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Posted on Oct 20, 2018, 2:25 pm
#1
About me
  • young
  • 1,60m
  • current goals: about 5cm height increase with external tibia TSF frames
  • later additional 5cm with Stryde
  • surgery: 15.10.18
  • lengthening start: 24.10.18
  • staying in an appartment in Athens with 2 family members

Update 1

 
Pain
I was already told that in the first days in the hospital there's less pain as they constantly give you painkillers. I feel like heaving very heavy lower legs, very bad muscle ache. Sometimes my legs feel very hot inside. My right knee was hurting in the beginning since I had a condition there before. And only on the second day my knees felt like almost bursting when I was bending them. So far it is bearable though. It's a mix of heaviness, heat, burning and pressure. (not at the same time)

Walking
On the first day, I could only move my feet a bit, not my legs. The Dr. suggested to start walking on the next day since I seemed tired.
On the second day I walked a few steps. My right foot was weaker. I'm afraid to put my whole weight there but in theory it should be doable.
On the third day morning I was very happy because I thought I improved a lot. Walked longer, had less pain. But then I was sitting on the toilet (not the first time), my knees were hurting weirdly, my left foot began tingling and becoming warmer. After I went back to my bed I noticed that a little part of my left foot was now more numb then before. And since then my left foot becomes hot and feels like burning when I walk. Now my left foot is the weaker one and walking is more difficult and painful then on the 3rd day morning. I hope it gets better soon. Maybe I was sitting wrongly. Now I try to strech my legs a little more when I'm sitting.

Side note
I feel like I'm in good hands. (Also after having met up Zakika who seems confident) Dr. Giotikas and his co-worker Dr. Giannakos are very pleasant and reliable and assure you that you're never alone during the process. The frames are really stable. I never feel insecure. The few days in the hospital were alright. The nurses make check ups constantly so I couldn't sleep for several hours in a row. It might have been because of the medication but I felt sick all the time, so I wasn't hungry either. Now in the appartment I can sleep better and eat whenever I'm hungry. (My family's food is also better) That's it for now. I will make updates every now and then when I think it makes sense. (Picture below is from the first days, now the gauze has been changed, no bleeding anymore)


Dr. Giotikas - external tibia/Stryde - Diary 2018/2019







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Posted on Oct 20, 2018, 2:35 pm
#2
Quote from: Great321 on October 20, 2018, 02:25:06 PMAbout me
  • young
  • 1,60m
  • current goals: about 5cm height increase with external tibia TSF frames
  • later additional 5cm with Stryde
  • surgery: 15.10.18
  • lengthening start: 24.10.18
  • staying in an appartment in Athens with 2 family members

Update 1

 
Pain
I was already told that in the first days in the hospital there's less pain as they constantly give you painkillers. I feel like heaving very heavy lower legs, very bad muscle ache. Sometimes my legs feel very hot inside. My right knee was hurting in the beginning since I had a condition there before. And only on the second day my knees felt like almost bursting when I was bending them. So far it is bearable though. It's a mix of heaviness, heat, burning and pressure. (not at the same time)

Walking
On the first day, I could only move my feet a bit, not my legs. The Dr. suggested to start walking on the next day since I seemed tired.
On the second day I walked a few steps. My right foot was weaker. I'm afraid to put my whole weight there but in theory it should be doable.
On the third day morning I was very happy because I thought I improved a lot. Walked longer, had less pain. But then I was sitting on the toilet (not the first time), my knees were hurting weirdly, my left foot began tingling and becoming warmer. After I went back to my bed I noticed that a little part of my left foot was now more numb then before. And since then my left foot becomes hot and feels like burning when I walk. Now my left foot is the weaker one and walking is more difficult and painful then on the 3rd day morning. I hope it gets better soon. Maybe I was sitting wrongly. Now I try to strech my legs a little more when I'm sitting.

Side note
I feel like I'm in good hands. (Also after having met up Zakika who seems confident) Dr. Giotikas and his co-worker Dr. Giannakos are very pleasant and reliable and assure you that you're never alone during the process. The frames are really stable. I never feel insecure. The few days in the hospital were alright. The nurses make check ups constantly so I couldn't sleep for several hours in a row. It might have been because of the medication but I felt sick all the time, so I wasn't hungry either. Now in the appartment I can sleep better and eat whenever I'm hungry. (My family's food is also better) That's it for now. I will make updates every now and then when I think it makes sense. (Picture below is from the first days, now the gauze has been changed, no bleeding anymore)


Dr. Giotikas - external tibia/Stryde - Diary 2018/2019
congrats buddy Dr. Giotikas - external tibia/Stryde - Diary 2018/2019
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Posted on Oct 20, 2018, 10:41 pm
#3
Quote from: Great321 on October 20, 2018, 02:25:06 PMAbout me
  • young
  • 1,60m
  • current goals: about 5cm height increase with external tibia TSF frames
  • later additional 5cm with Stryde
  • surgery: 15.10.18
  • lengthening start: 24.10.18
  • staying in an appartment in Athens with 2 family members

Update 1

 
Pain
I was already told that in the first days in the hospital there's less pain as they constantly give you painkillers. I feel like heaving very heavy lower legs, very bad muscle ache. Sometimes my legs feel very hot inside. My right knee was hurting in the beginning since I had a condition there before. And only on the second day my knees felt like almost bursting when I was bending them. So far it is bearable though. It's a mix of heaviness, heat, burning and pressure. (not at the same time)

Walking
On the first day, I could only move my feet a bit, not my legs. The Dr. suggested to start walking on the next day since I seemed tired.
On the second day I walked a few steps. My right foot was weaker. I'm afraid to put my whole weight there but in theory it should be doable.
On the third day morning I was very happy because I thought I improved a lot. Walked longer, had less pain. But then I was sitting on the toilet (not the first time), my knees were hurting weirdly, my left foot began tingling and becoming warmer. After I went back to my bed I noticed that a little part of my left foot was now more numb then before. And since then my left foot becomes hot and feels like burning when I walk. Now my left foot is the weaker one and walking is more difficult and painful then on the 3rd day morning. I hope it gets better soon. Maybe I was sitting wrongly. Now I try to strech my legs a little more when I'm sitting.

Side note
I feel like I'm in good hands. (Also after having met up Zakika who seems confident) Dr. Giotikas and his co-worker Dr. Giannakos are very pleasant and reliable and assure you that you're never alone during the process. The frames are really stable. I never feel insecure. The few days in the hospital were alright. The nurses make check ups constantly so I couldn't sleep for several hours in a row. It might have been because of the medication but I felt sick all the time, so I wasn't hungry either. Now in the appartment I can sleep better and eat whenever I'm hungry. (My family's food is also better) That's it for now. I will make updates every now and then when I think it makes sense. (Picture below is from the first days, now the gauze has been changed, no bleeding anymore)


Dr. Giotikas - external tibia/Stryde - Diary 2018/2019
gl man, looking forward to your diary
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Posted on Oct 21, 2018, 6:02 pm
#4
thank you Dr. Giotikas - external tibia/Stryde - Diary 2018/2019
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Posted on Oct 21, 2018, 10:22 pm
#5
Hey thank you for this. Im also thinking of going to Dr Giotikas. So how did they treat you? ANd how did  they treat other people there? are there a lot of short people doing CLL or is it like for medical reasons. Were they nice to you? How is the pain? Is it being less painful? Was the surgery a success?

Feel free to pm me if you want.
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Posted on Oct 22, 2018, 3:24 am
#6
Quote from: wants2growtaller on October 21, 2018, 10:22:01 PMHey thank you for this. Im also thinking of going to Dr Giotikas. So how did they treat you? ANd how did  they treat other people there? are there a lot of short people doing CLL or is it like for medical reasons. Were they nice to you? How is the pain? Is it being less painful? Was the surgery a success?

Feel free to pm me if you want.

Lol, why would he want to PM you?
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Posted on Oct 22, 2018, 4:41 pm
#7
Quote from: wants2growtaller on October 21, 2018, 10:22:01 PMSo how did they treat you? ANd how did  they treat other people there?  Were they nice to you?
In each hospital there are good and bad nurses. In general the staff of the hospital was very nice though and everyone was fluent in English. At least more heartily than German nurses..for example some of the male nurses or the Physiotherapist there called me brother which German nurses would never do. They treated the other patients in the room the same. In the beginning I was in a room with one to two old men (who didn't know about my surgery), we didn't talk (which I preferred, they couldn't speak English anyways) but when they left they wished me the best with a smile. The other patients in the hospital and their visitors will look at your legs a lot whenever you're walking around since that's not sth you usually see.

My room wasn't fit for a disabled person so they changed my room sometime after they removed my catheter, so that I didn't have a long way to a bigger bathroom.

Quoteare there a lot of short people doing CLL or is it like for medical reasons.
I didn't see any other person with frames on except for zakika whom I visited before. (He knows more about other patients of Dr. G)

QuoteHow is the pain? Is it being less painful?

I described the pain in my initial post. But pain is very subjective. Also I guess that the pain will probably highly increase once I start lengthening. Although I'm young I had other bigger medical (not cosmetical) surgeries (won't talk about them) which bound me to my bed for many months. So I was prepared to wake up completely immobile and dependent on others. I am a bit more hardened therefore. If I hadn't had the experience this surgery would have overwhelmed me especially If I hadn't had family support.

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Was the surgery a success?This can't be answered with yes or no, yet. I had no complications. But only in the future when I'll be able to walk without support, when I'll reach my height, I can tell if the surgery was a success.
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Posted on Oct 22, 2018, 9:50 pm
#8
I wish you a speedy recovery.. you are a hero
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Posted on Oct 22, 2018, 9:56 pm
#9
Thank you Honore!

Unfortunately my right ankle got swollen today (because I put too much weight on it) which makes me unable to put any weight at all on it now. Let's hope it gets better soon.
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Posted on Oct 23, 2018, 12:34 am
#10
Me as well. I hope you recover 100 percent.
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