while im here and free))))
Thanks RGKEY!
I'm in the midst of exams! Can I discuss with you further in Skype next month?
Just wondering how long we have those pesky frames? For me (7cm) would that be about 4 months? After that, can I remove the frame?
But bone consolidation, I can do that at home ( in my home country?)
Thanks much!!!
Also, is it painful? The spinal block. Irene says patients are sedated, so did you feel anything during surgery?
Quote from: old forum please on March 20, 2014, 12:01:15 PMThanks RGKEY!
I'm in the midst of exams! Can I discuss with you further in Skype next month?
Just wondering how long we have those pesky frames? For me (7cm) would that be about 4 months? After that, can I remove the frame?
But bone consolidation, I can do that at home ( in my home country?)
Thanks much!!!
Also, is it painful? The spinal block. Irene says patients are sedated, so did you feel anything during surgery?
yes sure, but i can not promise to answer to you fast, maybe i get my frames off next month so I will probably be away from internet for a awhile, will see thou. but for this coming weeks im all available! just send me a PM and i give u my Skype
4 months for lengthening maybe 3, and consolidation all depends on how u walk.
you will probably stay in frames about 7 to 10 months, maybe less maybe more...
the surgery?? painful? no man, not at all. yes they do and you don't feel anything from your hips down, dead.
bone consolidation, you could, but all will depend on how you feel.
Quote from: RGKEY on March 20, 2014, 03:36:56 PM
yes sure, but i can not promise to answer to you fast, maybe i get my frames off next month so I will probably be away from internet for a awhile, will see thou. but for this coming weeks im all available! just send me a PM and i give u my Skype
4 months for lengthening maybe 3, and consolidation all depends on how u walk.
you will probably stay in frames about 7 to 10 months, maybe less maybe more...
the surgery?? painful? no man, not at all. yes they do and you don't feel anything from your hips down, dead.
bone consolidation, you could, but all will depend on how you feel.
Man, the idea of not being able to feel anything from the waist down scares me..more than the pain of lengthening itself. i know it's silly, but that's what scares me the most about CLL. Were you alone during the surgery? No family, or friends? Also, 4 months you're saying is for 7cm. Do you think 3 months to lengthen plus another 3 for consolidation is possible? I know it all depends on many factors, but a rough estimate for a healthy, young (under 35) individual.
Quote from: shawty on March 20, 2014, 03:55:11 PMMan, the idea of not being able to feel anything from the waist down scares me..more than the pain of lengthening itself. i know it's silly, but that's what scares me the most about CLL. Were you alone during the surgery? No family, or friends? Also, 4 months you're saying is for 7cm. Do you think 3 months to lengthen plus another 3 for consolidation is possible? I know it all depends on many factors, but a rough estimate for a healthy, young (under 35) individual.
yeah i got you, nothing to be scare about that thou, but it is better than putting you to sleep, as some people dont wake up from it haha, not many but there is a tiny risk. So i think not sleeping is maybe better, you can ask them to put you to sleep thou.
No i didnt have family, but i made many friends! since the day i arrived, im very friendly thou.
one guy did 7cms in 5 months (record)
i think if you walk 8 hours a day from day 2 to the end and eat a lot i think you have a good chance to finish very fast. but it is very difficult, since consolidation face ive walking about 6 hours a day and my bone consolidation is been much better than when i walk 3 hours a day. So yeah it is possible but i wouldnt count on it.
Quote from: RGKEY on March 20, 2014, 04:25:36 PMyeah i got you, nothing to be scare about that thou, but it is better than putting you to sleep, as some people dont wake up from it haha, not many but there is a tiny risk. So i think not sleeping is maybe better, you can ask them to put you to sleep thou.
No i didnt have family, but i made many friends! since the day i arrived, im very friendly thou.
one guy did 7cms in 5 months (record)
i think if you walk 8 hours a day from day 2 to the end and eat a lot i think you have a good chance to finish very fast. but it is very difficult, since consolidation face ive walking about 6 hours a day and my bone consolidation is been much better than when i walk 3 hours a day. So yeah it is possible but i wouldnt count on it.
I dont really understand what you mean by walking for 6+ hours a day? Do you walk outside with the crutches for long distances that take you several hours to reach?
it seems so excessive, Im slightly over 1 cm into lengthening phase and i have been walking with my "walker" through my hallway and back (which is about 40 metres including the way back) about 5 times a day. That doesnt even add up to 1 hour in total, i think it takes me about 5 minutes to go through the hallway and back. I dont put full weight on my legs either, so i get tired in my arms before my legs tire, trying to slightly increase the weight i put on the legs though.
But i dont think i could walk for that long (6+ hours) every day. I dont think my legs in their current condition could handle it, and also mentally i dont think i could spend so much time doing one thing 
Hey RG,
What made you choose this doctor? There isn't really much of a backstory. Why him? What research did you do? Did you do a consulation? How did you prepare mentally? ETC. Give us the juicy details brother.
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