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Posted on Oct 2, 2018, 11:54 am
#61

Today is the official day that I start actually lengthening. Paley said he wants all stature patients to begin on day 7
There was a micommunication though, i ended up lengthining on day 3 because of a mixup
Anywhom

Physio started Monday & here is what I quickly realized. Yes I can walk weight bearing under normal, full energy well rested days, but i’ve come to realize after doing 3-4 physio sessions daily, walking unassisted is just too taxing & exhuasting. I feel like today I just woke up having barely slept last night (another issue is i can’t seem to sleep without waking up 3-4 times/night while not taking pain meds. I dont wanna be addicted to pain meds tho so idk what to do)
Walking unassisted requires a full energy body so i’ve been using crutches more to get around.

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Posted on Oct 2, 2018, 12:17 pm
#62

Hi,

Thanks for your update!

Did Paley say why he didn't want you to start lengthening right after surgery?
I was told patients should lengthen as soon as possible to avert early consolidation.

Thanks

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Posted on Oct 2, 2018, 1:40 pm
#63

Quote from: Pilor on October 02, 2018, 12:17:50 PMHi,

Thanks for your update!

Did Paley say why he didn't want you to start lengthening right after surgery?
I was told patients should lengthen as soon as possible to avert early consolidation.

Thanks

So one of the doctors came in on day3 to show me how to lengthen & to start. That day i did 1mm.
The next day, Dr.Paley came in with like 4 people to answer any questions etc & they he said i’ll start to lengthen day7. Then one of the doctors said, well he already started yesterday! & they were kinda arguing like what?! All stature patients must start on day7
So i stopped lengthening since then I started again today

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Posted on Oct 4, 2018, 9:29 am
#64

Quote from: MyEvolution on October 02, 2018, 11:54:39 AMPhysio started Monday & here is what I quickly realized. Yes I can walk weight bearing under normal, full energy well rested days, but i’ve come to realize after doing 3-4 physio sessions daily, walking unassisted is just too taxing & exhuasting. I feel like today I just woke up having barely slept last night (another issue is i can’t seem to sleep without waking up 3-4 times/night while not taking pain meds. I dont wanna be addicted to pain meds tho so idk what to do)
Walking unassisted requires a full energy body so i’ve been using crutches more to get around.
Hey Evolution, do you think that the physio is as necessary as it was for the Precice nail, where the lack of mobility would almost guarantee muscle wastage and reduced ROM?  Is it possible that with weight bearing nails walking a lot is actually much better than the quite painful physio?  I think OYG said something similar - that he thought that walking was more effective as therapy than the physio itself.

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Posted on Oct 4, 2018, 7:03 pm
#65

MyEvolution-

What diameter of STRYDE do you currently have in your femurs? Is it the 10mm, 11.5mm or the 13mm.

Have you discussed with Dr. Paley which diameter of STRYDE you will have for your future tibia lengthening?

How much did you weigh before your femur surgery?

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Posted on Oct 4, 2018, 10:40 pm
#66

I weighed 160LB before surgery at 11% BF

There is definately no replacement for physio because a lot of the excersises are mainly just a warm up for the important part which actually is stretching, especially the IT band which no amount of walking can makeup for stretching it. It’s tough

Biggest issue right now is pain management and sleeping.
Last night i got 3 hours of sleep, it’s getting to the point where i no longer make an effort to sleep. When i am sleepy i’ll sleep. So i slept 3 hours at night, 3 hours around 6am & im getting drowsy atm so i’ll probably go nap for more. We are pretty much toddlers, waking up at night not being able to sleep, sleeping throughout the day. Don’t fight it
Ive also went ahead and ordered this mattress off amazon as recommended by another member

https://www.amazon.com/gp/product/B00UYG9WB8/ref=as_li_tl?ie=UTF8&tag=oyg-20&camp=1789&creative=9325&linkCode=as2&creativeASIN=B00UYG9WB8&linkId=c1e4bca3e7126ae03e9f7af68232a5c7

It apparently fixed his sleep so lets give it a try
My problem is pain management, i’m always around 5/10 but idk what pain meds to take & how much. Im afraid of getting addicted so I just fight through it any help is appreciated

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Posted on Oct 4, 2018, 10:48 pm
#67

I forgot to ask but what are all the recommended supplements I should take?
So far i am taking a men’s multi vitamin, D3 5,000IU (twice daily)
I heard calcium is a good addition and something that starts with an S?

Thanks guys

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Posted on Oct 5, 2018, 2:49 am
#68

Sorry for all the questios how many callries shoild I be eating? I heard it’s 2,000 calories per bone if so ive been def undereating

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Posted on Oct 5, 2018, 6:05 am
#69

Combine calcium with sufficient magnesium. Actually magnesium appears to be more important.

S -> Silicon

Why do you fight taking pain medication? Pain medication is strongly recommanded because it helps you recover, do the physio and get some sleep. In this case the pro strongly outweight the cons. Only reason I see to not take pain meds if you have a history of drug abuse.

Why can't aou sleep? Is it solely because of the pain, or are there any other issues?

Keep up!

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Posted on Oct 5, 2018, 8:47 am
#70

Quote from: MyEvolution on October 04, 2018, 10:40:21 PMThere is definately no replacement for physio because a lot of the excersises are mainly just a warm up for the important part which actually is stretching, especially the IT band which no amount of walking can makeup for stretching it. It’s tough
That makes sense.  It is a shame though that the physio impacts the ability to walk more as I think the combination of walking and physio would be optimal.

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