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Posted on Sep 15, 2020, 1:06 am
#201

I agree that if your bone is growing super fast and you have to lengthen faster than normal then you should do extra stretches!

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Posted on Sep 15, 2020, 8:49 am
#202

Quote from: BelowTheMean on September 15, 2020, 01:06:51 AMI agree that if your bone is growing super fast and you have to lengthen faster than normal then you should do extra stretches!

Hey BelowTheMean,
Hope you are doing well. I will provide an update here, whether extra stretches are effective over a span of several days. So far I can't tell, cause at times it seems to work, but there are times I feel more pain than before.

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Posted on Sep 18, 2020, 4:25 am
#203

when did you do your surgury my friend

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Posted on Sep 18, 2020, 4:32 am
#204

Quote from: farfan21 on September 18, 2020, 04:25:44 AMwhen did you do your surgury my friend

July 22/23rd sir. It is on his first page of this very detailed and fully time-stamped diary sir. I hope you can appreciate his thoroughness sir he laid everything out and included all the dates good sir. Sir please just scroll down next time good sir. He put so much effort sir into making sure all the details in this diary sir. All needed to be done was scroll down a bit sir and read a single line sir. This is. Very good and detailed diary sir no need for questions like that sir. Thank you sir. Please just scroll down literally a few posts to see his surgery date sir. Forgive me sir. If it was in the middle of the diary where he mentioned the date then it is fair to ask such a question sir. But it is not sir. It is on the first page sir. The very first page mister sir. Planting spike sir. Wall raised. Boom buddy out sir. Sir thank you so much sir. Sorry for fat emboli sir. Hope you recover sir. Healing you.

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Posted on Sep 18, 2020, 11:28 am
#205

Quote from: farfan21 on September 18, 2020, 04:25:44 AMwhen did you do your surgury my friend

Hi farfan21,

I did the surgery on Thursday, July 23.

I wish you the best,
SNC

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Posted on Sep 18, 2020, 11:39 am
#206

Day 54 (Mon., Sep. 14) - 49 mm Taller
Day 55 (Tue., Sep. 15) - 50.3 mm Taller
Day 56 (Wed., Sep. 16) - 51.6 mm Taller
Day 57 (Thurs., Sep. 17) - 52.9 mm Taller


I have continued my 4 distraction per day (i.e., 1.33 mm daily distraction). I am gradually losing my flexibility on my quad (left leg only), and bending knees (both legs). Also straightening legs is a challenge. While walking I feel like my legs are very stiff and at times I feel like keeping my knees straight is difficult.

I emailed Dr. M. by the end of Day 55 and asked him whether I could stop the 4 distraction days, now that I had done 8 days and considering the pain and flexibility loss. He said I should continue for the whole two weeks, as my growth was very extreme and I had grown some strong bones, which means I was in danger of getting premature consolidation.

I have continue to take smaller dozes of Calcium and also limited my walks, hoping my grown slows down a bit.

In 4 days, I'll be done with 4 distractions per day and switch back to 3 distractions per day.

CLL'ers, hope you are doing great. Let me know if you have any questions.

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Posted on Sep 18, 2020, 11:41 am
#207

5' 10 babee. Let's goo! Officially above average in America, and probably a decent amount more than avg for LA.

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Posted on Sep 18, 2020, 12:16 pm
#208

Quote from: ghkid2019 on September 18, 2020, 11:41:32 AM5' 10 babee. Let's goo! Officially above average in America, and probably a decent amount more than avg for LA.

Thanks ghkid2019 Femurs with Dr. Shahab Mahboubian - July 2020

1.33 mm distraction per day at 50+ mm  is tough brother! I wanted to cheat and stop on day 8, but Dr. M. did not allow me Femurs with Dr. Shahab Mahboubian - July 2020  I have 4 more days to go!

I certainly look tall, barefoot and my legs look beautifully tall!    Something funny is that my torso is so large, I remember  I used to sit with some colleagues who are 185+, 190cm tall, and sitting around the table, I felt like my torso was as long as theirs!  This means, if I manage to complete the distraction phase all the way to 8cm, my torso would probably not look short, compared to my thighs. I checked my L shape of torso, thigh and at this point, it may look close to proportional, but torso looks a bit taller. I guess this would be a good thing for me!   

Another funny thing!   a lot of us do femurs only, right?  tibia would remain short. What if that makes knees look like to close too the ground? Femurs with Dr. Shahab Mahboubian - July 2020   Anyways, I guess when I took the stryde nail challenge, I did not care about such stuff and I still don't much.

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Posted on Sep 18, 2020, 7:49 pm
#209

keep on fighting SNC! you got this!

at this rate if your consolidation is too good, you may have to take up smoking to slow it down  Femurs with Dr. Shahab Mahboubian - July 2020
i know there aint a whole lot you can do to stop the tightness, ahve you tried sauna? or a hot tub?

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Posted on Sep 18, 2020, 11:36 pm
#210

Quote from: wannabeidol on September 18, 2020, 07:49:42 PMkeep on fighting SNC! you got this!

at this rate if your consolidation is too good, you may have to take up smoking to slow it down  Femurs with Dr. Shahab Mahboubian - July 2020
i know there aint a whole lot you can do to stop the tightness, ahve you tried sauna? or a hot tub?

Could you believe, I asked Dr. M. about smoking during my last appt. with him? Femurs with Dr. Shahab Mahboubian - July 2020  He said NO Femurs with Dr. Shahab Mahboubian - July 2020

Did hot showers, hot tub, but not sauna! As long as my left leg is get some hot water either in the shower, or jet, hot tub, etc. I feel good. Almost as if there has been no surgery performed on my left leg. However no matter how long I stay in hot tub, or shower, as soon as I come out, the pain on the left leg starts.

My right leg has been almost completely pain-free; that sometimes scares me, cause I cannot believe my right can handle 1.33 mm daily lengthening with zero pain. It sounds too good to be true! but so far it seems it is growing with the same rate as that of the left leg. It could be that I got really lucky on my right leg and the nails during surgery were done as perfectly as possible.

I am on day 11 of 1.33 mm daily distractions. I have 3.5 days to go. By Monday night I'll be done and can resume 3 distraction (i.e., 0.99 mm per day). I hope starting Tuesday I see improvement in my flexibility and also reduction in pain.

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