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Posted on Aug 14, 2019, 11:58 pm
#831

Quote from: fodawupa on August 14, 2019, 09:37:46 PMgood progress in fullstride


Thank you, Really appreciate your support.

Quote from: SimonFuller on August 12, 2019, 09:35:13 AMBro a big congrats from me - It's been crazy to watch this all unfold and see it all work out so well.

I am keen to hear the insightful psychological post when you post it!!


Thank you again for all your support and encouragement, man.  I have a lot more to say on this topic! Coming soon. Diary - January 2019 - In Full Stryde with Dr. Mahboubian of North Hollywood.

Quote from: Ghostfish on August 12, 2019, 02:31:58 AMHi IFS
Congrats on your great recovery!  You are dedicated and focused.  You have made a great contribution to this community and your diary will stay as one of the best informative and inspirational. 

I like your word: I've conquered "growing".  Yes, you did it!  I also did it!  Growing tall was not our choice so we did what we can do to conquer it!

Wish you the happiness with growing taller!


Right on! We're on the same page. Thanks again.


--

New progress details and additional progress videos coming each month.  Thank you again for all your support and all CLL Community members, feel free to reach out if any questions.    I've never been happier than I am today.

All the Best,

IFS

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Posted on Aug 15, 2019, 4:50 pm
#832

InFullStryde, this is excellent progress news brother! I feel like it was just yesterday I was reading your first few posts about the struggles early in the process. Now that I'm only a couple weeks away from being finished with distraction, it's very motivating to see how the next few months should pan out. I can only hope for consolidation to work for me like it did for you! One of the things you pointed out was how much of a difference the various people make in your recovery (including everyone on this forum). Very well said. I couldn't imagine making it through this process if I didn't have that support.

I have 2 questions. One of the issues I've experienced is what I view as almost extreme weight loss. I'm down about 22 pounds from my pre-surgery weight. I think a lot of that is muscle atrophy, but I've lost a considerable amount from my glutes which makes sitting on hard surfaces (e.g., a wooden chair) very painful. How long did it take for your body to "fill in" areas like your glutes after you stopped lengthening? Also, my job will require me to stand for an hour at a time starting in a couple of weeks. Would you say that's something that got easier once you stopped lengthening?

Thanks!

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Posted on Aug 15, 2019, 5:01 pm
#833

Quote from: verticalpush on August 15, 2019, 04:50:26 PMInFullStryde, this is excellent progress news brother! I feel like it was just yesterday I was reading your first few posts about the struggles early in the process. Now that I'm only a couple weeks away from being finished with distraction, it's very motivating to see how the next few months should pan out. I can only hope for consolidation to work for me like it did for you! One of the things you pointed out was how much of a difference the various people make in your recovery (including everyone on this forum). Very well said. I couldn't imagine making it through this process if I didn't have that support.

I have 2 questions. One of the issues I've experienced is what I view as almost extreme weight loss. I'm down about 22 pounds from my pre-surgery weight. I think a lot of that is muscle atrophy, but I've lost a considerable amount from my glutes which makes sitting on hard surfaces (e.g., a wooden chair) very painful. How long did it take for your body to "fill in" areas like your glutes after you stopped lengthening? Also, my job will require me to stand for an hour at a time starting in a couple of weeks. Would you say that's something that got easier once you stopped lengthening?

Thanks!


Hi Vertical,

Sure thing.  In my experience, once you stop lengthening, the rate of progress becomes exponential in some respects.  You are FINALLY allowing your bones and soft tissues to heal versus, constantly breaking them each day with the lengthening machine.   In the first month, as you continue the same committed stretching and strengthening, your body responds by loosening up quite dramatically.   Stiffness, tightness of muscles joints, although not 100% wise; will loosen considerably.  You will find that your walk becomes more fluid and less robotic and by the end of the 4th month (1 month post lengthen), you start to truly see the light. If you have any degree of APT, or leg straitening issues, you see dramatic improvement as month 5 concludes.   By end of 5 months, you're walking pretty darn good.  I have a 5 month video in my diary.  My strength wasn't quite there yet and sure some stiffness/tightness is still lingering; but nothing to sweat. All that starts to really wear away with continued use of the legs during the 6 month and beyond. 

Standing for an hour should work out just fine....will be great for your post lengthening consolidation.   Are you allowed to lean up against anything for that one hour?  A little device or wall support never hurt during the early stages of consolidation.   I have been following your diary; and it sounds like you're walking pretty darn good..so you will likely be just fine with standing up for extended periods. 

Additionally, as far as your body weight goes.  I also lost mass during lengthening and for me; it was mainly due to skipping meals, a loss of appetite, a lower quantity/quality of resistance  weight training.  I would try to stay on task eating wise, but would find myself eating only 2 meals a day on some days.  Additionally, the lack of sleep contributes to weight loss.   Very shortly, I would say 2 weeks or so, post lengthening, my diet returned to normal as did my sleep and I began to fill in upper body wise and my legs as well.   By month 5 and 6, I'm approaching my old self again.   I actually weigh more now than before by about 7 lbs...due to eating, sleeping and returning to the gym at the 5 month point.   Plus, when you are finally able to walk long distances...1 mile, 2 mile+...your legs strengthen quickly and muscle memory also begins to kick in nicely!

Let me know if you have any more questions or feedback!

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Posted on Aug 15, 2019, 5:23 pm
#834

Quote from: InFullStryde on August 15, 2019, 05:01:45 PMHi Vertical,

Sure thing.  In my experience, once you stop lengthening, the rate of progress becomes exponential in some respects.  You are FINALLY allowing your bones and soft tissues to heal versus, constantly breaking them each day with the lengthening machine.   In the first month, as you continue the same committed stretching and strengthening, your body responds by loosening up quite dramatically.   Stiffness, tightness of muscles joints, although not 100% wise; will loosen considerably.  You will find that your walk becomes more fluid and less robotic and by the end of the 4th month (1 month post lengthen), you start to truly see the light. If you have any degree of APT, or leg straigening issues, you see dramatic improvement as month 5 concludes.   By end of 5 months, you're walking pretty darn good.  I have a 5 month video in my diary.  You're strength isn't quite there yet and sure some stiffness/tightness is still lingering; but nothing to sweat. All that starts to really wear away with continued use of the legs during the 6 month and beyond. 

Standing for an hour should work out just fine....will be great for your post lengthening consolidation.   Are you allowed to lean up against anything for that one hour?  A little device or wall support never hurt during the early stages of consolidation.   I have been following your diary; and it sounds like you're walking pretty darn good..so you will likely be just fine with standing up for extended periods. 

Additionally, as far as your body weight goes.  I also lost mass during lengthening and for me; it was mainly due to skipping meals, a loss of appetite, a lower quantity/quality of resistance  weight training.  I would try to stay on task eating wise, but would find myself eating only 2 meals a day on some days.  Additionally, the lack of sleep contributes to weight loss.   Very shortly, I would say 2 weeks or so, post lengthening, my diet returned to normal as did my sleep and I began to fill in upper body wise and my legs as well.   By month 5 and 6, I'm approaching my old self again.   I actually weigh more now than before by about 7 lbs...due to eating, sleeping and returning to the gym at the 5 month point.   Plus, when you are finally able to walk long distances...1 mile, 2 mile+...your legs strengthen quickly and muscle memory also begins to kick in nicely!

Let me know if you have any more questions or feedback!


This is awesome InFullStryde!! Thank you, I feel a lot better knowing things should improve relatively soon. I'm definitely experiencing the tightness/robotic like state that you described. I wouldn't describe it as pain (in fact, the only pain I really felt the entire time was nerve-related issues towards the midpoint of lengthening that have all but disappeared by now), but my knee doesn't want to bend that much when I'm walking, and I'm swaying a lot from side to side. I'll notice a big improvement after each PT session, but by then I'm in pain/tired so the last thing I want to do is walk a lot those days.

Lack of sleep has definitely been an issue for me so that makes sense as something that exasperated weight loss. I feel the same way - I just don't have much of an appetite many days and need to force myself to eat. As I write this, I've been up almost 4 hours and only had a 50 calorie fiber bar and a coffee! Then again, I can pick up a pizza and eat 3/4 of it by myself even when I'm not all that hungry. I'll admit I haven't been watching *what* I eat as much as I'm making sure *that* I eat. Drive-thrus are way easier to navigate than walking to get something healthier.

Great point about standing. Yes, I'll have something to lean against and I suppose I can request a stool. I think the longest I've stood in one spot has been about 10 minutes (I'm not counting walking as "standing"), but it does start to tire me out after 10 minutes.

Sounds like the 5 month point really is the magic moment where things become way easier! I can't wait. Thanks again!

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Posted on Aug 15, 2019, 5:35 pm
#835

Quote from: verticalpush on August 15, 2019, 05:23:24 PMThis is awesome InFullStryde!! Thank you, I feel a lot better knowing things should improve relatively soon. I'm definitely experiencing the tightness/robotic like state that you described. I wouldn't describe it as pain (in fact, the only pain I really felt the entire time was nerve-related issues towards the midpoint of lengthening that have all but disappeared by now), but my knee doesn't want to bend that much when I'm walking, and I'm swaying a lot from side to side. I'll notice a big improvement after each PT session, but by then I'm in pain/tired so the last thing I want to do is walk a lot those days.

Lack of sleep has definitely been an issue for me so that makes sense as something that exasperated weight loss. I feel the same way - I just don't have much of an appetite many days and need to force myself to eat. As I write this, I've been up almost 4 hours and only had a 50 calorie fiber bar and a coffee! Then again, I can pick up a pizza and eat 3/4 of it by myself even when I'm not all that hungry. I'll admit I haven't been watching *what* I eat as much as I'm making sure *that* I eat. Drive-thrus are way easier to navigate than walking to get something healthier.

Great point about standing. Yes, I'll have something to lean against and I suppose I can request a stool. I think the longest I've stood in one spot has been about 10 minutes (I'm not counting walking as "standing"), but it does start to tire me out after 10 minutes.

Sounds like the 5 month point really is the magic moment where things become way easier! I can't wait. Thanks again!


It sounds like we are very similar in many ways in terms of our recovery process.   Interestingly enough, I had realized that I was losing weight due to not eating much and my apetite wasn't there...so I resorted to comfort foods more than I would have prior to CLL...food like Pizza, Hamburgers, etc. I realized that there was no threat of me getting "heavy" and realized that this point I just needed some calories. I'd reach for some good Pizza and Ice Cream during these CLL times, ha ha. 

Walking, ah yes , oh yes indeed. Waddling, Side to side, legs are not really bending as smoothly as normal....All that will start to come back nicely post lengthening.  You'll look back at these times.  I took videos of my old penguin, zombie, robot walk for keep sake memories..you soon return to form as month 4, 5, 6 roll around. All of that is merely a temporary status.   I have concluded in my mind that natural walking probably can't exist during the lengthening phase; so I advise all future CLL'ers to realize that if you can stand up and waddle about for a few months then you are doing just fine.   Golden months are month 5, 6, 7 ....at this point you're happy to be walking again and meeting all your necessities and easily able to coast back to an atheletic status as the year concludes!   

Oh, I wanted to add another thing - Getting up from a chair! Yes, that will start to become much much easier around month 5 as well....as month 6, 7 roll around...you'll be able to most likely start to bounce out of the chair more similar to the old days. Give it time...It comes back to satisfactory levels soon enough.

You're doing great, man.

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Posted on Aug 15, 2019, 7:00 pm
#836

Awesome update and insight IFS thanks bro! can't wait to be where you are right now, and by then I hope you stick around to see how you are doing, do you plan on removing rods at the year mark?

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Posted on Aug 15, 2019, 7:44 pm
#837

Quote from: Movie on August 15, 2019, 07:00:16 PMAwesome update and insight IFS thanks bro! can't wait to be where you are right now, and by then I hope you stick around to see how you are doing, do you plan on removing rods at the year mark?


Hi Movie! Indeed.... You'll be here and beyond before you know it! Yes, I plan on removing at some point between 12 - 18 months, post - op. I haven't decided when, but I figure I'll make a decision once I see how the 2020 schedule is shaping.

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Posted on Aug 15, 2019, 11:01 pm
#838

Quote from: InFullStryde on August 15, 2019, 05:35:45 PMIt sounds like we are very similar in many ways in terms of our recovery process.   Interestingly enough, I had realized that I was losing weight due to not eating much and my apetite wasn't there...so I resorted to comfort foods more than I would have prior to CLL...food like Pizza, Hamburgers, etc. I realized that there was no threat of me getting "heavy" and realized that this point I just needed some calories. I'd reach for some good Pizza and Ice Cream during these CLL times, ha ha. 

Walking, ah yes , oh yes indeed. Waddling, Side to side, legs are not really bending as smoothly as normal....All that will start to come back nicely post lengthening.  You'll look back at these times.  I took videos of my old penguin, zombie, robot walk for keep sake memories..you soon return to form as month 4, 5, 6 roll around. All of that is merely a temporary status.   I have concluded in my mind that natural walking probably can't exist during the lengthening phase; so I advise all future CLL'ers to realize that if you can stand up and waddle about for a few months then you are doing just fine.   Golden months are month 5, 6, 7 ....at this point you're happy to be walking again and meeting all your necessities and easily able to coast back to an atheletic status as the year concludes!   

Oh, I wanted to add another thing - Getting up from a chair! Yes, that will start to become much much easier around month 5 as well....as month 6, 7 roll around...you'll be able to most likely start to bounce out of the chair more similar to the old days. Give it time...It comes back to satisfactory levels soon enough.

You're doing great, man.


Indeed, we are very similar! You made me feel better about the quarter pounder with cheese meal I had for lunch at McDonalds a few hours ago! Great information! Thanks again my friend.

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Posted on Aug 15, 2019, 11:03 pm
#839

Quote from: verticalpush on August 15, 2019, 11:01:24 PMIndeed, we are very similar! You made me feel better about the quarter pounder with cheese meal I had for lunch at McDonalds a few hours ago! Great information! Thanks again my friend.


Lol, I didn't know what a Wendy's burger tastes like until CLL!  I'm back to my veggies and chicken. lol.  Talk soon, man!

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Posted on Aug 19, 2019, 5:20 pm
#840

Quote from: InFullStryde on August 15, 2019, 11:03:50 PMLol, I didn't know what a Wendy's burger tastes like until CLL!  I'm back to my veggies and chicken. lol.  Talk soon, man!


Hey bud - what are your proportions like when you wear a tucked in shirt? Alot of people who work in an office will probably dress that way.

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