Femurs with Dr. Shahab Mahboubian - July 2020

Edit Post

Wow that’s impressive!!! I’ve been doing 0.75mm per day due to pain. Can’t imagine doing 1.33!

Edit Post

Hey SNC, you're doing great so far! That's pretty crazy how you have almost no pain in your right leg. I do wonder what the difference is between the two legs and why you have a different distribution of pain. Hopefully the pain will subside after you're done with the distraction phase.

-brondo

Edit Post

Quote from: m7liam on September 19, 2020, 12:09:03 AMWow that’s impressive!!! I’ve been doing 0.75mm per day due to pain. Can’t imagine doing 1.33!

Hi m7liam,
Good to hear from you Bro,

 I am crazy about winning challenges, getting titles, etc., but doing 1.33 mm lengthening at 4~6cm distraction phase, for two weeks was not something I would ever imagine to go for!

I somehow overdid walking and diet and overgrow!  I am now being punished by nature for that, for two weeks

Edit Post

Quote from: brondo on September 19, 2020, 05:23:18 AMHey SNC, you're doing great so far! That's pretty crazy how you have almost no pain in your right leg. I do wonder what the difference is between the two legs and why you have a different distribution of pain. Hopefully the pain will subside after you're done with the distraction phase.

-brondo

Hi Brondo,
I have mentioned in my diary, in many places about this. This is the short version of it:

Since from day 1, post-op I had almost no pain on right, but severe pain on left, especially while doing PT exercises during the first few days, and later one, pretty much random pain on left, I believe during the surgery, somehow one of the nails must have touched a nerve. Dr. M. is great. It's not about how good your doctor is. I guess it would probably be impossible even for the best Dr. to find the perfect spot and direction for the nails to secure the stryde nail.   

I think it's actually pretty normal that almost every CLL'er and on both legs gets nails touching the nerve system. Therefore they experience pain.

 I think my right leg's operation was just exceptionally performed. The nails were put in the perfect location and on the perfect direction which results in unbelievable "no pain" during 1.33mm distraction days, while I am at 5+cm!

Please let me know if you disagree with my hypothesis and have a better idea how to explain the huge pain difference between my left and right legs.

Edit Post

@SNC, Yeah I agree with your hypothesis. Hopefully in the future they can figure out ways to replicate this process and improve the technology so limb lengthening can be a less painful experience. Good luck with the rest of the distraction phase!

Edit Post

Day 58 (Fri., Sep. 18) - 54.2 mm Taller

Stretching is certainly the best tool to mitigate the pain. Whenever the pain goes crazy, I repeat the self-PT set of exercises and after doing the first few of them I start to notice pain subsiding.

My left leg calf is so sore and painful, as if I went to a 5 mile mountain hiking twice in two consecutive days. Even hot shower/jet  and pain killers can't do any good for my sore calf. Local pain relief ointments from Costco and Amazon help at least temporarily while applying them and massaging my leg.

If by the coming Monday, which is the end of the 14 days of 1.33mm distraction, prescribed by Dr. M., I feel good enough to continue, I may email Dr. M and see whether I should do a few more 1.33 distraction days just to be more safe; as far as the premature consolidation due to extremely high growth is concerned.

Edit Post

Quote from: StrydeNailChallenge on September 19, 2020, 04:59:05 PMMy left leg calf is so sore and painful, as if I went to a 5 mile mountain hiking twice in two consecutive days. Even hot shower/jet  and pain killers can't do any good for my sore calf. Local pain relief ointments from Costco and Amazon help at least temporarily while applying them and massaging my leg.

I read that as you went on two five mile hikes in the middle of distraction and had to do a double take
Hopefully you are ahead of your bone growth now and don't have to worry as much about premature consolidation.

Edit Post

Quote from: BelowTheMean on September 19, 2020, 06:34:18 PMI read that as you went on two five mile hikes in the middle of distraction and had to do a double take

 Haha!  I wish I had the courage and strength to do all those

Quote from: BelowTheMean on September 19, 2020, 06:34:18 PM
Hopefully you are ahead of your bone growth now and don't have to worry as much about premature consolidation.


I hope so too! It feels weird that instead of trying your best on diet and walking, you take it easy!! I hope in my next appt. Dr. M. would bring the news that we are out of the woods and I can refocus on walking and diet/supplements !

Edit Post

Snc if u are distracting 1.33 a day just keep your old habits of weight bearing alot and eating calcium alot. Don't reduce it. Only reduce it if you plan to go back to 1.00 a day lengthening
I am no doctor tho, don't trust me hue hue
1.33 at 5cm is ridic fast, world record fast XD usually dis is only right after the week after osteotomy haha

Edit Post

Quote from: ghkid2019 on September 19, 2020, 07:52:29 PMSnc if u are distracting 1.33 a day just keep your old habits of weight bearing alot and eating calcium alot. Don't reduce it. Only reduce it if you plan to go back to 1.00 a day lengthening
I am no doctor tho, don't trust me hue hue
1.33 at 5cm is ridic fast, world record fast XD usually dis is only right after the week after osteotomy haha

ghkid2019 bro, I have actually been thinking about it. I am crazy about getting titles, and there is a chance I would be the fastest ever in finishing up the process among all Dr. M.'s patients, and possibly among all CLL'ers ever. However it's not my favorite title if I achieve it. I therefore would like to focus on managing pain. I hope Dr. M. gives me the green signal to slow down, and I am then in favor or reducing the distraction plan to even two per day (like 0.66 mm per day) whenever I feel like pain level is above say 4 or 5.