Day 5
Today is the discharge from hospital, I cant tell you how happy I am to be rid of IV. They take you where you want to go by an ambulance. Because I chose to go to the rehab center(hotel) they will be taking me to the hotel. The name of the hotel is Marin Princess, its 15 mins away from the hospital. It should be noted that the hotel and the company have an agreement so wannabetaller isn't the owner of the place thus has somewhat limited control over some aspects. Also they might be working with another facility in the future or even better they can open their own facility.
I'll post a lot of pictures here for people who considering to go with the same company. Guys the other day Dr Yunus Oc said that surgery is the easy part of the job, the main important thing is the follow up. As you know many complications can occur during the process also you need professional physical therapists and nurses that know how to spot problems and work on these. So if you are planning to get this surgery done do it with people who work as a team.Like Dr. Paley says CLL is a 4 dimensional surgery, there is also time factor. I'll drop cyborg4life's interview with Dr Paley below, that video is a gem.
The ambulance picked me up around 15:00 and took me to the hotel. The ambulance driver was a very rude and angry guy not towards me but everyone else, to be honest I wouldn't want to be taken anywhere by this man. The other ambulance attendant was a very sweet and kind girl. For 15 minutes we had a very good conversation. I spent those 15 mins lying on a strecther.
When we arrived at the hotel, they wheeled me in a wheelchair to my room on the 5th floor. Normally patients stay on the 1st floor but since I made the decision late they couldnt available room on the first floor. But the company said they would change my room soon. My room is big enough with a double bed, mini refrigerator, TV, nightstand, toilet and closet. Below you can see the pictures of my room, sorry for the mess.
Below you can see a freezer the company brought that to my room at a later date because the refrigirator in my room wasn't cooling good enough the ice packs. I'll also post rehab centers pictures soon.
After settling in my room the company's founder ,Mr. Ibrahim, paid a visit to my room and we chatted 20-30 mins, really cool guy. He said he had CLL operation himself years ago with holyfix method. He wore the device for 1.5y and described as an aweful experience.
I cant get my legs up on the bed by their power own power, I need help from my arms. But on the bright side I still dont have any pain. Victor's(cyborg4life) pain graph certainly doesnt match my feelings. I don't use painkillers.
CCL LON on Femurs w Dr. Yunus Oc - wannabetaller - Turkey
Hey guys quick update, I am at 2.175cm and still experience almost no pain in fact these last 3 days were the best days I have had since the surgery. Last night I slept 6h continiously, it´s a dream normally I wake up every 2h or something.
I think the reason I don't have pain is beacause of these four things:
- Great Surgical technique
- Heavy, 5 days per week PT program (it hurts during PT)
- Streching my legs all day long
- Following a high calorie, protein rich diet and taking supplements like D3, fish oil and multivitamin
A week ago I kicked in my dream and I did it in real life too and I hurt my right upper leg very badly. It hurt so much I can't even describe. Mehmet massaged me with a cream during PT session and my upper leg has been very relaxed since then. Dr. Yunus Oc said that such involuntary movements are very dangerous and that if they recur action should be taken. He said it might even damage the fixator.
Quote from: QuarkSoup on December 17, 2022, 07:58:09 PMHey guys quick update, I am at 2.175cm and still experience almost no pain in fact these last 3 days were the best days I have had since the surgery. Last night I slept 6h continiously, it´s a dream normally I wake up every 2h or something.
I think the reason I don't have pain is beacause of these four things:
- Great Surgical technique
- Heavy, 5 days per week PT program (it hurts during PT)
- Streching my legs all day long
- Following a high calorie, protein rich diet and taking supplements like D3, fish oil and multivitamin
A week ago I kicked in my dream and I did it in real life too and I hurt my right upper leg very badly. It hurt so much I can't even describe. Mehmet massaged me with a cream during PT session and my upper leg has been very relaxed since then. Dr. Yunus Oc said that such involuntary movements are very dangerous and that if they recur action should be taken. He said it might even damage the fixator.
Can you tell me what you eat? I'm having trouble sustaining a high protein diet
Quote from: shortisnotfun on December 19, 2022, 01:26:18 AMCan you tell me what you eat? I'm having trouble sustaining a high protein diet
Dont rush into eating friend you just had the surgery. Also I believe tibia is much more painful first days than femur.
Breakfast:
-Stomach protector
-3 whole eggs
- protein bar with atleast 15g protein
- 100gr cheese
- 200ml milk protein shake (13gr protein)
- 150gr vegatables
- 1400 ui Vitamin D3
- 1.2gr fish oil ( 384mg EPA, 252mg DHA)
- nature's supreme multivitamin for men
Lunch:
- 160gr hamburger (30-35gr protein)
- Ayran (Turkish drink)
Dinner:
- 200gr Chicken
- 100gr vegetables
- 50 gr nuts
- 300 gr high protein milk(15gr protein)
- 1.2gr fish oil ( 384mg EPA, 252mg DHA)
- 5gr creatine
- bloodthinner (aspirin)
- 100 gr banana
And I still lost 6lbs in 3 weeks
I've reached 2.9cm and still don't experience much pain only some discomfort. I don't take painkillers. I feel like my hamstring muscles will be tight though in normal relaxed position when I reach like 4.5-5cm. Pin sides also started to hurt a little bit when I move my legs. In my case first week and probably after 6cm will be the worst part of LL. I really thought this whole process would be really painful before the surgery based on other diaries. I have completed 34% of the distraction phase though there are still 2 months ahead.
I took this photo 12h ago. I can see how much I have lenghtened and compare the two legs
Hi
How much did you pay for the accommodation if you don't mind me asking also how many times a week do you get PT as well as do Xrays, also I hope it's not personal but do you have any pain in your legs when you sit on the toilet, as well as how do you cover ur wounds when u shower
Quote from: atti99xo on December 24, 2022, 11:04:28 PMHi
How much did you pay for the accommodation if you don't mind me asking also how many times a week do you get PT as well as do Xrays, also I hope it's not personal but do you have any pain in your legs when you sit on the toilet, as well as how do you cover ur wounds when u shower
Hey atti you can contact wannabetaller about the price.
They do xray every 18-21 days. I will post all my xrays.
I take 5 PT session per week, each lasts one hour but I have seen some people take 2 session a day because they needed.
First days it's quite painful to sit on toilet but after 2 weeks pain goes away.
I don't take shower, I use wet wipes, the ones used for babies, they get the job done. I wash my hair in the sink.
Hey guys, I reached 3.4cm a few hours ago and still don't experience much pain. Since the day of the surgery, every day has been more enjoyable than the day before. After reading so many diaries and watching vlogs I can say that everyone's experience is so unique. A friend of mine today said "prepare for the worst and hope for the best" for this surgery and he is so right.
The company wannabetaller solves all my problems from little to big with no extra charge. To give you an example, I bought a PS5 a few days ago and wanted to connect it to my Ipads for remote play. Unfortunately it's impossible to do that using hotels wifi so the company provided me a private MIFI, a mobile wifi with 5G connection. If you want a Barber they can get it done, they even found a Nigerian restaurant for one of American patients.
Also I havent seen a single complication so far among other patients. The biggest issue with LON is the dressing change. Pins and surrounding areas needs to be cleaned every 2 days. One of my Turkish friends went back to her home after the surgery and I'm so scared of her getting infected her pins are not as clean as mine. I havent seen any infection case here because the nurse Aylis works really diligently. After reading the osteomylitis case I asked Aylis if you still can get infected after the device removal and she said only the people who does tibia can get infected. So you still need to be careful for couple of weeks.
Some people wonder if they can work remotely, yes you can nothing stops you but the discomfort distracts you. I can't concentrate more than 20 mins, normally I work for hours.
Anyways my soft tissue is still flexible, I can almost touch the ground with the tips of my fingers in 3cm heels. PT does wonders. I try not to make too much noise so that I don't interfere with the therapists' work during seasions. Cagatay and Mehmet are so experienced they always know where and how much force they need to apply to. Your therapists need to push your limit. It's not a pleasent feeling but this is how you deal with getting tight. I also strech my hamstrings myself around 45-50 mins a day in my room. I might have to increase that number in coming weeks.
The Xray below was taken when I was at 2.8cm. I take around 3000 UI vitamin D3, 1000mg calcium a day. I keep my weight steady. Today I asked the Dr. if I can walk without any support 1.5 months after the device removal and he recommended using crutches for 3-4 months to be in the safe side.
Correction
Sorry guys apparently I misunderstood the doctor. Today I was chatting with therapists and they told me that the doctor advised me to walk with double arm crutches for the 3rd month and single arm crutches for the 4th month. So I wont be needing crutches for more than 2 months after device removal
Quote from: QuarkSoup on December 29, 2022, 07:33:28 PMHey guys, I reached 3.4cm a few hours ago and still don't experience much pain. Since the day of the surgery, every day has been more enjoyable than the day before. After reading so many diaries and watching vlogs I can say that everyone's experience is so unique. A friend of mine today said "prepare for the worst and hope for the best" for this surgery and he is so right.
The company wannabetaller solves all my problems from little to big with no extra charge. To give you an example, I bought a PS5 a few days ago and wanted to connect it to my Ipads for remote play. Unfortunately it's impossible to do that using hotels wifi so the company provided me a private MIFI, a mobile wifi with 5G connection. If you want a Barber they can get it done, they even found a Nigerian restaurant for one of American patients.
Also I havent seen a single complication so far among other patients. The biggest issue with LON is the dressing change. Pins and surrounding areas needs to be cleaned every 2 days. One of my Turkish friends went back to her home after the surgery and I'm so scared of her getting infected her pins are not as clean as mine. I havent seen any infection case here because the nurse Aylis works really diligently. After reading the osteomylitis case I asked Aylis if you still can get infected after the device removal and she said only the people who does tibia can get infected. So you still need to be careful for couple of weeks.
Some people wonder if they can work remotely, yes you can nothing stops you but the discomfort distracts you. I can't concentrate more than 20 mins, normally I work for hours.
Anyways my soft tissue is still flexible, I can almost touch the ground with the tips of my fingers in 3cm heels. PT does wonders. I try not to make too much noise so that I don't interfere with the therapists' work during seasions. Cagatay and Mehmet are so experienced they always know where and how much force they need to apply to. Your therapists need to push your limit. It's not a pleasent feeling but this is how you deal with getting tight. I also strech my hamstrings myself around 45-50 mins a day in my room. I might have to increase that number in coming weeks.
The Xray below was taken when I was at 2.8cm. I take around 3000 UI vitamin D3, 1000mg calcium a day. I keep my weight steady. Today I asked the Dr. if I can walk without any support 1.5 months after the device removal and he recommended using crutches for 3-4 months to be in the safe side.
What did she mean only the people who do tibia can get infected?
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