hi,
hope that you are doing well, how is your pain right now as well as your walk, when walking or sleeping also how is your bone formation going, and how many days after the lengthening is done are you going to take your external fixator out.
thank you
Quote from: atti99xo on January 09, 2023, 06:58:59 PMhi,
hope that you are doing well, how is your pain right now as well as your walk, when walking or sleeping also how is your bone formation going, and how many days after the lengthening is done are you going to take your external fixator out.
thank you
Hi atti thanks for asking, I am doing great.
I am at 4.55 cm right now and have almost no pain at all. There are like 35 days left for the device to be removed. I take aspirin right after diner and no painkillers. I sleep even better than before surgery not consuming coffeine might be the reason 
however walking has become a little bit more difficult because of fixators. But once they are removed there will be no problem. Also sitting on a wheelchair has been always very discomfortable because of its design. But I have no issue sitting on a normal chair. Overall I can say that I wasn't expecting the process to go that painless. Not everyone as lucky as me though hopefully your experience will be similar to mine.
By the way I am so sorry but I answered one of your questions wrong. Apparently tibia patients here turn 0.1cm a day as well. I said they were turning 0.075cm previously.
I suggest you bring books or if you own an ipad or kindle that's even better. Reading or doing something boring before going to sleep helps me sleep well.
Thank you so much for your insightful posts and responses I'm so happy that its going well for you as for the bone formation how is yours looking in the X-rays also does pt hurt, how do the other patients manage pain? And how is the pain level of people who are around the same stage in. the lengthening.
Thank you
Quote from: QuarkSoup on January 09, 2023, 07:50:10 PMHi atti thanks for asking, I am doing great.
I am at 4.55 cm right now and have almost no pain at all. There are like 35 days left for the device to be removed. I take aspirin right after diner and no painkillers. I sleep even better than before surgery not consuming coffeine might be the reason however walking has become a little bit more difficult because of fixators. But once they are removed there will be no problem. Also sitting on a wheelchair has been always very discomfortable because of its design. But I have no issue sitting on a normal chair. Overall I can say that I wasn't expecting the process to go that painless. Not everyone as lucky as me though hopefully your experience will be similar to mine.
By the way I am so sorry but I answered one of your questions wrong. Apparently tibia patients here turn 0.1cm a day as well. I said they were turning 0.075cm previously.
I suggest you bring books or if you own an ipad or kindle that's even better. Reading or doing something boring before going to sleep helps me sleep well.
You're a legend. The pain for me at night is so strong it's impossible for me to sleep.
Thank you so much for your insightful posts and responses I'm so happy that its going well for you as for the bone formation how is yours looking in the X-rays also does pt hurt, how do the other patients manage pain? And how is the pain level of people who are around the same stage in. the lengthening? Also, how is your flexibility now.
Thank you
Quote from: atti99xo on January 09, 2023, 08:30:43 PMThank you so much for your insightful posts and responses I'm so happy that its going well for you as for the bone formation how is yours looking in the X-rays also does pt hurt, how do the other patients manage pain? And how is the pain level of people who are around the same stage in. the lengthening.
Thank you
Thank you so much for your kind words guys.
1- As for the bone formation how is yours looking in the X-rays?
Dr. Yunus says bone formation is going well. I started taking a new bone supplement yesterday. You can see the pics below. Funny after started taking it I woke up in the middle of night with somewhat intense pain yesterday after taking painkillers the pain went away. I think it was the healing response my body made.
2- Does Pt hurts?
Yeah it hurts but I'd prefer that pain anydays over chronic constant pain. PT is just so so important, thanks to therapists here Cagatay and Mehmet I have been able to keep my range of motion. I still havent lost any ROM yet. I have seen some patients not doing streches because it hurts. They are the ones who experience constant pain after certain cms due to muscle tightness.
3- How do the other patients manage pain?
Aylis, the nurse here, give them tons of different kind of pain killers. Contramal, an opioid based painkiller is the most strong one. One patient here ,despite all the warnings, went all the way to 10.5cm. Apparently he takes 6 contramal pills a day to manage pain which is insanely high amount. He doesn't even come to therapies I still haven't met him in 2 months 
4- How is the pain level of people who are around the same stage in the lengthening?
People who complain about pain here, don't complain about overall pain that much but They complain about the pain during sleep, not being able to sleep without interruptions upset them.
I think best way to combat pain is to follow high calorie protein rich diet, take supplements and strech as much as possible on your own. I always go to PT room and strech for like 30-60 mins before sleep it helps a lot.
Hello, it's good to hear that you still have your ROM OMG 6 painkillers a day, and he went to 10.6 cm that sounds terrible, once again thank you so much for answering my questions sorry if I ask a lot what about the meals are they good or they give you the same ones each day also do you have females who are lengthening.
Anyone using muscle relaxants? I have heard those help even sleep better.
Quote from: atti99xo on January 10, 2023, 08:41:47 PMHello, it's good to hear that you still have your ROM OMG 6 painkillers a day, and he went to 10.6 cm that sounds terrible, once again thank you so much for answering my questions sorry if I ask a lot what about the meals are they good or they give you the same ones each day also do you have females who are lengthening.
Ask as many question as you like atti
1- what about the meals are they good or they give you the same ones each day ?
There are two very nice people here responsible for ordering stuff (food and other goods) for us.
I call hotel's room service for breakfast everyday. They serve breakfast between 08:00 - 12:00 . You tell them that you want breakfast in your room and they bring you in 15 mins. You can make requests like coffee, orange juice, french fries or 4 boiled eggs or an omelette, etc. I speak in Turkish with them some people say they are having trouble communicating with them in English, unfortunately. By them I mean hotel staff.
For other meals we use delivery apps, "getir" and "yemeksepeti". You can order from any restaurant you like. Our current hotel is a little bit far away from city center so there aren't many close restaurants but still if you don't mind waiting you can eat any food you'd like. Once you decide what you want to eat you tell people who are responsible bringing stuff to you. They order it and bring it to your room.
I don't have any problem with food I like what I eat Here are some pictures.
2- Do you have females who are lengthening?
Currently there are none in the facility but one female german patient will come in a few days. I have a female friend who has done this surgery but she is at her home in Istanbul. I don't recommend going anywhere else tbh.
Quote from: Hatch on January 10, 2023, 08:44:46 PMAnyone using muscle relaxants? I have heard those help even sleep better.
Hello Hatch, I am sorry I have no information on this. I'll ask about it tomorrow. People love using this massage gel though. Therapists here also give us massage. It helps a lot, but you should not completely replace your stretching therapy with massage.
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