Bi-Lateral Stryde With Paley Consult Summer '19

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Nice diary. Good luck ahead!

Quote from: OGfivesevener on July 19, 2019, 03:43:21 PMI’m in my 30s. The work questions and all I don’t feel are important to help. Everyone will have their own situation.

Actually most people have similar situations. 

1. Students (you probably are not, at 30+) mostly take a gap year or semester and do it
2. Employed people either quit their jobs and do it and find another one after its over OR go back to work on crutches OR figure out a way of getting extended leave.
3. Business owners can do anything they like

I think if you are 2 it would immensely help others to know some tips. Like does Paley institute write letters that allow an extended leave through FMLA?

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Well, all is good now. My ERC device (that controls distraction) had an error as we were going through things - an ERC3. The newest one available until the ERC4 comes out.

So they tried giving me an ERC1 instead. I would have taken it but the ERC1 can not be used by the patient alone. Not a story worth telling after all. They gave me someone else's assigned ERC3. Most people aren't doing this alone. There was more to it and we hugged it out so all good.

It's so busy summertime they don't have enough ERC3 devices to go around.

As for the work stuff, I'm a day trader so no boss. Sorry I can't help there.

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You're sharing your ERS machine with another patient? Is that possible? Is it not unique to each patient like it's configured to lengthen 8cm max or something? Is it a makeshift arrangement or you will continue sharing like this?

And what do you mean by "Most people aren't doing this alone. There was more to it and we hugged it out so all good."? You mean they are with family? How is that related to sharing ERS machine?

Sorry for lots of questions 

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The ERC machines are reprogrammed after each patient returns theirs after distraction is finished. Most patients have family with them, as most are younger. If you have family, they will assist you in distraction if somehow you end up with an ERC1.

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This process is a trying one guys. Ups and downs. you get excited then suddenly realize how exhausted you are. Hire that caregiver for those 2 weeks just in case! Esp if you are younger than 30.

Sorry to be ageist but it won't be easy to fight through the tough times alone.

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Wise words brother! haha hope you keep doing well OG, I'll be catching up with you soon 

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Wide variance in PT experience. One I'm going to avoid haha.

10 days post op and I got to walk around the PT office with a cane. Felt great. Can't push it all too fast or might have to deal with injuries.

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Quote from: OGfivesevener on July 26, 2019, 01:25:33 AMThis process is a trying one guys. Ups and downs. you get excited then suddenly realize how exhausted you are. Hire that caregiver for those 2 weeks just in case! Esp if you are younger than 30.

Sorry to be ageist but it won't be easy to fight through the tough times alone.

Props to you for making it with no caretaker - that's also what I ended up doing. Clearly the most difficult issue was going from the bed to the bathroom, and also food. I found that hotel staff (in Vegas that is) was very sympathetic and would have no problem escorting uber eats deliveries into my room. They literally brought food up to my bed. Staying at a full service hotel with room service would be even more convenient, but I don't know if any of Paley's recommended hotels have that option.

I can definitely see where having a caretaker would've helped the first couple of days, but to be honest I felt pretty confident in taking care of myself after day 2. I also tried using Care.com. What scared me off was that if you hire someone you'll have to fill out a lot of tax paperwork. It just didn't seem worth it to me.

Moral of the story is that having a caretaker is definitely more "optional" if you're doing Stryde as long as you're aware of the risks.

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Agreed man. I have my food deliveries to my door. But have to handle it from there.  Was exhausting first few days setting up my room to make my life easier. Definitely something you want to do before the surgery. So that means setting up room, taking the hit on lodging while you’re in the hospital. Unless family helps.

I would say if you don’t have family for sure hire a caregiver for one week. And one from your doctor’s recommended list. Then go from there.

It’s give and take. You can be lazy and let your body take its time. Or be all in and test yourself and perhaps get to crutches, cane faster. But, you’re not taller than those who take it easy.

Big thing is your personality here. If you typically like being self reliant and don’t like to ask others for help in general. You can make it work with Stryde.

Otherwise it’ll cost you some more money but your end goal of being taller is the same. That is, if your PT is on point.

At this point I’m frustrated I can’t find a good position for stay on the laptop for any decent amount of time. I’m writing this on my phone as we speak. 

I’ve done the in bed with laptop tray. Sitting at desk. Will test out the standing desk next.

I dunno. Perhaps expect to not get anything done for 2-3 weeks. Unless you can stay in a steady state of euphoria with pain meds. I only got a week’s worth of Oxycodone at discharge. Then I only asked for 2 more days worth at refill because I heard they’re tough about it.

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Ring ring IFS and other Vets. Can I get tips on pain management after my one week of Oxy is up?
How long did you sleep with legs elevated for?
And I suppose my sleep broken up to multiple 1-2 hour sessions every night is just the way it goes. Roughly when did it get better for you guys? Can you describe how you’re sleeping on your side?

I’m tired.