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Posted on Jun 1, 2019, 7:39 pm
#11

Quote from: cheekycabs on June 01, 2019, 06:16:48 PMPutting your work before your health is a horrible decision. No matter what you try and convince yourself, this is a horrible decision. I was still almost bedridden after a month, and you expect to be walking?



No offense but you did externals, stryde is full weight bearing and way easier to manage than bulky fixators

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Posted on Jun 1, 2019, 8:19 pm
#12

Hi, Thank you for many opinions.

I wrote 3 weeks in the title, but I changed my mind. I would like to return to work 4 weeks after surgery.

I found that many people think that returning to work 4 weeks after surgery is impossible.

However, why do they ignore SLM and superusercj1 walking with crutches about one month after surgery?

SLM was not recommending people to come back to work only after 4 weeks post surgery, but I think it is not completely impossible.

As 7231 and Bones say, I think returning to work 4 weeks after surgery is uncomfortable but not impossible.

In addition, there are several diaries of patients who recently underwent STRYDE surgery.  I want to watch their progress.

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Posted on Jun 1, 2019, 8:58 pm
#13

Quote from: Activatedx on June 01, 2019, 07:39:20 PM
No offense but you did externals, stryde is full weight bearing and way easier to manage than bulky fixators


Probably right. There's a reason I paid 20 times less. But I don't think the right approach is to keep your job as the priority, sat in a wheelchair "attempting" to work instead of resting, proper physio, and proper care/diet/rehab. Take the normal expected recovery time, and add 50%, and plan around that timeline. Especially if you're young. The fact you're risking permanent damage to your legs to work an extra month or two or whatever, is ridiculous any way you cut it. You're not in the NBA and don't make 100 grand to work and risk screwing yourself up.

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Posted on Jun 1, 2019, 9:02 pm
#14

Quote from: cheekycabs on June 01, 2019, 08:58:24 PMProbably right. There's a reason I paid 20 times less. But I don't think the right approach is to keep your job as the priority, sat in a wheelchair "attempting" to work instead of resting, proper physio, and proper care/diet/rehab. Take the normal expected recovery time, and add 50%, and plan around that timeline. Especially if you're young. The fact you're risking permanent damage to your legs to work an extra month or two or whatever, is ridiculous any way you cut it. You're not in the NBA and don't make 100 grand to work and risk screwing yourself up.



No I agree with you, even with stryde would not be safe

Would be better to just take off

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Posted on Jun 2, 2019, 5:19 am
#15

Hi maison
I understand you must be very eager for cll.  I probably can't say it is impossible to go back to work in 3 weeks but it is pretty much close to impossible.  You need to know this is a really serious stuff.  I know SLM got back to work soon but he also regretted it and does not recommend it to anyone.  I think SLM is just an exceptional case and DO NOT expect you are an exception.  Everybody is more or less similar.
 
1. Even with a full weight bearing like Stryde, you can't walk anywhere close to normal walking.  Walking is also getting worse and worse as you lengthen more and more.  In fact, 4-8 weeks are the best moment for CLL, since you recover from the surgery and haven't lengthened that much.  Trust me it will get worse and worse down the road.  (if your goal is 5 cm or so, it may be fine.)

2. You will have constant pain all the time just at different levels every moment.  I had quite serious pain (it is very subjective.) so I couldn't really do much activity or sleep well.  I slept only 2-4 h in total everyday and woke up 3-4 times or more.  Everyday, I was exhausted.

3. You also need to do lots of PT to be able to lengthen enough and recover better, which takes time and burns your energy.  At work, you can't do PT and you may be in trouble at late stage of lengthening.  Or your late stage may come so early like 3-4 cm.

4. You can't sit down in any chair for a long time.  This long time means not even 30 min.  Sitting is also quite uncomfortable so you can't sit in any comfy chair for a long time.  You are also supposed to stretch your legs in high position while sitting.

5. Working in general is pretty serious thing.  Obviously you can't perform anywhere close to 100%.  At best 50% perhaps not.  If your position is not high, your job will be at risk.  Your coworkers will be also unhappy to work with you.   

6. You will have a super high risk of getting your secret of CLL to be revealed.  Personally, this is the worst thing and I care about my privacy the most.  It is up to you to take this risk.  Or if you mind, that is ok.

I went back to work 5 months po.  It was still though.  You said you changed your mind from 3 weeks to 4 weeks.  This doesn't make any difference.  It is really up to you.  This is my last post for you anyway. 

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Posted on Jun 2, 2019, 8:11 am
#16

i think this that same guy who is on the forum since many years and has not done even 1 consultation with any doctor, just keeps asking questions jumping between every single option (externals, precice, us, india, europe, dr m, dr paley, blah blah blah) the only thing he knows about LL is from reading online.
he is really attached to his job for some reason.
he has no idea what is a good price for this operation. sometimes he thinks 100k for paley is crazy and sometimes he thinks doing it in cheap places is very risky and keeps flipping between.

i really wish he goes out and has consultations with docs. the gravity of LL will hit him and he will really think if its all worth it. if it is worth it, he will go ahead and do it.

i dont meant to be harsh man,but time is precious. u will never get ur youth back.

no one can do LL confidently. almost everyone will be pissng their pants in the waiting room but u have to stick through it. it can be worth it just get to over this dream of getting LL once and for all and focus on other things in life

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Posted on Jun 2, 2019, 9:03 am
#17

Hi Ghostfish.
I appreciate so much to your detailed reply.
Since my target is 5 cm in fact, I think that it is not a big problem that I cannot take long time for PT.
However, it is a fatal problem that I cannot sit down long time.
I will seriously consider to quit my job for CLL of Femur.
Thank you.

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Posted on Jun 2, 2019, 9:11 am
#18

Hi fudawopa.
I have consulted a doctor before.
However, STRYDE had not been released yet at that time.
I think STRYDE is a game changer.

Anyway, I'll think about quitting my job for surgery.

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Posted on Jun 2, 2019, 8:55 pm
#19

Quote from: Ghostfish on June 02, 2019, 05:19:15 AMHi maison
I understand you must be very eager for cll.  I probably can't say it is impossible to go back to work in 3 weeks but it is pretty much close to impossible.  You need to know this is a really serious stuff.  I know SLM got back to work soon but he also regretted it and does not recommend it to anyone.  I think SLM is just an exceptional case and DO NOT expect you are an exception.  Everybody is more or less similar.
 
1. Even with a full weight bearing like Stryde, you can't walk anywhere close to normal walking.  Walking is also getting worse and worse as you lengthen more and more.  In fact, 4-8 weeks are the best moment for CLL, since you recover from the surgery and haven't lengthened that much.  Trust me it will get worse and worse down the road.  (if your goal is 5 cm or so, it may be fine.)

2. You will have constant pain all the time just at different levels every moment.  I had quite serious pain (it is very subjective.) so I couldn't really do much activity or sleep well.  I slept only 2-4 h in total everyday and woke up 3-4 times or more.  Everyday, I was exhausted.

3. You also need to do lots of PT to be able to lengthen enough and recover better, which takes time and burns your energy.  At work, you can't do PT and you may be in trouble at late stage of lengthening.  Or your late stage may come so early like 3-4 cm.

4. You can't sit down in any chair for a long time.  This long time means not even 30 min.  Sitting is also quite uncomfortable so you can't sit in any comfy chair for a long time.  You are also supposed to stretch your legs in high position while sitting.

5. Working in general is pretty serious thing.  Obviously you can't perform anywhere close to 100%.  At best 50% perhaps not.  If your position is not high, your job will be at risk.  Your coworkers will be also unhappy to work with you.   

6. You will have a super high risk of getting your secret of CLL to be revealed.  Personally, this is the worst thing and I care about my privacy the most.  It is up to you to take this risk.  Or if you mind, that is ok.

I went back to work 5 months po.  It was still though.  You said you changed your mind from 3 weeks to 4 weeks.  This doesn't make any difference.  It is really up to you.  This is my last post for you anyway.


This is very helpful Ghostfish. Just curious, how did you manage this with your job/ career? Did you quit, request a leave of absence, or worked from home?

Thanks!

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Posted on Jun 3, 2019, 1:09 am
#20

Quote from: TheAlchemist on June 02, 2019, 08:55:00 PMThis is very helpful Ghostfish. Just curious, how did you manage this with your job/ career? Did you quit, request a leave of absence, or worked from home?

Thanks!

Hi Alchemist
I couldn't find a time for CLL for a long time because I couldn't give up my career that I have been working for in my whole life.  Just before CLL, I found a new job that is my life time goal I have been working on for many many years.  After I finally got this offer, I quitted my previous position and took some time (about 5-6 months) off before I started my new position. Everything worked out well.  So now I am enjoying my new job with new height. Can I get back to work in 3 weeks after STRYDE surgery ? 

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