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Posted on Jul 15, 2016, 11:22 pm
#21

yes it is possible. I was on eternal fixators on tibia and did body building. I also worked and went to school. just on wheelchair/crutches. with external fixator, u can weight bear, so its okay.

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Posted on Jul 16, 2016, 1:08 am
#22

I haven't had anything done yet myself, unfortunately still in the saving up funds phase for quite some time.  However, ...and guys feel free to correct me if I'm wrong, but done in a very careful fashion, assuming you already have decent relative strength, certain calisthenics in the form of more compound movements and obviously scaled/modified back to your needs, ie Archer rows, chins and pulls, dips, Serge Norbert style..high volume, high reps, increased eccentrics, multi angular isometrics, partials, etc, and theraband and/or light dumbbells for shoulders, (obviously being careful and mindful of WB status), ... something like a Joe DeFranco "shoulder thrasher"...worked for Triple H of the WWE, stomach vacuums/posterior pelvic tilt whenever in your w/c...never a bad thing to improve lower back health and assist getting a more tapered waist.

To me, the unilateral stuff, bicep curls , triceps extensions , etc are all well and good , but I would go for the most bang for my buck with the compound stuff with options are limited

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Posted on Jul 16, 2016, 1:15 am
#23

I think you are right these things could abd can be done however i think that certain people will simply be too drained mentally and physically to even give it a thought. Various people get pain on different levels even if the injury is the same and of the same severity. Very similar to how some guys will weight train and get sore arms or traps but rarely gets sore in other areas and for the next guy its the opposite.

I also think that its best to let the body concentrate on healing the trauma done to the bones and tissue. If you did weight train whilst in this state i think you would become exhausted quickly and your calorie needs would also have to go up to heal exhausted muscles and an exhausted cns.

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Posted on Jul 16, 2016, 3:42 am
#24

Bigpoppapump,

Very good points.   Especially about the CNA, it's been a quite a while, but I was looking at being a strength and conditioning coach after undergrad, and during my internship at a Division 1 Big 10 school, (in the states), the were strict "HIIT Jedis"...the freak athletes were fine.  Normal people like myself, who had to train like this to know how to appropriately push the athletes...hard core CNS fatigue, diminished gains, decreased immunity, etc..which I can see the trauma from CLL more than likely being worse or the same.

Also the person  training upper body during lengthening, to me, would be similar to that freak athlete, possible, butore more than likely very lucky genes lol.

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Posted on Jul 16, 2016, 5:07 am
#25

Quote from: Bigpoppapump on July 16, 2016, 01:15:13 AMI think you are right these things could abd can be done however i think that certain people will simply be too drained mentally and physically to even give it a thought. Various people get pain on different levels even if the injury is the same and of the same severity. Very similar to how some guys will weight train and get sore arms or traps but rarely gets sore in other areas and for the next guy its the opposite.

I also think that its best to let the body concentrate on healing the trauma done to the bones and tissue. If you did weight train whilst in this state i think you would become exhausted quickly and your calorie needs would also have to go up to heal exhausted muscles and an exhausted cns.


There is only mental and physical drain in the first month. After that, I was full of energy! Body building during lengthening phase?
Even with frequent workouts, I gained a total of 15 kg (body fat), but have lost most of it now.
Essentially, your metabolism drops drastically. When you cannot walk or walk very little, your metabolism drops. Your muscles atrophy, your metabolism drops further. You take antibiotics, they destroy mitochondrial DNA and cause you to age faster and have a lower metabolic rate (thankfully reversible with exercise) - this led me to put on so much fats. My waist ballooned from 30 inches to 37+ inches, and thankfully its back to 30 inches.
I would advise you to hit the gym regularly to avoid this problem!

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Posted on Jul 16, 2016, 5:11 am
#26

Quote from: ggg112 on July 16, 2016, 01:08:46 AMI haven't had anything done yet myself, unfortunately still in the saving up funds phase for quite some time.  However, ...and guys feel free to correct me if I'm wrong, but done in a very careful fashion, assuming you already have decent relative strength, certain calisthenics in the form of more compound movements and obviously scaled/modified back to your needs, ie Archer rows, chins and pulls, dips, Serge Norbert style..high volume, high reps, increased eccentrics, multi angular isometrics, partials, etc, and theraband and/or light dumbbells for shoulders, (obviously being careful and mindful of WB status), ... something like a Joe DeFranco "shoulder thrasher"...worked for Triple H of the WWE, stomach vacuums/posterior pelvic tilt whenever in your w/c...never a bad thing to improve lower back health and assist getting a more tapered waist.

To me, the unilateral stuff, bicep curls , triceps extensions , etc are all well and good , but I would go for the most bang for my buck with the compound stuff with options are limited


I did machine exercises mostly, dips, push-ups, biking at high speed, all with external fixators on.

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Posted on Aug 9, 2016, 4:48 am
#27

I think it all depends on the person and their pain tolerance and how well or poorly their journey is going. I don't think of myself as a body builder but a lot of my PT therapists have asked me if I am one. I'm in the middle of bilateral femurs and have had no trouble lifting weights upper body. Only do it twice a week simply to maintain. Part of it is balance too. I have a home aid to assist me though. Without that id say it's impossible. But once you transfer to a flat bench you can have your aid set the weights down next to you and go from there. Though back was a huge pain using elastic bands over door jams and transferring to the floor, but I joined the YMCA and now use their machines for back day. Nice to join a gym with a lift and a real pool. Can't swim laps in tiny hotel pool, so full size pool is nice. Definitely recommend it because otherwise you get no cardio while doing LL. Or atleast not with precise here in the states. Guichet is different story from what I read. lots of cardio... I have been told walker good (some use and weighting on the legs) and blood flow (obvious reasons) should lead to good bone growth and healing. Also, you can safely work your calves and glutes in the pool which should allow for a faster recovery, but I'm not that point yet still lengthening. Hoping to have super fast recovery but minimizing muscle atrophy during lengthening.

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Posted on Aug 9, 2016, 9:59 am
#28

Quote from: patientdad on July 11, 2016, 01:13:32 AMYou're paying $100k for the procedure, why take any chances in messing it up?  Besides, even sitting, you press your feet against the floor.  I don't think any doctor would recommend it.  Wait out your time during lengthening and consolidation, then slowly work your way back.


I can see why it would be silly to risk it, but it can be done safely. Just maintenance work isn't too intense and you don't need to plant your feet on the ground.. You don't even need to use heavy weights.. I would go crazy not being able to workout for that long.

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