why are you questioning doctor's when you have no medical knowledge - i have done limb lengthening - 99% of people on this sit have not & will not - & then blame misinformation - the research & evidence is there for all to see - either do it or stop nonsense talk!! - even those 1% who proceed still think they know better than orthopaedic surgeons!! - give me strength!!
Hi th,
Thank you for your comments!
But no need to be agressive. I never stated I know better than an orthopadedic surgeon! On the contrary, that's why I am asking for help from people like you, with the experience of the surgery.
I met two CLL doctors so far and indeed there is a mismatch between the information they gave to me and the experiences I read or patients I talked to.
I am not sure your comment of "either do it or stop nonsense talk" is productive : it is my two legs, so I consider I can ask the question I need to ask (maybe it was not your case but everyone is different) And yes, for the moment there is a mismatch between doctors and experience of patients so I need to ask and hopefully it can also interest some other futur LL patients.
it is not being agressive when speaking the truth - the fact you are looking to break your legs based on this site confirms - 100% - that you will never do it - you need to do your medical researvh and WANT to do it - otherwise, it is indeednnonsense talk
the title of this thread - 'dr paley is he lying' says it all - govand ask him!!!
Th,
On the contrary, I am really informed. I also read all the studies I could find online (mainly on the following website : https://www.ncbi.nlm.nih.gov/). Even if there is not a real studies with a timeline neither that one with long term effect for femur, the different studies show a real and complex process which is in contradiction with the information given by CLL doctors. Thus, I created this topic as it seems Doctors don't give the truth about the process. If you have more information, could you provide ?
In fact, to be honest, it also seems people who has done CLL are the one who read the less (just blind and desperate) .Because the more you read, the less you want to do it.
PS : I agree, my title is a bit too much, but it was on purpose to get answers 
. FYI I did ask him and other doctors but yes I got a mismatch with their answers and experience of patients so I decided to create the topic.
if u really were going to do it - to attempt to cure height neurosis, mental health etc - then you would simply go ahead and proceed accordingly - it really isn't that bad re pain, safety etc - the hardest thing is the doubt as u are about to go into surgery and the days after - but if u REALLY want to do it (for right or wrong) you would do so
just check ilizarov method in russia - you'll find all the medical info - it is performed on children for gods sake - case closed
it is not the case that people go into this surgery blind and desperate - again what evidence do you have fof this??
In fact, I am not afraid of pain at all (afraid of safety yes : risk of fat embolism is about 4% so really high).
But there is one thing which is really not shown by doctors (and rarely by diaries) is the recovery phase : and it seems so far almost everyone has to walk like grandpa months after lengthening (sometimes still after 1 year). And it is definitively not mentionned by Doctors. So it seems to me that it was relevant to start a topic adressing this subject. So I think you missed my point.
Otherwise, what's your point regarding External fixator and children ? You do know it is done for medical reason and not cosmetic reason ? So the goal is not at all the same (for medical reason, it is done to improve the physical situation of a patient so even if a patient cannot run after, he will still be happy).
And yes, when I read previous patient who said : "go for it, everything will be fine", it doesn't show a real picture so it seems not really wise.
Quote from: afaq379006 on January 08, 2020, 08:39:43 AMpaley is very genuine guy he wont lie but every one has different body bones structure. we cant blame him for that.
Lol you're the type of guy that's easy to sell anything to, gullible and will even defend the snâke oil you just bought.
You must be logged in to post a reply.
