Quote from: OGfivesevener on July 10, 2019, 12:01:05 AMWell, we are nearly there. I should be responding next week from the hospital. If not, something is up.
Just putting it out there haha.
We'll be keeping tabs on you next week waiting for a response haha. Hope to see you in WPB in a couple of months. Best of luck to you man.
Hey very random but, can any recent Paley patients let me know if the post surgery rooms have usb outlets? Forgot to pack the plug adapter and it’s just a hassle acquiring one without a car. Thanks!
edit: nvm
Currently in the hospital. No complications as far as I know. I’ll try to only share useful details.
Read about the issue with urinating post op. I had no issues. They bring you into the hospital beds 1-2 hours before surgery. Soon as you get into the door you should be asked if you need to pee. Go regardless if you feel the urge or not. It may help with the post op issues.
If you’re 100% sure you’re going through with surgery. Might be better to not read all the consent forms and all things running through your head right before surgery. Just sign the damn things.
Waking up after surgery was such a relief. You will be disoriented and kids might be crying left and right. Like a damn war zone. Nurse is asking you how you feel like it’s an urgency to move you along to your final room. I’m like give me a second to register how I’m feeling.
Your private room is nice. Door stays close and it never gets that noisy.
I didn’t have a catheter in when coming to. They emptied my bladder out and removed prior.
On surgery day I just rested. Didnt eat till late in the day. I had slight nausea and let them give me something for that first. Waited till I was fine then ate.
So they’re not walking you to the toilet to pee. You get the angled bottle container to pee into. Spread paper towels under your wee wee so you catch any leakage. You’ll get the hang of it and all is good.
Okay so everyone has been great but there are differences in how all the nurses go about things. This is important. Know the meds they give you and what time they were given. I’m on toradol and oxy. Toradol isn’t a narcotic. I feel both help very similarly for pain. Although I need two oxy to have an effect. Toradol is every 6 hours and oxy is every 4. Make note of the times you take them. It should be staggered. Not at the same time. Just take it on schedule instead of waiting for that pain to increase. The issue was one night nurse wouldn’t just come and check on me every few hours like the day nurses. Most nurses come and check and ask about pain so I just relied on that. Keep up with the time you last took a med and set an alarm to wake yourself up if no one’s come to offer meds.
You’re basically getting interrupted 24/7 from nurses checking vitals, then taking blood, then the main nurse for pain.
Pain meds take effect 30 minutes roughly after administration. Once you’ve learned about the PT stretches. That period after the 30 minutes is great time to do stretches. Feels great after doing stretches when pain meds have kicked in rather than keeping your legs in one place all day.
Your Journey has began OGFiveSevener. You're courageous and your mind is in full gear. Congratulations.
Best of luck to you and I'll be following your journal and chiming in from time-to-time. Feel free to reach out to me if you have any CLL questions or feedback you would like to bounce off of someone who has gone through the experience.
All the Best,
IFS
Quote from: InFullStryde on July 18, 2019, 02:46:34 PMYour Journey has began OGFiveSevener. You're courageous and your mind is in full gear. Congratulations.
Thanks IFS! Excited to get to where you’re at soon. Cheers my man.
WooHoooo!! cheers to you my brother! You've done it haha the beginning of the journey, Let's goo!
OG congrats on a successful start to the journey brother! Sounds like you are on top of pain management - thanks for the tips. Rooting for you and will be joining you very soon.
So no one told me until later in next the day after surgery by the PT. You can move your legs around. Left right rotating slightly left and right etc. for whatever reason I was under the impression legs are so fragile I shouldn’t move. If you have help they can do that. Or if your pain meds are dialed in. The compression pads on your legs can feel restrictive so you can take a break from those also. Just have them back on when you stop moving your legs around much.
Dial the pain meds in and do the stretches 3 times a day while in the hospital. The walker was quite easy day 2 post op. So they transitioned me to crutches at the end of therapy. That was all new to me and I was tired after making a full circle around the floor with walker. Some visualization and I think I can get that down.
In fact they’re discussing not ordering any more wheelchairs for stryde patients now based on all experiences.
Do you mind telling us your age (approximately) and your job situation? Are you employed, self-employed, and how will you manage the work break that comes with the surgery, both financially and logistically?
Cheers.
Still not in front of a laptop yet but getting discharged today. 3 days post op and I walked around my floor on crutches after pain meds kicked in. Taking walker home just in case as well. Just hope pain is well controlled by myself after discharge.
I’m in my 30s. The work questions and all I don’t feel are important to help. Everyone will have their own situation.
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