Dr. Paley's New Internal Lengthening Nail..Full Weight Bearing (Almost)

Edit Post

Quote from: jbc on November 26, 2016, 11:56:00 PMI really hoped it would be out by my surgery. Looks like this won't be the case . I emailed Dr. Paley for additional details and he said he would be the first to get it, as he's the inventor.

Regarding price, I think for people who are committed to doing the surgery with Dr. Paley, this will turn out to be a non-issue, or at worst a mild irritant. I would pay 10K extra to be full weight-bearing, no question - maybe even more. I weigh 160 lbs, so I'm close even with the Precise 2.2.

If you can lose 5 lbs of fat, then with the 5-15lbs of muscle loss people experience, you'll be 150 or less probably by week 2-3. I started at 200 and dropped to 190 for example. You'll be safe to stand for 15 second to weigh yourself. They had me standing x-rays at the end. Ask Dr Packer if you want to confirm at your first biweekly checkup but once or twice standing for x-rays when over 150 is fine, but standing 100 times when over and your bend rods. So anyone starting 160 lbs or less the above advice would apply, lose 5 lbs of fat and with the muscle loss you'll get down to 150 or lower, and if new rods cost a lot more they might not be worth the added expense for you. But I agree with jbc, if it's 10k or less extra then go new rods period. After cost of rod removal, home aides, hotel, meds, extra PT sessions, exogen, etc. this all adds up to more like $125k with Paley, plus or minus 10k on how much you use an aide...

Edit Post

Hi have you heard about doing one leg at a time? It takes longer, but you have almost full mobility during the process...

Edit Post

With a risk that you can end up with leg discrepancy in a case your second leg bone won't fuse/will have poor growth etc.

Edit Post

Quote from: EndGame on November 28, 2016, 12:46:49 PMIf you can lose 5 lbs of fat, then with the 5-15lbs of muscle loss people experience, you'll be 150 or less probably by week 2-3. I started at 200 and dropped to 190 for example. You'll be safe to stand for 15 second to weigh yourself. They had me standing x-rays at the end. Ask Dr Packer if you want to confirm at your first biweekly checkup but once or twice standing for x-rays when over 150 is fine, but standing 100 times when over and your bend rods. So anyone starting 160 lbs or less the above advice would apply, lose 5 lbs of fat and with the muscle loss you'll get down to 150 or lower, and if new rods cost a lot more they might not be worth the added expense for you. But I agree with jbc, if it's 10k or less extra then go new rods period. After cost of rod removal, home aides, hotel, meds, extra PT sessions, exogen, etc. this all adds up to more like $125k with Paley, plus or minus 10k on how much you use an aide...

As of today, I'm at 8% bodyfat and 156 lbs. EndGame, you saw me in person, I don't have much more to give . One of my more acute worries with the surgery is that I'll get to an unhealthy weight. Right now, a lot of it is very useful muscle for the sports I participate in. If I drop 10 lbs, I'd *theoretically* be able to weight-bear on the Precise 2.2, at least partially (of course, I'd follow Dr. Paley and Dr. Packer's instructions to the letter regarding weight bearing).

The more I think about this, the more bummed I am that the new nail is not out. I'm not going to wait, but it would be really nice to have the functional strength of cobalt chromium with the convenience and reliability of the Precise mechanism. This is one of the things that irks me about the FDA - everything takes so long. There are no changes other than the material, and it's already been through trials, why will it be years before it sees the light of manufacture?

(also, I just looked up Exogen, didn't even know it existed. Brilliant!! EndGame, your contributions to this board have been magnificient, even if unintended on your part. I copied the caretaker's name and email address from one of your previous posts. Many thanks!!)

Edit Post

Quote from: jbc on December 02, 2016, 05:59:33 AMAs of today, I'm at 8% bodyfat and 156 lbs. If I drop 10 lbs, I'd *theoretically* be able to weight-bear on the Precise 2.2, at least partially (of course, I'd follow Dr. Paley and Dr. Packer's instructions to the letter regarding weight bearing).

The more I think about this, the more bummed I am that the new nail is not out. I'm not going to wait, but it would be really nice to have the functional strength of cobalt chromium with the convenience and reliability of the Precise mechanism.

jbc- I'm confident you already have this information and spoke at length with Dr. Paley, but given your current weight, along with the expected weight loss during lengthening, you should still be able to be fairly mobile with the PRECICE 2.2.

Edit Post

Quote from: Stadiometer on January 04, 2017, 08:02:19 PMjbc- I'm confident you already have this information and spoke at length with Dr. Paley, but given your current weight, along with the expected weight loss during lengthening, you should still be able to be fairly mobile with the PRECICE 2.2.

Hi Stadiometer,

I really hope that's the case, though the new nail would be a game-changer for me. I contacted Dr. Paley sometime back to ask for details, here is part of his reply regarding the new nail:

"The PT protocols will remain the same. The only difference will be with weight bearing. We will likely allow 100lbs per leg WITH CRUTCHES"

REALLY hoping this is out by the time I have surgery, though not holding my breath . I will not wait for years though, and will stick to the surgery date and make the Precise 2.2 work under Dr. Paley's protocols.

Edit Post

Quote from: jbc on January 05, 2017, 07:31:48 PMHi Stadiometer,

I really hope that's the case, though the new nail would be a game-changer for me. I contacted Dr. Paley sometime back to ask for details, here is part of his reply regarding the new nail:

"The PT protocols will remain the same. The only difference will be with weight bearing. We will likely allow 100lbs per leg WITH CRUTCHES"

REALLY hoping this is out by the time I have surgery, though not holding my breath . I will not wait for years though, and will stick to the surgery date and make the Precise 2.2 work under Dr. Paley's protocols.

weight bearing or not, go to the LL God with an close eyes