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Posted on Jul 29, 2022, 5:38 pm
#1

My original target was 8 cm but I got early consolidation at 6cm. Will go for rebreak in the next 6-9 months. AMA

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Posted on Jul 30, 2022, 9:11 am
#2

Quote from: 6CMFemurs on July 30, 2022, 01:47:50 AMHow come you used 8.5 mm version of nail?


My bones are small like a child lol.

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Posted on Jul 30, 2022, 9:13 am
#3

Quote from: Thehighest on July 29, 2022, 11:54:36 PMIs the hospital still very ugly??? Or they improved ir?? Is LON safe there?


It's not ugly at all. It's clean and looks fine. I don't think LON is safe anywhere. I wouldn't recommend LON.

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Posted on Jul 30, 2022, 9:14 am
#4

Quote from: Vogel on July 29, 2022, 07:38:53 PMHow was your overall experience with the doctor and how’s the PT over there?


How come you didn’t increase the lengthening rate to avoid early consolidation?


I was doing 0.9 mm per day initially then doc increased it to 1.2mm per day but I still got it even after 1.2 mm per day. I even stopped taking calcium supplements but couldn't stop my bones from fusing together.  PT is mediocre at best. I didn't do much PT throughout the process. Overall exp with doc is pretty good they know their stuff and took all the precautions during and after the surgery.

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Posted on Jul 30, 2022, 1:29 pm
#5

Quote from: RingPacket on July 30, 2022, 10:09:11 AMcongrats

1) why rebreak? just do tibias and get good proportion
2) how did u travel outside of hotel to hospital? and did u have any other medical needs to go to a doctor?
3) what was the protocl taken to prevent blood clotting


1. I don't have budget to buy another precice for tibia and I won't do external.
2. I am living in a rented flat with 2 flatmates/friends. I use a wheelchair taxi service called mobicab.
3. They put you on dvt pump after the surgery and prescribe blood thinners for 30 days but you can continue to take them for 3 months if you want. I didn't take any blood thinners at all.

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Posted on Jul 30, 2022, 1:30 pm
#6

Quote from: Realistic on July 30, 2022, 09:51:59 AMDid you discuss the risk of non-union/delayed union with the doc? Is non-union treatable?


I remember discussing all the risks before the surgery. They try to fix non-union by some medicines first and then if it doesn't work then they do bone grafting.

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Posted on Jul 30, 2022, 1:32 pm
#7

Quote from: Vogel on July 30, 2022, 09:43:21 AMwhat’s was the weight bearing protocol and are you weight bearing now? I remember doctor said that he will be more aggressive with weight bearing as he does more precise patients.


Now that you are 6cm taller how does it feel and what’s your starting height if I may ask?


How come you will re-break after 6-9 months and not now?


I am walking with a walker and putting full weight on my legs while standing. Hopefully, I can get rid of the walker in a few weeks. I don't feel much different tbh that's why I'll go for rebreak. My initial height was 164cm.

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Posted on Jul 30, 2022, 2:21 pm
#8

Quote from: Realistic on July 30, 2022, 01:51:41 PMDid you use any caretaker service during your rehab or did one of your family members help you during the distraction process? Do you think it is required to have a family member support during this process?


I used a caretaker service. It's not possible without a caretaker or family member.

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Posted on Jul 30, 2022, 2:23 pm
#9

Quote from: ilovescience on July 30, 2022, 01:35:45 PMI hope you recover fast and everything goes well. Are you planning doing second LL after this?


Nope, just rebreak and more lengthening in femur for now. No immediate plans for tibia lengthening.

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Posted on Jul 30, 2022, 3:15 pm
#10

Quote from: Vogel on July 30, 2022, 02:36:57 PM1- How’s your range of motion with 6 cm of extra height?

2- How often you do PT?

3- if you were to redo this procedure, would you still go to Dr. Mangal?

4- do you have any advice for me regarding the procedure and this doctor?


Thank you very much for taking the time to answer these questions. I really appreciate and hope all keeps going well for you.


1. If you are talking about knee bending then it's like 110 - 120 degrees.
2. 3-4 times a week (not much). My hamstrings are very tight.
3. Yes
4. Having a positive mental attitude and a good support system is very important.

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