For those interested in CLL...What is currently preventing you from starting...

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Hi Guys,

I went ahead and summarized the reasons below from the previous posts.  Any other reasons?

-Financial Burden - How to pay for it?
-Finding the time to take time off from job/career
-Fear of Chronic Pain
-Fear of Disability
-Lack of Proven Case Studies (Other patients)
-Fear of not being able to return to previous life activities
-No guarantee that things will go as planned and as hoped for
-Loss of extremity
-Death
-Pain that comes with temperature changes
-Loneliness
-Remorse / Regret
-Depression
-Journey Fatigue
-Uncertainty regarding Doctor Ethics

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Quote from: notatroll on January 19, 2019, 11:05:07 PMYou got me. CLL is a shady business. All people involved display a strong lack of ethics and mild or extreme forms of psycopathy. When you sell your soul to them it's over. Your life won't be the same again.

Damn!!     "All people" who ?!!    I had surgery 1/18/18,   now exactly one year later, could not be happier.  Went from 5'6.25" to 5'9.25.

A tough 6 months for sure. Nothing life threatening,  just tough.   Life is now fully back to normal.   Waiting to have my rods removed.

My doctor was awesome.        No shady business or lack of ethics from anyone!!     

Are there shady doctors? I am sure there are.  But not just in CLL. There are shady people in just about any field we can think of.

Where do you pull this crap from?   most of the recent people who post here and give opinions haven't had any first hand experience but talk like they have. You make it difficult  for others who come here to look for helpful information. It causes people to potentially shy away from a procedure which could change their lives for the better.

Think before you post.


LAGrowin
2018 Patient (femurs)
Dr. Mahboubian

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Quote from: LAGrowin on January 20, 2019, 03:49:50 AMmost of the recent people who post here and give opinions haven't had any first hand experience but talk like they have. You make it difficult  for others who come here to look for helpful information to potentially shy away from a procedure which could change their lives for the better.

agreed. I wish we can have a subsection where people who haven't had the surgery  (like me) can't post. But then it requires a way of validating proof of real patients to remove fake ones.

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I'm giving it two years before I make a decision on externals/internals. Doing it any earlier than that could be a cause of immense regret later.

Quote from: LAGrowin on January 20, 2019, 03:49:50 AMDamn!!     "All people" who ?!!    I had surgery 1/18/18,   now exactly one year later, could not be happier.  Went from 5'6.25" to 5'9.25.

A tough 6 months for sure. Nothing life threatening,  just tough.   Life is now fully back to normal.   Waiting to have my rods removed.

My doctor was awesome.        No shady business or lack of ethics from anyone!!     

Are there shady doctors? I am sure there are.  But not just in CLL. There are shady people in just about any field we can think of.

Where do you pull this crap from?   most of the recent people who post here and give opinions haven't had any first hand experience but talk like they have. You make it difficult  for others who come here to look for helpful information. It causes people to potentially shy away from a procedure which could change their lives for the better.

Think before you post.


LAGrowin
2018 Patient (femurs)
Dr. Mahboubian

He's an LL vet who had a bad outcome. Don't attack him.

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Quote from: myloginacc on January 20, 2019, 03:33:59 PMI'm giving it two years before I make a decision on externals/internals. Doing it any earlier than that could be a cause of immense regret later.

He's an LL vet who had a bad outcome. Don't attack him.

Thanks myloginacc. You're awesome.

LAGrowin, perhaps you're right not 'all people' are shady but the people I met chez Monegal were shady (doctor, fake PT and others). Other patients with bad experiences share my view about their doctors (Unicorn, Hanshi).

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Quote from: myloginacc on January 20, 2019, 03:33:59 PMI'm giving it two years before I make a decision on externals/internals. Doing it any earlier than that could be a cause of immense regret later.

He's an LL vet who had a bad outcome. Don't attack him.

Can u pls elaborate how come La growin had a bad outcome?

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Quote from: Cr7 on January 21, 2019, 01:58:08 PMCan u pls elaborate how come La growin had a bad outcome?

Hi Cr7.  I think you may have misunderstood.  LAGrowin had a great outcome and achieved nearly 3 inches of height and normal walking ability in 6 months w/ Dr. Mahboubian of North Hollywood, California in USA.

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Quote from: InFullStryde on January 21, 2019, 02:22:44 PMHi Cr7.  I think you may have misunderstood.  LAGrowin had a great outcome and achieved nearly 3 inches of height and normal walking ability in 6 months w/ Dr. Mahboubian of North Hollywood, California in USA.

Hello infullstryde, I think that Lagrowin had a good outcome, I followed his diary and am following yours too.
However I said to elaborate in response to myloginacc's post who said "he is an LL vet who had a bad outcome. Don't attack him".
I hope that your pain management keeps on getting better.
Remember all this pain will go away but the height you will gain will remain with you. Godspeed brother.

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Quote from: Cr7 on January 21, 2019, 03:00:05 PMHello infullstryde, I think that Lagrowin had a good outcome, I followed his diary and am following yours too.
However I said to elaborate in response to myloginacc's post who said "he is an LL vet who had a bad outcome. Don't attack him".
I hope that your pain management keeps on getting better.
Remember all this pain will go away but the height you will gain will remain with you. Godspeed brother.

Thank you CR7! I really appreciate your support.

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Quote from: Cr7 on January 21, 2019, 01:58:08 PMCan u pls elaborate how come La growin had a bad outcome?

Myloginacc was talking about me. I'm the vet with the bad outcome, not LAGrowin
My bad outcome is http://www.limblengtheningforum.com/index.php?topic=5465.93