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Posted on Jan 8, 2020, 11:01 pm
#21

the point about external fixator on children is that the procedure is safe - with regards to 'missing your point' - it is not posdible for someone who has gone through limb lengtheing to miss ANY point made by someone making 'claims' on a website who will never proceed with the procefure - this thread is nonsensical because all the info/evidence is already out there - what's the point in trying to score points on a LL website - when you will never do it?

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Posted on Jan 9, 2020, 12:32 am
#22

Hey there,
Your concerns are absolutely legitimate. In fact Paley's salesman tactics that I have read about really turned me off from seeking him as my surgeon. I agree with you 100% that surgeons inflate recovery periods for this procedure. Not sure if you read my diary but I am almost 7 months post op with dr R and I got 8cm with femurs. I am still wobbling when I walk. Granted I haven't been doing physical therapy after stopping lengthening due to lack of time but this surgery is no joke in terms of recovery. If what you said earlier is true, this surgery due to the acccompanying recovery period  is really not for you at this time. I understand tge point th  is attempting to make and partially agree with him as well. But what th doesn't realize is that we all start this process from somewhere, ask questions and let this surgery brew in our minds. Th you are correct that the poster is unlikely to have this surgery done at this time but it never hurts to ask and collect info. I was on this forum for many yrs reading and pming members to gather info. Yes I wasn't ready when I first came across this site and read about the pain the suffering and overall demands of this surgery, but in due time I realized there was no other option for me. The op may be in the beginning of this process so in my opinion it isn't not fair for you to bash his comments. Anyway op, yes these doctors do give a rosy picture of the recovery but it is far from reality for most patients (dr R did give me rosy timelines as well). Please plan at least 1 yr for decent recovery (though again it is very individual). However better to stay on a conservative side. Good luck to you op and for everyone else reading, please remain civil in discussing this procedure Because everyone's journey starts from somewhere.

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Posted on Jan 9, 2020, 7:38 am
#23

Thank you Tiggy for your reply! And yes I read your diary as well, really great and I am impressed because you were always motivated!

Indeed if the vast majority of recovery is like Movie (as advertised by Doctor), I would do it directly.
If the vast majority of recovery is like the other diaries, I would not.

So I just have two questions before to move forward. I really hope more LL Warrior (femur, weight bearing nail) will answer :

1.  My point of creating the Topic was to know if the LL warrior who have a long recovery knows, after talking to their Doctors or other co patient, if they were the norm or the exception. That's why I am asking to LL warrior (femur, weight bearing nail) who met a lot of patient I assume (and discussed a lot with PT and Doctors) if the timeline shown by Doctors is the norm or not ?

2. Otherwise, after seiing videos of Movie, I would be really interested to hear about the other LL warriors with weight bearing nails on this forum.
Indeed, you have the same kind of nail so you know it is safe to walk, do light sports..., so what does prevent you for the same recovery ? (I am talking about normal case, not case with problem like nerve injury, non union...).

After reading all diaries and asked different Doctors, it seems it is only linked to Strenght and Flexibily. And Strenght and Flexibily you can improve by working out! So when I asked to different Doctors (more than 5), about long recovery of patient, they just told me it is because they don't workout enough. They told me if you do enough workout, you will be doing sports before the 6 month mark like Movie.
Do you feel it is fair ? Is it just because you are lazy or no time ? (no offence but it is basically what Doctors are saying).
Or does the Doctors didn't tell me the truth and there is something else who prevent you from a recovery like Movie ?


Thank you!

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Posted on Jan 9, 2020, 12:11 pm
#24

the simple point i have made and stand by is that the bone is broken, lengthened and then heals - how anyone contemplates this surgery by gaining knowledge on this site is beyond me - most people here have some kind of personality disorder and are looking to break their legs in order to resolve this - if anyone ever did lengthening one would be aware of the characters u'd meet in the clinics ie those who constantly complain, fail to commit to the advice of doctors or complete excercises, stay in bed all day, get lazy etc - i am trying to help you by emphasising NOT to rely on this site!! - i rarely access this site but u should check my posts around 4 years ago - where 2 patients were ordered to stop lengthening by their doctor and simply went to the hardware store, bought a spanner and lengthened 11cm on tibias alone!! - they then expected the doctor to solve their crippledness!!

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Posted on Jan 9, 2020, 8:04 pm
#25

Quote from: 5cm Stryde on January 09, 2020, 07:38:27 AMThank you Tiggy for your reply! And yes I read your diary as well, really great and I am impressed because you were always motivated!

Indeed if the vast majority of recovery is like Movie (as advertised by Doctor), I would do it directly.
If the vast majority of recovery is like the other diaries, I would not.

So I just have two questions before to move forward. I really hope more LL Warrior (femur, weight bearing nail) will answer :

1.  My point of creating the Topic was to know if the LL warrior who have a long recovery knows, after talking to their Doctors or other co patient, if they were the norm or the exception. That's why I am asking to LL warrior (femur, weight bearing nail) who met a lot of patient I assume (and discussed a lot with PT and Doctors) if the timeline shown by Doctors is the norm or not ?

2. Otherwise, after seiing videos of Movie, I would be really interested to hear about the other LL warriors with weight bearing nails on this forum.
Indeed, you have the same kind of nail so you know it is safe to walk, do light sports..., so what does prevent you for the same recovery ? (I am talking about normal case, not case with problem like nerve injury, non union...).

After reading all diaries and asked different Doctors, it seems it is only linked to Strenght and Flexibily. And Strenght and Flexibily you can improve by working out! So when I asked to different Doctors (more than 5), about long recovery of patient, they just told me it is because they don't workout enough. They told me if you do enough workout, you will be doing sports before the 6 month mark like Movie.
Do you feel it is fair ? Is it just because you are lazy or no time ? (no offence but it is basically what Doctors are saying).
Or does the Doctors didn't tell me the truth and there is something else who prevent you from a recovery like Movie ?


Thank you!


To answer your first question, if your recovery takes long your surgeon is not going to tell you that you are the norm if prior to surgery he was giving you rosy projections. Obviously you will be told that you are an exception. I personally haven't talked to any dr other than dr R because we clicked during my consult and I felt no need to consult with other drs. As to speaking to other patients, no 2 experiences are the same. I was told I'll be close to normal walking by around nov. I was able to walk decent but I still wobble. R told me this is because my right leg is tighter and perhaps if I spent more time stretching and doing PT post lengthening I may have been close to normal. I can't say what could have been.

This leads me to your 2nd question: I haven't been stretching or doing PT post lengthening because I simply didn't have the time. I'm in school now so it's tough to find the time given that I'm always busy either with classes or hw. However this semester I'm planning to hit the gym so hopefully I regain my strength quicker. If you read my diary you can see I'm not a lazy person in general because a lazy lengthener cannot reach 8cm without putting in all the work unless of course he/she is incredibly flexible to begin with. I personally haven't read any diaries of reaching 8cm without putting in the effort. Those who are lazy tend to quit around 6cm.

Point is no dr will tell you for sure how long your recovery will take and you can't predict how motivated you will be to put in the work to reach the 8cm mark. Even if you put in the work things may happen beyond your control that may elongate the process. You said you read my diary so you know my bone was filling in slow so what should've taken 3 months of lengthening ended up stretching to nov. Given what you've stated I believe this surgery may not be the correct path for you at this time. Any person going for it must be prepared and must be content with this potentially prolonging a long time. If you feel you will be disappointed and unhappy if the process takes longer than whatever number you have in mind, that's a sign that you are simply not ready yet. Just my opinion, but I hope it helped you somewhat. Good luck

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Posted on Jan 9, 2020, 8:11 pm
#26

when will anyone get this basic message - the bone is broken - it is totally irrelvant what doctors, patients or posters say - the bone will heal in it's own time - helped by nutrition etc or maybe not as each case differs - i repeat such a basic - the bone is broken so it will heal - irrelevant of any discussion on this site

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Posted on Jan 9, 2020, 8:11 pm
#27

lies or no lies

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Posted on Jan 9, 2020, 8:15 pm
#28

Quote from: th on January 09, 2020, 12:11:35 PMthe simple point i have made and stand by is that the bone is broken, lengthened and then heals - how anyone contemplates this surgery by gaining knowledge on this site is beyond me - most people here have some kind of personality disorder and are looking to break their legs in order to resolve this - if anyone ever did lengthening one would be aware of the characters u'd meet in the clinics ie those who constantly complain, fail to commit to the advice of doctors or complete excercises, stay in bed all day, get lazy etc - i am trying to help you by emphasising NOT to rely on this site!! - i rarely access this site but u should check my posts around 4 years ago - where 2 patients were ordered to stop lengthening by their doctor and simply went to the hardware store, bought a spanner and lengthened 11cm on tibias alone!! - they then expected the doctor to solve their crippledness!!


This is the last thing I'll say to you personally because I see that you have a very argumentative personality and I'm simply not going to contribute to that in any manner. I find it difficult to follow the point you are making in your last post. I did contemplate surgery by relying on this site exclusively over the span of 6 or so yrs. So whether it is beyond you or not is irrelevant. I'm happy with my decision and the surgery. It is life changing for myself and so many others on this forum. The personality disorder insult that you found appropriate to vomit all over this site is also uncalled for. There are extremely accomplished people on this site, myself included who have suffered from height insecurities for yrs. it is simply an insecurity. Most people in the world have some type of an insecurity about themselves that they wish to change, so characterizing them as having personality disorders is quite frankly one of the most ignorant comments I've read and it truly displays your lack of logical reasoning skills. Either way if you don't agree with a fellow member you can politely state your opinion and move on instead of spreading hearsays, insults and bombarding their thread with nonsense. Anyway good luck to you in whatever agenda you have on this forum. Hopefully you will be more decent in your choice of words in the future. Take care.

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Posted on Jan 9, 2020, 10:18 pm
#29

if u think the majority of people who have have this surgery do not have a personslity disorder is really up to you - breaking ur bones is not an insecurity - it is a form of mental illness - as in the 11cm example i have submitted but which j fail to comment on - re hearsay that's exactly what i have posted about!! - i have encouraged scientific and medical research!! - not launching adhominen sttacks!! - is paley lying?? proves the point - pure nonsense

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Posted on Jan 10, 2020, 2:04 pm
#30

Thanks a lot Tiggy for your answer and I wish you the best for the end of your recovery!!

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