Quote from: Purushrottam on January 23, 2018, 06:08:53 AMHaha funny 
. I was thinking of uploading a screenshot of my x-rays (it would be a .png file). However the file would still contain metadata about my computer.
Puru, you're a programmer, right? I'm surprised you didn't know that PNG files don't have interesting metadata, let alone about your computer. You could even take a screenshot of the X-rays and paste it at https://imgur.com or https://snag.gy, without any metadata possibly being leaked.
(Not sure if the image you posted earlier was of the X-ray; I only saw the link now and the image appears to have been deleted.)
I'm considering going public about my surgery. Yes, it may polarize people, but as our friend Dr. Seuss says, "those who matter don't mind, and those who mind don't matter". I don't care if some randoms on reddit are anti-CLL. I've told all my friends about my intention to have leg extension surgery and 95% were supportive (asked questions, offered to visit etc.) Those who weren't supportive wouldn't be good friends anyway, right? HIPAA protects you from having to tell your boss, but I told my boss anyway and he was supportive too. Re. women - you'll want to tell your gf at some point. If she has a problem with that - huge red flag. So not a reason either.
I'm being anonymous for now by default, and because everyone here has been anonymous. However, it's not clear to me why I wouldn't want to go public. Give me some reasons against being public about CLL.
Puru, you said you've faked confidence during interviews. You want real confidence? Own it. Tell people you took matters into your own hands, 𝒕𝒐𝒍𝒅 𝒚𝒐𝒖𝒓 𝒈𝒆𝒏𝒆𝒕𝒊𝒄𝒔 𝒕𝒐 𝒇𝒖𝒄𝒌 𝒐𝒇𝒇, and worked hard to become a taller man. Confidence comes from accomplishments. Every challenge we face, successful or not, is building our confidence. We only get one life. This is it. This is you.
Those who can't understand are showing a lack of empathy, and can sod off. Your drive to get the money and the courage to go through with surgery, show much more about your character than how long your legs happened to be in the genetic lottery.
Femoral Lengthening with Dr. Paley
I agree with everything you've said, fivefive, but the thing about being public about CLL is how public you intend to make it, and how famous you are. If it's just to the people in your life, I don't see a problem. Like you said, everyone who can't at least show empathy can beat it. The main problem is that beating your genetics and becoming taller sadly isn't an easy process yet, and more sadly, there are a bunch of money hungry, bad doctors willing to perform CLL. If a famous person went public with CLL, there's bound to be a bunch of youngsters butchering themselves with doctors like those. If people could only do CLL with Paley, I would see much less of a problem with anyone famous going public about it. The bad cases that would happen would be mostly ascribable to the bad luck and few bad cases that are inherent to life and the medical world, rather than general malpractice, incompetence, and negligence. I'd still have a small problem with it, but it'd be lessened a lot.
One century from now it'll be easy to increase your height and beat your genetics without much problem, although it'll still be costly. By then, I'd hope some of the people, including the famous ones, going through the easier CLL processes won't be shy about it. Creating a world where people can beat their genetics and be judged mostly by their character, rather than their looks, just seems a superior option than not.
Quote from: fivefive on February 08, 2018, 08:25:55 AMPuru, you're a programmer, right? I'm surprised you didn't know that PNG files don't have interesting metadata, let alone about your computer.
To be fair, not every programmer knows everything about a computer. For instance, many programmers don't know how to make a website even though they can make full-blown applications. And if you want to stay anonymous, doxxing is a reality and it's something you want to avoid. Better safe than sorry.
About anonymity, it's case by case. We're all different after all: some don't use social media, some lurk, some post food photos, some post selfies, some share every thought. We share personal information in varying degrees, and they're all fine.
I've told a couple people about my CLL plans, but I don't plan to go public. Don't ask, don't tell, but I won't deny. I mean, it's impossible growing at my age anyway!
There was some error with this post. Mods, can you please delete this specific comment?
Quote from: fivefive on February 08, 2018, 08:25:55 AMPuru, you're a programmer, right? I'm surprised you didn't know that PNG files don't have interesting metadata, let alone about your computer. You could even take a screenshot of the X-rays and paste it at https://imgur.com or https://snag.gy, without any metadata possibly being leaked.
(Not sure if the image you posted earlier was of the X-ray; I only saw the link now and the image appears to have been deleted.)
I'm considering going public about my surgery. Yes, it may polarize people, but as our friend Dr. Seuss says, "those who matter don't mind, and those who mind don't matter". I don't care if some randoms on reddit are anti-CLL. I've told all my friends about my intention to have leg extension surgery and 95% were supportive (asked questions, offered to visit etc.) Those who weren't supportive wouldn't be good friends anyway, right? HIPAA protects you from having to tell your boss, but I told my boss anyway and he was supportive too. Re. women - you'll want to tell your gf at some point. If she has a problem with that - huge red flag. So not a reason either.
I'm being anonymous for now by default, and because everyone here has been anonymous. However, it's not clear to me why I wouldn't want to go public. Give me some reasons against being public about CLL.
Puru, you said you've faked confidence during interviews. You want real confidence? Own it. Tell people you took matters into your own hands, 𝒕𝒐𝒍𝒅 𝒚𝒐𝒖𝒓 𝒈𝒆𝒏𝒆𝒕𝒊𝒄𝒔 𝒕𝒐 𝒇𝒖𝒄𝒌 𝒐𝒇𝒇, and worked hard to become a taller man. Confidence comes from accomplishments. Every challenge we face, successful or not, is building our confidence. We only get one life. This is it. This is you.
Those who can't understand are showing a lack of empathy, and can sod off. Your drive to get the money and the courage to go through with surgery, show much more about your character than how long your legs happened to be in the genetic lottery.
Hello fivefive,
I am indeed a programmer. Unfortunately I didn't know the specifics about file formats what metadata they store.
Going public about LL is not a problem for some people. However my personal choice is to not go public about it. Either choice is good. I'm afraid we have differing opinions on this. Once the scars are gone, its not that obvious that someone had LL.
Quote from: myloginacct on February 08, 2018, 04:09:02 PMI agree with everything you've said, fivefive, but the thing about being public about CLL is how public you intend to make it, and how famous you are. If it's just to the people in your life, I don't see a problem. Like you said, everyone who can't at least show empathy can beat it. The main problem is that beating your genetics and becoming taller sadly isn't an easy process yet, and more sadly, there are a bunch of money hungry, bad doctors willing to perform CLL. If a famous person went public with CLL, there's bound to be a bunch of youngsters butchering themselves with doctors like those. If people could only do CLL with Paley, I would see much less of a problem with anyone famous going public about it. The bad cases that would happen would be mostly ascribable to the bad luck and few bad cases that are inherent to life and the medical world, rather than general malpractice, incompetence, and negligence. I'd still have a small problem with it, but it'd be lessened a lot.
One century from now it'll be easy to increase your height and beat your genetics without much problem, although it'll still be costly. By then, I'd hope some of the people, including the famous ones, going through the easier CLL processes won't be shy about it. Creating a world where people can beat their genetics and be judged mostly by their character, rather than their looks, just seems a superior option than not.
You are right I suppose. I'm not sure how to respond to that.
Quote from: Android on February 08, 2018, 07:44:38 PMTo be fair, not every programmer knows everything about a computer. For instance, many programmers don't know how to make a website even though they can make full-blown applications. And if you want to stay anonymous, doxxing is a reality and it's something you want to avoid. Better safe than sorry.
About anonymity, it's case by case. We're all different after all: some don't use social media, some lurk, some post food photos, some post selfies, some share every thought. We share personal information in varying degrees, and they're all fine.
I've told a couple people about my CLL plans, but I don't plan to go public. Don't ask, don't tell, but I won't deny. I mean, it's impossible growing at my age anyway!
True. I know very little about how operating systems work (something I'm working to fix with all the free time I have ).
My specific expertise is in AI (Machine Learning). Our field is so vast and diverse that people in one specific discipline of computing may not know much about other disciplines (ie. a web developer may not necessarily know much about OS implementations).
You are right that one can never be too careful with regards to doxxing. Even posting on this forum puts you at risk. Its a balance between informing other potential LL-ers about the experiences and staying anonymous.
---
Update coming in a few minutes.
Update
This is about 4.5 months post op (Surgery was Sept 26th 2017) and 2.25 months post lengthening (stopped lengthening December 1st 2017).
My gait is normal. I no longer sway when I walk. However, when I get up from sitting down for a while, I sway for a bit. I am able to walk at least 1 mile (on uneven terrain) without swaying (keeping proper gait).
I can now also go up and down the stairs normally (without having to hold on to the railing).
I lift weights occasionally (I carry up to 10 lbs at a time. I can probably carry more but I don't want to risk it). However, my most effective workout is just walking. Right now, just doing 1 mile of walking is enough to tire me out (muscles get sore).
I will ask if I can lift heavier weights/jog on my next X-ray (last week of February).
I went to another party and several people (who used to be my height) definitely commented that I look taller. So I suppose people do notice. I just brushed it off. Oh well. The big test will be when I see my friends who I have known for a long time. I still avoided them while I was recovering.
On the job front, I'm still looking. The process is very slow. I'm in the second/third round of interviewing for most of the companies that I was interviewing for in the last update. I have a few job offers but they are for backup.
Quote from: Purushrottam on February 09, 2018, 02:49:45 AMUpdate
This is about 4.5 months post op (Surgery was Sept 26th 2017) and 2.25 months post lengthening (stopped lengthening December 1st 2017).
My gait is normal. I no longer sway when I walk. However, when I get up from sitting down for a while, I sway for a bit. I am able to walk at least 1 mile (on uneven terrain) without swaying (keeping proper gait).
I can now also go up and down the stairs normally (without having to hold on to the railing).
I lift weights occasionally (I carry up to 10 lbs at a time. I can probably carry more but I don't want to risk it). However, my most effective workout is just walking. Right now, just doing 1 mile of walking is enough to tire me out (muscles get sore).
I will ask if I can lift heavier weights/jog on my next X-ray (last week of February).
I went to another party and several people (who used to be my height) definitely commented that I look taller. So I suppose people do notice. I just brushed it off. Oh well. The big test will be when I see my friends who I have known for a long time. I still avoided them while I was recovering.
On the job front, I'm still looking. The process is very slow. I'm in the second/third round of interviewing for most of the companies that I was interviewing for in the last update. I have a few job offers but they are for backup.
thats an amazing recovery bro!
Congrats on recovering so quickly! Any tips on fixing your gait? I recently had LL done as well and am starting to walk and my gait is pretty bad, my hips sway alot. Is it just a matter of walking as much as possible, did you do any stretches to fix the hip sway?
Awesome update, glad you're recovering so well. Your friends are in for some confusing moments. Good luck on your interviews!
Quote from: ShortLivesMatter on February 09, 2018, 06:27:32 AMCongrats on recovering so quickly! Any tips on fixing your gait? I recently had LL done as well and am starting to walk and my gait is pretty bad, my hips sway alot. Is it just a matter of walking as much as possible, did you do any stretches to fix the hip sway?
Not Puru, but I'd try these exercises.
Quote from: Purushrottam on December 05, 2017, 05:40:27 PMI am finishing up my last week of therapy. They are teaching me to use crutches up and down the stairs.
Puru, that post I quoted above was 2.5 months in. You were walking with crutches during lengthening, right? Just not up and down the stairs.
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