I am grateful for all of the input! I have been busy researching but I still have lots more to do lol. Y’all definitely helped me get started! This website is a great source of information with so many people sharing their LL experiences.
And too bad we can’t switch Xenia! I would think it would be more beneficial to be supermodel height than average but to each their own lol!
While I agree that Stryde would be a better option I think I am going to go with Precice 2 due to my financial situation. According to Dr. Paley in the journal, PRECICE intramedullary limb lengthening system, “Weight-bearing restrictions are essential to the use of this nail. They have been increased to 75 lbs during the distraction phase for the 12.5-mm PRECICE 2 from only 50 lbs for the 12.5-mm PRECICE 1.” (Paley, 2015). Although I should be confined to a wheelchair for some time following the procedure, I see no reason as to why I should not be able to walk with an assisted device during distraction, allowing for partial weight bearing to both legs, given that I am extremely careful never to place my full weight on one particular leg. Perhaps walking in a manner like this, I could prevent placing more than 50ibs on one particular leg- https://m.
Although I would still utilize a wheelchair, when I do walk using that method, I would only be placing well under the weight limit of 75ibs on the nails. Of course the doctor will have to okay it- I have not gotten around to inquiring about that specific aspect of post surgery yet lol.
I have not decided on a doctor yet as I have yet to hear back from all of them. However, most of the “cheaper” doctors that offer internal nail have a price that is the same or similar to Dr. Giotikas. In fact with everything totaled up it is impossible to find a significantly cheaper doctor than Dr. Giotikas with the cost of Precice being so high. Even the doctors who have their own nails charge significantly more and the cheapest of the fitbone doctors charge a similar price to Precice with Dr. Giotikas. Although there are several other qualified doctors at a similar price to him that I am also considering, I would prefer to schedule with him for the sole reason that he has the greatest amount of positive patient experiences shared here compared to the other doctors. Unless of course he has a long waitlist, in that case I will probably go with the doctor who I can schedule with the soonest. But I will keep y’all updated when I hear back! If anyone is interested lol!
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