CCL LON on Femurs w Dr. Yunus Oc - wannabetaller - Turkey

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I told dear Tugce that I'd be writing a diary about the process, noone asked me to do it in fact they even forgot to take my pics before surgery. I told them then they took it after nurses open intravenous line  just before the surgery. Once my process is completed they would probably publish it. It will be a unique one

And yes I will even talk about even cleaning ladies it's an emotional process and so many people can affect your mood. Also to give people credit who does their job good. Unfortunately I don't know their surnames so far everyone did a faboulous job.

Like I said I only felt pain right after anesthesia and first few days when I tried to move my legs especially when I tried to bend my knees but right now I have absoulutely zero pain.

 I forgot to mention that I streched like 3 months prior to surgery and am around 65 kilos. I have been working out for 10 years that might also be affecting my pain threshold I don't know but I am so happy

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Day 1 (one day after the surgery)

The nurses gave me like 3-4L electrolyte solution intravenously a day along with antibiotics, bloodthinners stomach protectors and painkillers. I wouldnt want to disgust you but I peed like crazy and it was quite yellow I tried to drink enough water to dilute it but it didnt help 

Around 7am they brought me breakfast this was my first meal in 48 hours. Below you can see a typical breakfast they only change a few things. Other meals change a lot.

 


Dr Yunus came to my room around 9 am to check me. He asked me to try walking today and informed me that a physical therapist would visit me the next day. A few hours later they managed to put me on my feet. It was so difficult and it hurt a lot when I tried to sit first before standing up. I wasn't able to move my legs at all. I thought people started walking the day after operation. Ohh how naive I was maybe some people can but definetely not me. 2 minutes after standing up and trying to move my legs with no success I felt dizzy and my vision was almost completely gone.

Around 13:00 another meal came in, meals are almost always on time. Unfortenately I didn't take enough pictures but you can see another typical meal. The other meal comes around 7 pm. They were all quite delicious for me. They also bring the same meal to your care giver.

 

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These kind of suspicions are only natural since the money involves is quite big. I sometimes feel the same in other posts so I took this photo for you dear Kanye

I just want to inform other people who are considering this surgery, surgeon and the company. I have absolutely zero financial gain I am just a patient

 

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Day 2

My pre surgery sleep pattern is almost completely gone I can't sleep continously. I am so glad that I brought my ipads with me . I never get bored, I watch Netflix, youtube and chat with really nice hospital stuff. Nurses are so friendly, talktive and cute.

I have no pain but because of IV in my left arm I can't use that arm and it bothers me a little bit also I developed swelling in my left arm. Until I discharge from hospital I will always have atleast one IV.

Around 9pm Dr Yunus Oc visited me again and asked me to try walking again. Guys even getting up on your fees is vitally important as you know two patients of Dr. Giothikas and Dr. Guichet died because of embolism. To prevent that you need to get up and take blood thinners. This is why you should get rid of your excess weight and have strong upper body muscles. So please please do your preparations prior to surgery,CLL is nothing like a rhinoplasty.

Around 12:00 physiotherapist Aylis came to my room we did 30 min PT session and it was amazing. I can't emphasize enough how well she unlocked my muscles. Also she brought me a hex key and showed me how to properly use the device. Instruction is to turn the key 90 degrees clockwise every 6 hours, that will make me grow 0.1cm(1mm) each day. Dr Yunus and Aylis warned me not to exceed that limit. Hopefully I won't have to lenghten faster or slower during the process. I might be taking more than enough Calcium and vitamin D and K.

 



After she left they put me on my feet again and this time I managed to walk to the toilet but when I got there I was seriously dizzy so they brought me a chair. They changed my bed sheets while I was resting.

At that moment I realized that I overconfidently trusted my body's capabilities. I was seriously considering going back to my home, that is 500km away, with a train after the hospital discharge. So I started of thinking to go to rehab center for a month instead of going home.

By the way while trying to walk unfortunately the IV in my left arm came out and because of the swelling nurses decided to use my right arm. It really upset me because my left arm is a lot stronger compared to my left arm. I wanted to be able to use it.

My caregiver kept changing the ice bag every 30 mins.

 

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This patient of Dr. Assayag says first 21-23 days are nothing pain kicks in like after 2cm growth. I think my situation is the same. I am so comfortable with almost no pain at all. I grew 0.75cm so far. I also streched like 3 months prior to surgery and will continue to do for atleast 4h a day. Hopefully it will continue to go like this. My nurse, Aylis says changing bandages will evantually start to hurt right now it gives me pleasure instead because of the itching 

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Day 4

I started lenghtening the device today at 06:00. It was little difficult to find the right angle to turn 90 degrees due to my limited mobility, I can't move my lower body.Eventhough I took a video of Aylis explaining in which way to turn the key I still hesitated. It doesn't hurt or anything but I feel it in my bones when the hex key enters the fixator. It creates a vibration proportional to the force I apply. I don't feel anything about lenghtening.  I set alarms for 00:00, 06:00, 12:00, 18:00 but I won't try to be exactly on time. I value my sleep time so if I wake up like 04:00 I'll do the lenghtening and turn off the 06:00 alarm

This is where I put the hex key and turn 90 degrees clockwise for both legs. But other fixator devices might be different

 


Around 9pm Dr Yunus Oc came to check me and told me that I'd be discharching from the hospital tomorrow. After the Dr left a very sweet nurse did a knot to remove the penile catheter a few hours later. They don't take it out directly, they take it out after the bladder is full, I dont know the reasoning behind it.

An hour later after my bladder was full the nurse came and removed the catheter, it didn't hurt. You might want to keep it until you discharge from the hospital for its convenience but remember it's an infection risk. Also I think it's good to have an excuse to use your legs anyways.

I still feel pain only when I try to bend my knees more than 45 degrees or something, it doesnt hurt when I walk or lie down. So you can imagine sitting on toilet will be painful in first weeks

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Hi, thank you so much for documenting your journey any updates for today, how is the pain?

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Quote from: atti99xo on December 04, 2022, 08:37:32 PMHi, thank you so much for documenting your journey any updates for today, how is the pain?

Hey atti99xo, I am now on the 12th day after the surgery. My leg muscles got a lot stronger. I can bend my knees like this with no pain which I couldn't even dream of a week ago.

 


Yesterday I had a very sharp pain in my right lower legs, the place where my fingers are on the picture. It lasted about 10 hours. When I pulled my knees to myself, the pain disappeared and came back when I straightened my legs. Pretty weird.

 

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how is your sleeping like going to the toilet besides the sharp pain do you have any lingering pain throughout the day 

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Quote from: atti99xo on December 04, 2022, 10:18:27 PMhow is your sleeping like going to the toilet besides the sharp pain do you have any lingering pain throughout the day 

I dont have a lingering pain, I feel quite comfortable tbh the only thing that bothers me a little is the fact that I can't change my sleeping position but it's not a big deal.

For 4-5 days its been much easier to sit on the toilet because my legs have gotteb a lot stronger. First 4 days it was impossible to sit on toilet, my legs were so weak and trying to bend my knees hurt a lot.