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Posted on Jun 11, 2019, 3:43 pm
#181

zakika, since you have no more frames, can you please upload a video with your walking?

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Posted on Oct 15, 2019, 6:16 pm
#182

zakika are you ok?

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Posted on Oct 30, 2019, 10:00 pm
#183

Quote from: zakika on March 22, 2019, 12:11:47 PMThanks guys, good luck to all!

After the distraction phase is completed, what are you able to do physically typically? Ex: would you have to pay for a caretaker to help you move all your luggage to prepare to get into the airport/throw away stuff? Aside from your laptop/passport,  what else is important to bring with you on the plane?

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Posted on Nov 2, 2019, 12:30 pm
#184

Quote from: zakika on January 29, 2019, 08:35:05 AMAll is fine currently, yes, I had to stretch my flexors (soles, gastrocnemius etc.), but I didn't need ATL. I don't know the date of my stryde surgery yet, because after the corrective surgery I have to work on my left ankle a lot (quite stiff), and I think it will take a lot of time in terms of flexibility. I'll do my X-ray soon, and Giotikas will let me know how far I'm from frame removal.

Hi, hope you are OK. What is this corrective surgery you speak of?

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Posted on Jun 8, 2021, 7:32 am
#185

replying... to follow since giotikas is one of the people im looking into.

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Posted on Aug 13, 2022, 11:05 pm
#186

Hi all, long time. I just wanted to give an update. So after the appr. 5,6 external tibia I had a mal-union in my left fibula that was operated on twice (it was an obvious fkup looking back, they should've recognized the case earlier, and after it happened not to wait until the end of the lengthening to fixate the bones) and now trying to figure out how to proceed, because I'm not able to jog normally even after 2 years (I was doing cardio in a quite high level before). The recovery is no joke people, if you go above 15% of your original length be prepared (even though my tissue regeneration was quite optimal as I paid attention to every single detail as much as I could - nutrition, physio, sleep etc.).

And 1 important message: don not get hung up on the sales pitches these surgeons are selling to you. This surgery is extremely demanding and dangerous, if you have the option, money, I beg you, go to the States, or spare more money (which is still difficult, but surgeons there are more experienced, at least Paley is).

Good luck to everyone!

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Posted on Aug 14, 2022, 12:25 am
#187

Sorry to hear that. I thought the fibula is not supposed to grow back? Since it’s basically a non essential bone.

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Posted on Aug 14, 2022, 1:58 am
#188

why you just don't give details about your journey? it's literally being selfish. you can help others perspective with no effort, but you are choosing to keep as secret, for no reason whatsoever.

please, consider sharing your knowledge&experience with us, with details.

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Posted on Aug 14, 2022, 7:28 am
#189

Quote from: Siegfried on August 14, 2022, 12:25:14 AMSorry to hear that. I thought the fibula is not supposed to grow back? Since it’s basically a non essential bone.

For ankle stability it is important and bares approximately 20% of the full body weight, to survive i is not essential, to run, jog etc it is important.

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Posted on Aug 14, 2022, 7:29 am
#190

I shared all the details in the post, my last one is a recap, I wrote all the essential infos in it, read back.

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