Femur Journey with Dr. Paley 11/9/2021

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Day 5: everything is good and normal. Today, I had my number 2 twice for first time since surgery. Also, I’m discharged from the hospital. The caregiver who picked me up from the hospital to my hotel was gorgeous like a Victoria Secret model. She gave me a ride to my hotel with her fancy Range Rover. She said that she used to work at a large corporation but started a caregiver company with a partner. She was probably referring to JP Morgan or some kind of large investment banks. The experience with this gorgeous lady also help remind me one of the key reasons of the surgery: to find a great and gorgeous wife after I become taller physically and mentally.

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Day 6: Today, I did a reflection on my surgery experience. Before the surgery, I had lots of ideas about what's life like after the surgery by reading journals from lots of other people on the forum. I thought I'd go through the similar experiences. However, it turned out that my experiences are so different from others.

Before the surgery, I thoughts:
1. I'll have a   ton of pain like level 9 or 10 after surgery.
2. My brain won't work on any work or planning on my laptops.
3. I'll probably need to take oxy and possibly develop the risk of addiction.

After the surgery, what happened so far is that:

1. My pain level is 2-5, not like some other posts stating VERY PAINFUL on the forum.
2. My brain could actually work on pretty complex cognitive tasks just a few days if not a few hours after the surgery (especially with the help of just one cup of coffee)
3. I didn't even take oxy even after I moved to the hotel for more than a day and night.

Those experiences above are good surprises. So far, I really just had one small negative surprise, which is the passing out twice on the days right after surgery because of the surgery damage to my body. This negative surprise is very short-term and also positive too because I learned the value of life. Before I passed out, I took life for granted because I had never really passed out in a hospital with a nurse asking me "are you with me?" before. It felt like I was dead for a few seconds in a movie or something lol The passing-out experience taught me how amazing life is. After I recovered, the passing out reminded me that life is limited so we must do what matters to us. What truly matters to me is to find a wife to build a future big family. I also realized that all the seemingly huge discomfort/stress from my job is as tiny as a little star in the universe after you passed out and survived again. 

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Hey TakingAction,

Amazing perspective. I am curious approximately how old you are if you're okay with sharing that. You are with one of the best and have great chances of a full recovery.

If you get a chance, can you ask Paley or Robbins about the probability of developing a pulmonary embolism? One in how many people get it and how many of those end up with severe long term problems or death? I am trying to consolidate these numbers for everyone to read in a different thread. I haven't had a chance to talk to Paley so just wanted to request you.

Thank you

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Quote from: TakingAction on November 14, 2021, 06:19:50 PMDay 6: Today, I did a reflection on my surgery experience. Before the surgery, I had lots of ideas about what's life like after the surgery by reading journals from lots of other people on the forum. I thought I'd go through the similar experiences. However, it turned out that my experiences are so different from others.

Before the surgery, I thoughts:
1. I'll have a   ton of pain like level 9 or 10 after surgery.
2. My brain won't work on any work or planning on my laptops.
3. I'll probably need to take oxy and possibly develop the risk of addiction.

After the surgery, what happened so far is that:

1. My pain level is 2-5, not like some other posts stating VERY PAINFUL on the forum.
2. My brain could actually work on pretty complex cognitive tasks just a few days if not a few hours after the surgery (especially with the help of just one cup of coffee)
3. I didn't even take oxy even after I moved to the hotel for more than a day and night.

Those experiences above are good surprises. So far, I really just had one small negative surprise, which is the passing out twice on the days right after surgery because of the surgery damage to my body. This negative surprise is very short-term and also positive too because I learned the value of life. Before I passed out, I took life for granted because I had never really passed out in a hospital with a nurse asking me "are you with me?" before. It felt like I was dead for a few seconds in a movie or something lol The passing-out experience taught me how amazing life is. After I recovered, the passing out reminded me that life is limited so we must do what matters to us. What truly matters to me is to find a wife to build a future big family. I also realized that all the seemingly huge discomfort/stress from my job is as tiny as a little star in the universe after you passed out and survived again.

Hey TA , Glad hearing you are doing good .
Are other CLL around you (if you had a chance to talk with them) having/had same experience as you pain wise ?
The pain post-OP is something  so debated and having a more linear updated review by latest CLL diares would be amazing .

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Quote from: phd on November 14, 2021, 08:38:35 PMHey TakingAction,

Amazing perspective. I am curious approximately how old you are if you're okay with sharing that. You are with one of the best and have great chances of a full recovery.

If you get a chance, can you ask Paley or Robbins about the probability of developing a pulmonary embolism? One in how many people get it and how many of those end up with severe long term problems or death? I am trying to consolidate these numbers for everyone to read in a different thread. I haven't had a chance to talk to Paley so just wanted to request you.

Thank you

In my early 30s.

So the probability of PE is 0.00% stated on the Paley guidebook which you can easily get from them. However, one in more than one hundred people get Deep Vein Thrombosis (DVT) after Paley did the surgery (before COVID). Paley didn't release data for DVT during COVID but it says that it's higher in the following statement.

"DVT can occur after any orthopedic surgery or after
any fracture. Fortunately, we have a very low rate of
this complication (1%). For unexplained reasons we
found that the risk of DVT rose in 2020 compared
to prior to 2020. The only difference from prior
years was COVID19. While all the patients tested
negative before surgery to COVID19, we do know
that COVID19 does increase the risk of coagulation
related problems . Prevention is key. We use Xarelto
as an outpatient until the end of the consolidation
phase when the patient stops using crutches and
resumes full weight bearing. While we have seen
very few cases of DVT, none resulted in pulmonary
embolism (PE). PE occurs if the clot dislodges and
wanders to the lungs. It can cause shortness of
breath, chest pain, and even death. This is why
we are careful to protect against this. Taking oral
contraceptives and smoking increases the risk of
DVT." (Page 25, Paley STATURE LENGTHENING GUIDE BOOK)

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"Are other CLL around you (if you had a chance to talk with them) having/had same experience as you pain wise ?"

Yes, I met one man who is great pain of 6-9 level, and he took oxy. But he didn't pass out like I did twice after surgery. So everyone has good luck and bad luck. Personally, I like the passing out experience more than the pain or oxy risk.

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Quote from: TakingAction on November 14, 2021, 09:51:41 PM"Are other CLL around you (if you had a chance to talk with them) having/had same experience as you pain wise ?"

Yes, I met one man who is great pain of 6-9 level, and he took oxy. But he didn't pass out like I did twice after surgery. So everyone has good luck and bad luck. Personally, I like the passing out experience more than the pain or oxy risk.

Seems for real based on luck...we will never know till we go trough ig , glad you had a good experience

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Yeah, luck is probably 20%. My passing out experiences are not necessarily good because some people including me didn’t want that near-death experience at least during those breathless moments.

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Quote from: TakingAction on November 14, 2021, 10:23:43 PMYeah, luck is probably 20%. My passing out experiences are not necessarily good because some people including me didn’t want that near-death experience at least during those breathless moments.
Ye ..that might have been tough..

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Quote from: TakingAction on November 14, 2021, 09:46:45 PMIn my early 30s.

So the probability of PE is 0.00% stated on the Paley guidebook which you can easily get from them. However, one in more than one hundred people get Deep Vein Thrombosis (DVT) after Paley did the surgery (before COVID). Paley didn't release data for DVT during COVID but it says that it's higher in the following statement.

"DVT can occur after any orthopedic surgery or after
any fracture. Fortunately, we have a very low rate of
this complication (1%). For unexplained reasons we
found that the risk of DVT rose in 2020 compared
to prior to 2020. The only difference from prior
years was COVID19. While all the patients tested
negative before surgery to COVID19, we do know
that COVID19 does increase the risk of coagulation
related problems . Prevention is key. We use Xarelto
as an outpatient until the end of the consolidation
phase when the patient stops using crutches and
resumes full weight bearing. While we have seen
very few cases of DVT, none resulted in pulmonary
embolism (PE). PE occurs if the clot dislodges and
wanders to the lungs. It can cause shortness of
breath, chest pain, and even death. This is why
we are careful to protect against this. Taking oral
contraceptives and smoking increases the risk of
DVT." (Page 25, Paley STATURE LENGTHENING GUIDE BOOK)

Thank you for the reply. Is this guidebook given only to patients? Is it something that is not allowed to be distributed to outsiders?