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Posted on Dec 16, 2021, 11:19 pm
#1

Did it happen? What are some prominent cases?

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Posted on Dec 17, 2021, 2:58 am
#2

Yes, a few diaries here have ended badly.  And there are many more who never go public with it.

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Posted on Dec 17, 2021, 7:50 am
#3

Quote from: Medium Drink Of Water on December 17, 2021, 02:58:19 AMYes, a few diaries here have ended badly.  And there are many more who never go public with it.


Which other cases are notoriously bad besides Unicorn?

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Posted on Dec 17, 2021, 10:01 am
#4

Quote from: Tenet on December 17, 2021, 07:50:10 AMWhich other cases are notoriously bad besides Unicorn?

Unicorn problem was too fast lenghetning and non-union ( due to poor choiches of doctor too) right ?

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Posted on Dec 17, 2021, 4:55 pm
#5

Quote from: Tenet on December 17, 2021, 07:50:10 AMWhich other cases are notoriously bad besides Unicorn?

Crazy+6 is probably the most notable example.

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Posted on Dec 17, 2021, 4:56 pm
#6

What happened to crazy?

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Posted on Dec 17, 2021, 5:04 pm
#7

Quote from: MakeMeTallAF on December 17, 2021, 04:56:14 PMWhat happened to crazy?


He did 7.5 inches altogether using external tibias  & femurs. I can't remember what happened exactly, be he had a lot of problems; last time I checked (which was years ago, tbf), he was still having trouble walking. The fact that he went with an Indian surgeon of questionable repute certainly didn't help things.

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Posted on Dec 17, 2021, 7:09 pm
#8

Quote from: ReadRothbard on December 17, 2021, 05:04:56 PMHe did 7.5 inches altogether using external tibias  & femurs. I can't remember what happened exactly, be he had a lot of problems; last time I checked (which was years ago, tbf), he was still having trouble walking. The fact that he went with an Indian surgeon of questionable repute certainly didn't help things.

I don't know the surgeon or the case, but I can say this "doctor" is totally unstrustable and incompetent just by seeing the amount of atempted lengthening: 7,5 inches (furthermore within a single period, single osteotomy/surgery in each segment, and apparently also simultaneously in two segments??) seems fiction !!! Part of the responsibility is also of the patient,  either by not being reasonable or by not having done enough research.
However, sadly for this man, this case shows that except unavoidable rare accidents like pulmonary thrombosis, probability of more severe consequences is diminuished simply by not attempting stupid targets.
It also demonstrates:
1) the huge importance of correctly evaluating (by all possible means) a good doctor: technique, experience, set up(or not) of a recovery/ physiotherapy team, etc, but also ethics. This may mean not choosing a "cheap" one, altough there are obviously excelent doctors in India, China, etc.
2) altough we CLLs candidates are not doctors,  we should make our own research, including scientific, to be able to better make our choices and planning.

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Posted on Dec 17, 2021, 7:24 pm
#9

Quote from: zaozari on December 17, 2021, 07:09:37 PMI don't know the surgeon or the case, but I can say this "doctor" is totally unstrustable and incompetent just by seeing the amount of atempted lengthening: 7,5 inches (furthermore within a single period, single osteotomy/surgery in each segment, and apparently also simultaneously in two segments??) seems fiction !!! Part of the responsibility is also of the patient,  either by not being reasonable or by not having done enough research.
However, sadly for this man, this case shows that except unavoidable rare accidents like pulmonary thrombosis, probability of more severe consequences is diminuished simply by not attempting stupid targets.
It also demonstrates:
1) the huge importance of correctly evaluating (by all possible means) a good doctor: technique, experience, set up(or not) of a recovery/ physiotherapy team, etc, but also ethics. This may mean not choosing a "cheap" one, altough there are obviously excelent doctors in India, China, etc.
2) altough we CLLs candidates are not doctors,  we should make our own research, including scientific, to be able to better make our choices and planning.


Yeah, it was very irresponsible. The doctor was Amar Sarin, I believe. Apotheosis did a similar amount (went from 5'6 to 6'2) with another controversial surgeon: Dr. Betz. The guy actually allows people to lengthen up to 5 inches per segment! The guy is a good surgeon, but very irresponsible.

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Posted on Dec 17, 2021, 7:36 pm
#10

Quote from: Blas_Jochen on December 16, 2021, 11:19:02 PMDid it happen? What are some prominent cases?

If you intend to include even more severe cases, these would be also amputations due to uncontrolled infection and cases of death. Regarding amputation, I have never heard about it in CLL, altough it's possible, specially in a poorly managed hospital and with a very bad doctor.
Regarding lethal consequences of the surgery, like in all others, these are possible and happened indeed. Of course here we don't have any reliable record of the whole, but there were at least,  as far as I have read in this forum, two cases of thrombosis, and curiously (but not surprisingly) happening to patients of two of the most experienced doctors: Paley and Guichet. Less experienced and 3rd world  doctors are also less exposed to the risk of more surgeries, and possible bad consequences are naturally or deliberately better hidden.

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