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Posted on Feb 18, 2017, 10:28 pm
#31


Quote from: helloworld on February 18, 2017, 04:40:47 PMI am currently a patient of Dr. Monegal, just as Auron. I do not know much about Dr. Parihar, except from this forum. I had been in touch with Guichet and Betz before. I am a PhD myself and have studied limb lengthening at length before getting it done.

So let me weigh in on the discussion.
The biggest difference is between internal and external limb lengthening. For cosmetic limb lengthening you definitely want to go with internal.
Most common internal nails are Guichet nail, Betz nail, Fitbone and Precise. I do not know which one is best, but I decided for Fitbone for these reasons:
1. developed by cooperation of Dr. Baumgart, an person that worked before together with Guichet (you can see them together on Guichet’s website) and Wittenstein, a German manufacturer of precision engines
2. Read good review
3. Dr. Monegal explained me advantages of Guichet and Betz nail, and that he also could operate with Precise, which would pay him a lot of commission for each operation, but he prefers Fitbone for medical reasons
I had a problem but I do not blame them for this. However, I still have to see if they take full responsibility for the complications, so my final judgement on Fitbone, on if they are not only good engineers but also an ethical company, is still out; they are still investigating what happend.

I decided for Dr. Monegal for these reasons:
I did not see much difference between Dr. Monegal, Betz, Guichet, Paley etc.
I talked to him and he was able to convince me of his reputation and skill

So far none of the patients that I have personally met have told me that in hindsight they might have chosen a different doctor. Even Musicmaker, a friend of mine, says she might not have done operation if she would have known complications but she would not have chosen a different doctor.

I decided against any doctor from outside Western Europe and US, because I am still a bit scared of surgery in a developing country.

Anybody, who thinks I am getting pushed by Dr. Monegal to write this, could just write me, or Auron or Musicmaker, for a private opinion.


I don't expect Auron or Musicmaker to tell the truth because they are current patients like Helloworld. That's like asking Dr Monegal himself. Waste of time

Dr Baumgart deveoped his Fitbone with Betz, not Guichet. Baumgart and Guichet have been together in LL meetings but didn't develop a nail together. You aren't as informed as you say.  Your Phd not in medicine

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Posted on Feb 18, 2017, 10:45 pm
#32

Quote from: yyes on February 18, 2017, 10:16:44 PMMy biggest concern is dying or having my legs amputated. And from what notimportant says that kind of worries me.

Do you have any sources to verify what you say notimportant?


About cinsomtide's words? See his own diary in this forum.

Quoteif the numbness stays past a few days, I'm going to be an extremely difficult  patient

no reason for numbness in this procedure, unless a mistake was made.. waiting months means ill have it forever


i don't believe in waiting and seeing...  nerve damage rarely gets better

i didn't have numbness in russia after, so  i don't accept this is just a normal occurrence

i can move all toes, etc but still... its not comfortable to have a foot that feels partly asleep

no pain either, but still


I'm going to be extremely upset if this doesn't resolve in the next day or 2

i guess my fibula was broken too, so theres a screw down there as well.. i guess this is normal

 i just want the numbness to go away,and see the x ray

truthfully, if everything else  was a success, but my ankle and foot feel asleep forever, i'm going to judge this surgery a disaster

i can have my leg operated and not have to get numb

but we will see, it's very early still... i just don't listen to drs that tell me everything is  ok,  and accept this with no problems... every single dr I've ever been to says that, even when something is not normal.. It's nothing personal against anyone, I'm just used to drs telling me wait, it'll be ok


Quotewell, the left leg is not well


i limp, and cant walk on it much, as he foot hurts

ankle arthritis doesnt really hurt yet, but limits movement.. theres definitely still a deformity in my left leg

when i walk downstairs especially, my left foot and leg go outward.

weak overall as well

I'm gonna see Paley then decide


QuoteThis will be  my last, or next to last post

I wanna give advice to the members here

I can be rude sometimes, but it's only because I know how dangerous this surgery is

Ij get very aggravated when I see   members being lied to about this surgery, or  claimed  great recoveries with zero evidence

I went through this surgery, as did others such as Sweden

My walking is still very bad, and  already had a consultation with a prosthetist, and Dr. about below the knee amputation

My push off power  has a severe deficit

I see some of these new patient  threads, and they resemble infomercials

Do not get your medical advice from this site.   

You may dislike me, but I'm telling you all the truth.

This surgery is not safe. You may get an ok outcome, you may get a very bad outcome. The odds are overwhelming that you will never be close to 100% again, and you  will realize your life has not changed as much as you thought it would

Good luck to all,

Crimson


QuoteI'll tell you another thing.  Certain Dr's become much less responsive after you announce you're leaving the forum


Cooper also said:

QuoteMonegal Issues:
1)   Dishonest: He did not disclose all the information and lied on patient count and his experience. He emailed he performed 600 bone segments. Come to find out I was third tibia patient. One of his patient told me in Spain everyone lies. His manipulates deliberately and black mailed his patient to write good things about him and defend him as often as necessary. You cannot trust this doctor and his patient specially from Spain!!!
2)   Unethical: If you are not honest than you do not have ethics. Especially in this profession you want to go to doctor who respects patient rights, if something is not right than let the patient know and possible solution to fix. Just not to say everything will be ok. You need more time.
3)   Poor Osteotomy: Most of his patient has issue with callous formation. Interesting part is all of the patient with few exceptions are lengthening less than 6cm. Still have poor bone formation. I have both fibula and tibia non-union and misalignment. Grafted both and I gained only 5.3com. I thought I did 6 but the x-ray show 5.3com.
4)   Poor logistics: When I had my surgery I was in recovery room for long time. He could not find me and went home without meeting me in person. He later phoned me to say everything went ok. They forgot to put catheter and I did not pee for long time. I screamed and used profanity to get attention at the hospital. The epidural was not turned on and I was in pain for long time. Nursed blamed me tempering with epidural and told monegal I shut it off.
5)   Pain management: I was in 10/10 pain level during first night. The worst pain of my life. Nurses and caretaker does not know how to manage pain. Their respond will be ‘that is normal’. On my last two surgery my pain level never went more than 2/3.
6)   Fibula bone: For monegal fibula bone is not important and ok to have non-union. Even mentioned he can take fibula bone put some place else for bone lengthening while I was in Spain. Fibula is sort of extra bone put in reserve. Such a stupid comment coming from surgeon. His action is not to do anything regarding my fibula non-union.
7)   Forum: He is using forum to fish new patient and anyone raised flag he tries to shut him off either by himself or through his patient. He gets mad to his patient if anyone writes bad thing and continuously monitor forum thread. He probably spends more time in forum than any of us out here.
Dr Parihar vs Dr Monegal   His Patients: most of his patients are good people by heart. We all come from same height neurosis industry and wanting to get taller. I feel forum is fraternity to support each other. This doctor is exploiting forum to his advantage. We need to stop him. I am still in contact with few of them. They need him to fix the issue, correct whatever complication and have to oblige whatever he asks them to write. I would not be surprised if few of his patients come to this thread and try to defend him.
9)   Complication: Almost all of his patient has some complications. Many of them cannot walk without crutches. Complications includes but not limited to premature fitbone fracture, fitbone malfunctions, loose screws, serious nerve issue, misalignment and unkown. Unknown are other complications which patient does not know because they have not seen other LL specialist.

Suggestion to Forum Moderator:

Ban monegal effective immediately and stop any patient going to him wherever possible. If I can save one life, leg or limb than I feel my diary has serve good for this community. Why let dishonest/crook surgeon come to forum and exploit the harmony of forum and most importantly destroyed people lives. I intentionally write ‘lives’ because it is not only one patient it’s the entire family involve.


Complications are well known by everybody in this forum

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Posted on Feb 18, 2017, 11:01 pm
#33

Quote from: notimportant on February 18, 2017, 10:45:07 PMAbout cinsomtide's words? See his own diary in this forum.

Cooper also said:

Complications are well known by everybody in this forum


Wow. Thank you for this.


Did these patients provide proof? X-rays, documents, pics, etc?

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Posted on Feb 18, 2017, 11:01 pm
#34

Quote from: notimportant on February 18, 2017, 09:58:06 PMHe did LL in India and had complications. Dr Monegal offered to fix him for a price. He had his surgery and while in hospital he complained in the forum about not feeling his leg. Dr Monegal came to his room to yell at him for writing that in the forum. Cinsotide has complained in the board Dr Monegal doesnt' answer when he can't take profit of him.


He did fix him in the end though... Atleast that's what Crimsone said (or atleast what I understood)

Edit: Also, dont mix difficulties during treatments with end result.. If we would consider difficulties during lengthening than all doctors would be considered  ty in every kind of surgery ever (from LL to rhinoplasty)

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Posted on Feb 19, 2017, 2:24 pm
#35

Doctor monegal is a very good option.
The problem in this surgery is the recovery,it is very long.

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Posted on Feb 19, 2017, 3:51 pm
#36

Quote from: paco1 on February 19, 2017, 02:24:55 PMDoctor monegal is a very good option.
The problem in this surgery is the recovery,it is very long.


Have you had experience with monegal paco?

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Posted on Feb 19, 2017, 4:20 pm
#37

Yes this guy had experience in tibia with Dr Monegal some years ago. His screw was loose. He hid this fact and Cooper was angry he was a liar like Musicmaker. Spanish people liars. Then Pacos' nail was broken and leg deformed and nail had to be replaced. He posted in Spanish in the forum about this. Then Musicmaker replied and their messages of both were deleted. So weird. Cinsomtide explained the case in one post.

Are you recoveedr after so many years Paco?

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Posted on Feb 19, 2017, 8:19 pm
#38

An image is worth more than a thousand words.
This week i'm doing one video and you can do your own conclusion.

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Posted on Feb 19, 2017, 10:13 pm
#39

The quotes notimportant has found in those users threads are quite concerning. It's not fair to state that he's a liar when he's literally quoting other users who have been with Monegal who have stated their complications - the comment about CrimsonTide considering amputation was especially alarming, how you will likely never be near 100% and always have issues - why would he say this if he wasn't being honest?

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Posted on Feb 20, 2017, 11:39 am
#40

Quote from: notimportant on February 18, 2017, 10:28:34 PMI don't expect Auron or Musicmaker to tell the truth because they are current patients like Helloworld. That's like asking Dr Monegal himself. Waste of time


By your logic then, 99,99% of the diaries here by current patients of Paley, Guichet, Parihar, etc are a waste of time?

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