Diary - January 2019 - In Full Stryde with Dr. Mahboubian of North Hollywood.

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good luck infullstride.

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thanks a lot!!!!!

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Hey IFS thanks for another update. Not to butter your biscuit again but you really got the right mentality for this type of procedure. I am super excited for your video update and I love hearing that you are making significant progress. Since I'll be doing femurs I'm definitely freaking out about APT but I'm happy to hear it goes away.

I am tirelessly working 50-60 hours a week saving for this thing, so when morale goes low and I don't feel like signing up for overtime, updates like this really helps kick my a$$ into gear. After reading about your experience with stryde I know it will be worth it to wait a few months to afford stryde rather then being impatient and going for something cheaper.

A lot of us here anticipate and read every single update you do, so know that you have a lot of love and support here. Keep on keeping on and take your time with the video. Definitely would rather have a video at 7 months then at 6. Plus we know you have a life you need to attend to.

One last thing, there is something that you said that really resonated with me and its exactly the feeling I am looking to have after my procedure.

Quote from: InFullStryde on June 30, 2019, 04:24:34 PM I'll close out with this statement... "I'm Finally Free".

I always think of a part of this song when I think of my life after LL and you reminded me of it:

"But in all of my salvation I still felt imprisoned inside
That holding cell that is myself,
So I wait for the day when I'll hear the key
As it turns in the lock and the guard will say to me
"Oh, my patient prisoner, you have waited for this day and finally,
You are free! You are free! You are freeeeee!


Glad your living your life brother and God Speed

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Quote from: Bonez on July 24, 2019, 05:20:15 AM"But in all of my salvation I still felt imprisoned inside
That holding cell that is myself,
So I wait for the day when I'll hear the key
As it turns in the lock and the guard will say to me
"Oh, my patient prisoner, you have waited for this day and finally,
You are free! You are free! You are freeeeee!


Glad your living your life brother and God Speed

That is beautiful, man. Thank you and will continue to keep you posted.

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How tall are you?

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Hey IFS!
I‘m in 8 weeks consolidation now.
Would recommend me to ride the homebike or walking with crutches?

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Quote from: 21FRANCO on August 04, 2019, 07:14:16 AMHow tall are you?

Hi Franco!  I was 5'1" and now I am just a bit over 5'4".  In a strong soled sneaker shoes, I'm about 5'6.

Thank you for your question. Feel free to reach out if I can help answer any other inquires for you.

Guys, I'll have another update this week.  Currently, I am updating my diary about every 2 weeks.  I'm coasting nicely through my recovery now. Walking 100% and can walk a few miles at a time (before requiring a brief rest).  I am meeting with Dr. M this week and will have my 7 month post-op x-rays, a new video of my walk and some other movements I can do now; as well as a summary of where I am at now with the CLL process.   

Grateful to all of you who have been kind, supportive, and helped me through this very special journey.   Also, I am noticing an increase in diaries overall and that is so great to see.   This forum is so helpful.   I hope the entire world can soon go Stryde nail so that each corner of the globe shall reap it's benefit.   

All the best,

IFS

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Quote from: wanttaller on August 05, 2019, 01:23:52 AMHey IFS!
I‘m in 8 weeks consolidation now.
Would recommend me to ride the homebike or walking with crutches?

Hi WantTaller, I'll message your privately on this item.

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Hi Infullstride. Could you please summarize how much does it cost you for the whole procedure? Other than wha you paid the Dr, what else you have to pay? Like PT sessions? I remember you said that PT paid ny insurance if i were right. What insurance do you have btw?
Thank you and congrats !! Im planning to have my done next year with DR M

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Quote from: Cpl2012 on August 05, 2019, 02:13:37 PMHi Infullstride. Could you please summarize how much does it cost you for the whole procedure? Other than wha you paid the Dr, what else you have to pay? Like PT sessions? I remember you said that PT paid ny insurance if i were right. What insurance do you have btw?
Thank you and congrats !! Im planning to have my done next year with DR M

Hi Cpl,

I'm glad to assist.  I will try to come up with a more precise figure for you soon; however I would estimate that the general supplies needed for me, including a wheelchair, walker, crutches, cane, meal delivery, transportation to/from PT and Dr. office, and other general supplies, came out to about $1,000-$1,500, range.   

My prescription medicines and PT were both mainly covered by my Health Insurance which is a Health Net PPO.  My Co-Pay was about $25 per prescription or per PT Session....So in doing the math on that....I've had about 60 formal PT sessions roughly through 7 months - So the cost of that has been about $1500-$2000 

This is a great question.  One must keep in mind that there are auxiliary costs outside of the surgery to consider.   Also, there is some off-setting of course. You won't be going out much or driving; so you will save substantially on that....as well as other costs saving as a result of your lesser activity during CLL.  Also note, that I lengthened at home and did not need to book a hotel...Also, Dr M is local to where I live, so no hefty transportation fees for Air Travel, Train, etc.  I also own my own company; So I was able to work remotely the entire time I was going through CLL.   I took 90 days out of the office; but still worked remotely and I didn't have any pressure from the "Boss'....well...I did..but I pressured myself. LOL.  The CLL process was as convenient as a CLL process can be since I am a business owner with employees which handle my company operations and I live close to Dr. M offices.

The Surgery for me was $72,500...+ $1500 (supplies) + $2000 (PT + prescriptions.)   I'd say, all in all, I spent about $75,000-$76000) for everything. 
I hope this answers your question! 

All the best,

IFS