If you do femurs, seating on wheelchair is not a fun experience for the first few weeks. Your legs will be swollen for at least 3 weeks and it’s really uncomfortable to sit on wheelchair or any chairs too long because you are putting more pressure on the back of your upper legs while sitting. It would be wise to live closer to Paley institute. I’m not sure if you’ve done research on cost of airbnb. It’s not cheap especially if you want to live closer and you don’t drive or have someone driving. And airbnb can be tricky. You have to make sure there’re no steps. I rented a single story house to avoid steps but there’s one single step in front of the door so my dad had to lift my wheelchair in & out. And since the house is not designed for wheelchair, I can’t even navigate to my room! (My dad again has to lift both me and my wheelchair a little bit to move me to my room…) My bathroom is also not big enough for wheelchair. I think airbnb is just too tricky. The main reason I’m renting it is I need a big place for my parents and my pets. Paley’s shuttles are free and wheelchair accessible, so it might actually be the cheaper option for you. I think they come every 20 mins so its super convenient. Last year Paley’s recommended hotel was 90 something a night, probably not a big deal comparing to the 100k surgery cost… And good luck with your surgery bro! I’m doing tibias so ill meet you in person in Nov!!
Femur Journey with Dr. Paley 11/9/2021
Thank you for all of your suggestions! Do you remember what time did you need to be at the hospital with Paley? I saw some people wrote 7am, 6am, or even 5am! My concern is that I won't have a good sleep before the surgery, and I might be put on a ventilator during the surgery if my body is not well-rested?
Quote from: TakingAction on October 25, 2021, 12:06:56 PMThank you for all of your suggestions! Do you remember what time did you need to be at the hospital with Paley? I saw some people wrote 7am, 6am, or even 5am! My concern is that I won't have a good sleep before the surgery, and I might be put on a ventilator during the surgery if my body is not well-rested?
The hospital will call you a few days before the surgery and go over all the details.
Most people would not have a good sleep (or any sleep at all) the night before the surgery due to obvious reasons. This is not a problem. Ventilator is very unlikely unless you have a major complication.
Ok, what time did you or other Paley patient get up in the moring of the surgery day? 5am?
Also, I saw your questions on the post of Feb 19, which are very similar to my questions:
"If my company asks me to travel again in August & September, do you think I will have ample time to consolidate and resume walking? Probably will do tons of recovery workout and eat lots of food to speed it up.
In addition, as a 150lbs male, if I have the chance to get the largest nail (12.5, fatigue load is 146 lbs), I should be able to "barely walk" immediately after the lengthening period?"
I also have 151Ibs. Did you "barely walk" immediately after the lengthening period? How long did it take you to resume walking? I hope you can at least walk or take a few stairs at the airport and come back home without assistance.
Quote from: TakingAction on October 17, 2021, 07:56:23 PMHey Y'all, I am going to start my LL journey with Dr Paley. My surgery is scheduled on Nov 9 2021. Internal femurs. I'll be happy to receive help, suggestions, advice, and will keep you guys updated, ups and downs, during the course of lengthening, to help future LL'ers in any way I can. This journal can probably help both you and me. I am going to hire a nurse for first 15-18 days to assist me with moving around and stuff.
Currently emailing some home owners for short-term 3 month rentals or condo in West Palm Beach. Any suggestions for me?
Any reasons why you don’t wanna wait for Stryde return?
I am also considering internal femur but using Precice i am afraid of:
1. Breaking the nail if accidentally putting too much weight on one leg (although i am only 137 lbs)
2. Not achieving maximum length 8cm with Precice. While with Stryde, achieving 8cm is like the norm.
Quote from: TakingAction on October 27, 2021, 01:31:34 AMOk, what time did you or other Paley patient get up in the moring of the surgery day? 5am?
Also, I saw your questions on the post of Feb 19, which are very similar to my questions:
"If my company asks me to travel again in August & September, do you think I will have ample time to consolidate and resume walking? Probably will do tons of recovery workout and eat lots of food to speed it up.
In addition, as a 150lbs male, if I have the chance to get the largest nail (12.5, fatigue load is 146 lbs), I should be able to "barely walk" immediately after the lengthening period?"
I also have 151Ibs. Did you "barely walk" immediately after the lengthening period? How long did it take you to resume walking? I hope you can at least walk or take a few stairs at the airport and come back home without assistance.
No. With P2.2 you won't be allowed to walk independently even with the largest nail. This is because when you walk there is additional force being applied to your legs, which means your femur is taking more than 150 Ibs at a time. The fatigue load of the largest nail is 146 Ibs.
Breaking a nail "by accident" is rare because P2.2 nail has a built-in tolerance. With the largest nail the expectation is no more than 75lbs per leg, but if you accidentally put slightly more force than the recommended limit, the nail will still probably be fine as long as you don't do it repeatedly. The nail will be broken if you do something very very wrong (trying to jump, etc.) because the force far exceeds the fatigue load.
During the consolidation stage, Paley/Robbins will clear you for walking with a cane as soon as one of your femurs is reasonably consolidated. This may happen 1 month before you're officially cleared for full weightbearing. If you choose to return home immediately after the lengthening stage, you will need a walker.
Quote from: Raden on October 27, 2021, 04:57:46 AM
Any reasons why you don’t wanna wait for Stryde return?
I am also considering internal femur but using Precice i am afraid of:
1. Breaking the nail if accidentally putting too much weight on one leg (although i am only 137 lbs)
2. Not achieving maximum length 8cm with Precice. While with Stryde, achieving 8cm is like the norm.
It seems uncertain when the Stryde will return. Also, I don't mind to be on walker for multiple months as I always work from home even before COVID.
For the 8cm norm, where did you get that data? Is that anecdotal data or information you got from a survey with a large sample size?
Quote from: TakingAction on October 27, 2021, 11:53:12 AMIt seems uncertain when the Stryde will return. Also, I don't mind to be on walker for multiple months as I always work from home even before COVID.
For the 8cm norm, where did you get that data? Is that anecdotal data or information you got from a survey with a large sample size?
Only by reading several Stryde diares.
Quote from: BelowTheMean on December 12, 2020, 03:17:53 AMYou must not have read a lot of journals then.
Edit: To be helpful and not just tell you to look for yourself, let's take a look at all the finished or nearly finished Stryde cases on just the first page of the patient experiences subform as of right now. They are basically all bilateral femur cases.
- m7liam, 8cm
- SuchLL, 7.4cm and still going
- IFS, 3 inches (7.5cm)
- Movie, 8cm
- Asian, 6.5cm and still going
- SNC, 8cm
- BoneStretching, 8cm
Also keep in mind there are tons of people who do this and don't even know the forum exists, let alone post a journal on here.
SuchLL and Asian achived 8cm. Myevolution achived 8cm femur and 7cm on tibia with Stryde. Not reaching full 8cm on femur is one of my concerns using precice now instead of waiting for Stryde later. I still might change my mind though.
Quote from: Raden on October 27, 2021, 01:16:38 PMOnly by reading several Stryde diares.
SuchLL and Asian achived 8cm. Myevolution achived 8cm femur and 7cm on tibia with Stryde. Not reaching full 8cm on femur is one of my concerns using precice now instead of waiting for Stryde later. I still might change my mind though.
You have data to support the success of "8cm norm" of Stryde. However, you don't have data to support the failure of achieving 8cm by Precice, correct? If yes, then how do you prove that the Precice is not good at achieving 8cm?
Quote from: TakingAction on October 27, 2021, 01:59:13 PMYou have data to support the success of "8cm norm" of Stryde. However, you don't have data to support the failure of achieving 8cm by Precice, correct? If yes, then how do you prove that the Precice is not good at achieving 8cm?
I didn't say that precice won't make 8cm in femur. It's easier to find stryde diaries achieving 8cm on femur than precice diaries achieving 8cm. Also keep in mind, at least there are two persons achieving more than 6cm on tibia with stryde; Myevolution achieves 7cm, and one of dr M patients achieves 6,5cm (from his Instagram).
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