Quote from: Antonio on December 16, 2017, 05:50:49 PMWhere have I generalized without referring to my own experience? Please elaborate as I am extremely curious to know your point of view
In the thread Limb Lengthening Methods you posted inaccurate data.
Quote from: Antonio on December 15, 2017, 09:18:16 AMFor Fitbone, I'd like to add/modify:
Cost per nail is approximately 14k USD. Can weight bear partially up to 25 kg per leg (which means that you can use crutches one week after surgery if you do one leg at a time). No additional surgery required for consolidation if there are no complications. Transmitter cable may break after prolonged lengthening (usually after 7 cm) which may require surgery to remove.
Failure rate of latest version of Fitbone nail is 12 per 10,000 or 0.12%
I already told you that the failure rates of Fitbone aren't accurate according to the Fitbone failures we have heard about in this forum: 1 failure (Helloworld), 3 failures (Musicmaker) and others.
You also talked about the wire breaking especially after 7.5 cm
QuoteTransmitter cable may break after prolonged lengthening (usually after 7 cm) which may require surgery to remove.
Was this your case? Where did you hear this inaccurate information? I know the wire was broken in some Monegal patients who had done just 6 cm, and they needed unscheduled surgeries to fix this, of course. It's true the wire can break but due to the nature of the wire, not to excessive lengthening.
I'm in touch with many bad cases of LL from all doctors (Guichet, Monegal, Betz, Mitkovic, Paley...), and these people will tell you that no LL procedure is risk free. You were lucky, but fellow patients of yours weren't, and you should respect them by not mispreading wrong information. Fitbone and Monegal aren't better than Paley and Precise or Guichet and Gnail, so don't make people believe so. All doctors have good and bad cases.
Dr. Monegal - Two stage internal Femur - Sept 2015 - Antonio
Quote from: backrandom on December 16, 2017, 08:58:31 PMIn the thread Limb Lengthening Methods you posted inaccurate data.
I already told you that the failure rates of Fitbone aren't accurate according to the Fitbone failures we have heard about in this forum: 1 failure (Helloworld), 3 failures (Musicmaker) and others.
You also talked about the wire breaking especially after 7.5 cm
Was this your case? Where did you hear this inaccurate information? I know the wire was broken in some Monegal patients who had done just 6 cm, and they needed unscheduled surgeries to fix this, of course. It's true the wire can break but due to the nature of the wire, not to excessive lengthening.
I'm in touch with many bad cases of LL from all doctors (Guichet, Monegal, Betz, Mitkovic, Paley...), and these people will tell you that no LL procedure is risk free. You were lucky, but fellow patients of yours weren't, and you should respect them by not mispreading wrong information. Fitbone and Monegal aren't better than Paley and Precise or Guichet and Gnail, so don't make people believe so. All doctors have good and bad cases.
I have answered you in the Limb lengthening methods section. I honestly think you should let people come to their own conclusions instead of generalizing about the superiority of one nail or the other, or misrepresenting my experiences and opinions
Quote from: backrandom on December 16, 2017, 05:20:21 PMThedreamer is constantly bugging patients. I don't like what he does. However, Antonio isn't right. Talking about his own experience? Yes, he can do it, but he should refrain from generalizing, since, to my knowledge, he has barely met Monegal patients. For generalizing you need a good databank of real life accounts, not Fitbone propaganda, and it's obvious you don't have it. Don't mislead people, please.
It's obvious to me that you have no clue what you are talking about
Quote from: Antonio on December 19, 2017, 12:34:56 AMI have answered you in the Limb lengthening methods section. I honestly think you should let people come to their own conclusions instead of generalizing about the superiority of one nail or the other, or misrepresenting my experiences and opinions
I never generalized. In that thread you generalized about Fitbone and you aren't right.
Quote from: Antonio on December 15, 2017, 09:18:16 AMFor Fitbone, I'd like to add/modify:
Cost per nail is approximately 14k USD. Can weight bear partially up to 25 kg per leg (which means that you can use crutches one week after surgery if you do one leg at a time). No additional surgery required for consolidation if there are no complications. Transmitter cable may break after prolonged lengthening (usually after 7 cm) which may require surgery to remove.
Failure rate of latest version of Fitbone nail is 12 per 10,000 or 0.12%
Not true according to the experiences of members in this forum. 12 per 10.000? LOL. You had no need to post those data unless you're being paid by Fitbone. That would explain why only you among Monegal patients signed that 'confidentiality agreement'. Bull . Those confidentiality agreements don't exist. Can you prove?
No matter if he signed a confidentiality agreement or not, but patient privacy should anyway be respected.
Dear antonio!
Thanks for your sharing. How are you? Did you have knee pain after removing the nail?
Thanks you and best wish.
Antonio is a bad promoter. He generalizes and don't speak the truth. Backrandom is right
Quote from: backrandom on December 16, 2017, 08:58:31 PMIn the thread Limb Lengthening Methods you posted inaccurate data.
I already told you that the failure rates of Fitbone aren't accurate according to the Fitbone failures we have heard about in this forum: 1 failure (Helloworld), 3 failures (Musicmaker) and others.
You also talked about the wire breaking especially after 7.5 cm
Was this your case? Where did you hear this inaccurate information? I know the wire was broken in some Monegal patients who had done just 6 cm, and they needed unscheduled surgeries to fix this, of course. It's true the wire can break but due to the nature of the wire, not to excessive lengthening.
I'm in touch with many bad cases of LL from all doctors (Guichet, Monegal, Betz, Mitkovic, Paley...), and these people will tell you that no LL procedure is risk free. You were lucky, but fellow patients of yours weren't, and you should respect them by not mispreading wrong information. Fitbone and Monegal aren't better than Paley and Precise or Guichet and Gnail, so don't make people believe so. All doctors have good and bad cases.
But I'd add that some doctors have more bad cases than others (Monegal)
Quote from: Unicorn888 on August 24, 2018, 08:48:25 PMI've come to a point where I truly believe that there's bad luck and then, there's also incompetence/neglect/arrogance on the part of the doctors.
Someone reminded me again about MasterHY's diary on the old MakeMeTaller site from 2013 which is quite similar to mine where we were initially so enthusiastic and in complete adulation of our doctors to discover that the moment complications happen, we all get abandoned, dismissed and swept under the rug.
So yes, there is a bunch of us... sort of hanging around haunting these doctors because of the way they handled complications. And we won't stop until we're healed no matter how many years it takes.
Quote from: raku on September 14, 2018, 05:47:20 PMDear antonio!
Thanks for your sharing. How are you? Did you have knee pain after removing the nail?
Thanks you and best wish.
Thanks raku for your best wishes. Sorry for the late reply. I am fine, I don't have any pain and I do all kinds of sports like before (weight training, running, swimming). If I can help just one person with my diary I am happy. Take care
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