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Posted on Jul 12, 2020, 4:16 pm
#51

Sorry please ignore the above, I just read your first post.

How long do you think it’ll take before you’re back to your pre-CLL mobility, normal walking endurance and flexibility?

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Posted on Jul 12, 2020, 6:30 pm
#52

So far it sounds similar to my experience when I was at 6 months the bones are still consolidating and soft tissue adjusting, that's probably why you still have knee pain and tibia pain/numbness, I'm almost at a year post op and my knee pains alternates now from left leg to right leg after doing exercise, keep it up bro, it only gets better from here. 

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Posted on Jan 2, 2021, 7:24 pm
#53

Hi guys! Some updates:

-1 year post op I can walk at 80-90%. Why not 100%? Probably because of my glutes muscles. They are still weak and it's difficult to recover them.
-Recovered almost all my legs flexibility.
-Can't run, neather I want to try yet.
-No pain for 2 months.
-I had a really bad october month, bad pain which didn't let me sleep.
-If I walk too much, maybe +1km a day, pain may come back.
-Do I think it was worthy? For now yes, but to give a better answer I'd like to wait when the metals are removed.
-I do legs exercises and can go to the gym.
-My life is totally normal, just that I can't walk too much.

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Posted on Jan 2, 2021, 7:27 pm
#54

Hey eddiemorra!

That's awesome that walking is almost normal now!!

What did you dislike the most about the place you found in Greece during lengthening and what would you look for instead if you could do it over again?

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Posted on Jan 2, 2021, 7:40 pm
#55

Quote from: SpeedDialer on January 02, 2021, 07:27:31 PMHey eddiemorra!

That's awesome that walking is almost normal now!!

What did you dislike the most about the place you found in Greece during lengthening and what would you look for instead if you could do it over again?
Hey man, honestly my place was quite good. Very near the phisiotherapy center, which is important, as you have to go almost every day.

You want to have a confortable place, with internet,  elevator, good bed... The worst for me was the feeling of isolation and lack of sleep. Pain+no sleep+isolation+not being able to walk was the worst. Maybe +the last month with the pandemy stress.

Also I lost 8-10 kg, so I would recommend to prepare a diet to maintain as much weight as you can, at least if you loose weight in an easy way.

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Posted on Jan 2, 2021, 9:26 pm
#56

Oh hmmm... What neighborhood was the physiotherapy center in and how did you like it? I've been researching different neighborhoods in Athens and never thought about this

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Posted on Jan 3, 2021, 5:18 pm
#57

Do you think something like the occulus quest 2 might be good for fighting the feeling of isolation? I'm looking into this, it looks like a good device for exploring areas in google maps and maybe doing a virtual chat w/ a family member or something

I know that burn victims use VR to distract themselves from the burn pain

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Posted on Nov 16, 2023, 2:56 pm
#58

Its been 3 years and I can see "Eddiemorra" forgot to finish his attempt of diary... so he didn't tell us when exactly removed his Strydes, how was feeling few days after and how its mobility, strength, speed, balance and weight improved few weeks later... and then years later.
Maybe he will remember to tell us all these, in details...

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Posted on Nov 18, 2023, 1:19 pm
#59

The isolation part sucks alot. I got accommodation in vietnam, Caretaker pt 5 days a week , One roommate. Still feel isolated because I don't go out. I go out like once every 2 weeks to go to the hospital and sight seeing stuff. Helps out a little.

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Posted on Nov 18, 2023, 11:29 pm
#60

 
  I would bring motovarionall books and some anti-depresant.  (not sure if is bad would have to ask but it could be a boat in the middle of the ocean.. loneliness is a key factor of bad outcome

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