Quote from: hillary on January 17, 2018, 05:07:42 PMWhy dint you choose dr parihar? Why paley?
What do you think of dr mangal parihar?
Already answered here, first paragraph.
Quote from: alps on December 05, 2017, 06:57:30 PMWere you told about this before?
Yes, I was.
Quote from: alps on December 05, 2017, 06:57:30 PMThat's a little concerning.
Surgery is hard and stressful for the surgeon too. I find it reassuring that there are two doctors operating on me at the same time, rather than one getting tired after the first leg and being more error-prone on the second.
Puru, I wanted to read your AMA but saw that you've deleted all your posts. Curious as to why you decided to do that. Privacy concerns? But you did start the AMA in the first place, so I wonder what happened. I'm contemplating being rather public about my surgery, as all my friends know (why not? if they disapproved, they wouldn't be my friends), but happy to hear arguments to the contrary.
I don't know about the Indian culture specifically, but in Silicon Valley, people are super open (and intrigued even) by leg extension surgery and other cosmetic procedures (e.g. Miradry to reduce underarm sweat). The transhumanist movement and all that. Also, employers aren't legally allowed to inquire as to the nature of your medical leave (as if anyone cared; devs are worth their weight in gold).
Quote from: hillary on January 17, 2018, 05:07:42 PMVery happy for you purshottam
Why dint you choose dr parihar? Why paley?
What do you think of dr mangal parihar?
I am planning on doing my cll with him
As Android mentioned, logistically it would be hard for me and my family to stay in India for 3 months. The cost difference between 50k and 90k isn't very much if you are making loan installments.
Quote from: fivefive on January 17, 2018, 10:29:41 PMYes, I was.
Surgery is hard and stressful for the surgeon too. I find it reassuring that there are two doctors operating on me at the same time, rather than one getting tired after the first leg and being more error-prone on the second.
Puru, I wanted to read your AMA but saw that you've deleted all your posts. Curious as to why you decided to do that. Privacy concerns? But you did start the AMA in the first place, so I wonder what happened. I'm contemplating being rather public about my surgery, as all my friends know (why not? if they disapproved, they wouldn't be my friends), but happy to hear arguments to the contrary.
I don't know about the Indian culture specifically, but in Silicon Valley, people are super open (and intrigued even) by leg extension surgery and other cosmetic procedures (e.g. Miradry to reduce underarm sweat). The transhumanist movement and all that. Also, employers aren't legally allowed to inquire as to the nature of your medical leave (as if anyone cared; devs are worth their weight in gold).
I deleted the AMA for 2 reasons:
1. Privacy. Reddit is a much bigger forum vs LL Forum. I would highly advise against telling others you got LL.
2. I got a lot of abusive responses on that sub. I made a follow up AMA a month after the original. I just talked about my recovery. People were not happy about it. So I figured that if anyone wanted to ask questions they can ask here.
Quote from: Purushrottam on January 18, 2018, 05:30:27 AMI got a lot of abusive responses on that sub. I made a follow up AMA a month after the original. I just talked about my recovery. People were not happy about it. So I figured that if anyone wanted to ask questions they can ask here.
Yeah, no kidding. I was lurking in that thread and upvoting the good responses, but it's harsh on that sub. Some are genuinely curious about CLL, plenty are supportive even if they won't consider surgery, but the signal to noise ratio favors the anti-CLL crowd. It's not a pleasant place to share your journey unless you have very thick skin.
Unlike celebrity AMAs which have assistants picking and choosing questions for the stars to answer, we're just one person, and there's only so much negativity you can take especially when you're still healing. Last thing you need is a mob ganging up to tell you that you're stupid for making such and such decision.
If I ever share my experience on Reddit, it'll be a long post after consolidation via throwaway account.
Glad you're here, glad you shared.
Quote from: Android on January 18, 2018, 06:43:37 AMYeah, no kidding. I was lurking in that thread and upvoting the good responses, but it's harsh on that sub. Some are genuinely curious about CLL, plenty are supportive even if they won't consider surgery, but the signal to noise ratio favors the anti-CLL crowd. It's not a pleasant place to share your journey unless you have very thick skin.
Unlike celebrity AMAs which have assistants picking and choosing questions for the stars to answer, we're just one person, and there's only so much negativity you can take especially when you're still healing. Last thing you need is a mob ganging up to tell you that you're stupid for making such and such decision.
If I ever share my experience on Reddit, it'll be a long post after consolidation via throwaway account.
Glad you're here, glad you shared.
Yeah. That was a forum for people to deal with being short. This is a forum for people who are specifically interested in LL. So I figured that I could just answer questions here instead.
Update:
I no longer need my crutches. My walking is swayed due to weak glute muscles. Now that I am mostly healed bone wise, I'm going to focus my full efforts on regaining my flexibility and strength.
I've been hitting the gym almost every day, but the exercises I do are pretty limited. I want to be able to lift weights and do lunges.
I'm sending another set of X-Rays to Paley on Wednesday to ask whether or not I can lift weights/do lunges at the gym. Currently my workouts consist of just doing chest/shoulder/tricep pulls + exercise bikes.
Once my walking sway goes down, I'll start meeting my old friends. Then I will know if my height increase has been obvious (hopefully not).
Quote from: Purushrottam on January 22, 2018, 02:41:39 AMYeah. That was a forum for people to deal with being short. This is a forum for people who are specifically interested in LL. So I figured that I could just answer questions here instead.
Update:
I no longer need my crutches. My walking is swayed due to weak glute muscles. Now that I am mostly healed bone wise, I'm going to focus my full efforts on regaining my flexibility and strength.
I've been hitting the gym almost every day, but the exercises I do are pretty limited. I want to be able to lift weights and do lunges.
I'm sending another set of X-Rays to Paley on Wednesday to ask whether or not I can lift weights/do lunges at the gym. Currently my workouts consist of just doing chest/shoulder/tricep pulls + exercise bikes.
Once my walking sway goes down, I'll start meeting my old friends. Then I will know if my height increase has been obvious (hopefully not).
congrats on the healthy bone consolidation and wish you a nice recovery man.
can you upload x ray? i think you said you were gnna upload
also, do your proportions look good?
Quote from: MirinHeight on January 22, 2018, 04:12:04 AMcongrats on the healthy bone consolidation and wish you a nice recovery man.
can you upload x ray? i think you said you were gnna upload
also, do your proportions look good?
Hey Mirin,
Thanks! I'm a bit hesitant about uploading any files for privacy reasons. Image file metadata can give me away (even if I use a hosting site like imgur).
Quote from: Purushrottam on January 23, 2018, 03:48:35 AMI'm a bit hesitant about uploading any files for privacy reasons. Image file metadata can give me away (even if I use a hosting site like imgur).
How about you sketch your legs for us in Paint?
Quote from: Android on January 23, 2018, 05:27:27 AMHow about you sketch your legs for us in Paint?
Haha funny 
. I was thinking of uploading a screenshot of my x-rays (it would be a .png file). However the file would still contain metadata about my computer.
Quote from: Purushrottam on January 23, 2018, 06:08:53 AMHaha funny . I was thinking of uploading a screenshot of my x-rays (it would be a .png file). However the file would still contain metadata about my computer.
Then upload it from a library computer haha man i dont think somebody would go to that extend in trying to find out who you are.
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