Quote from: suddenurge on June 10, 2019, 01:50:56 PMHi again guys,
Let me just say that I perfectly understand why so many sent me PM:s asking for the name of the doctor. However, I strongly feel that I should give the doctor a chance to change his mind first and come up with a solution. Even though it is hard to admit it, what is done is done, and all that matters now is how he deals with it. But, let me at least assure you that he is not one of the more common doctors that you so often read about in patient diaries. I am really thankful to the other doctor that I met last week who raised the alarm whilst it is still time to do something about it, without him, I would most likely never found out until the misalignment was a permanent disability.
I have another question for the forum. Let us say that he refuses to deal with it. What European doctor would you recommend to fix this?
If you have the funds and would like to fix this problem.. then I advise you to see Dr paley... he's the one who can deal with this .. there are other doctors in USA..... which will help ..
How fked am I? What to do about tibial misalignment?
I would suggest you to write to several doctors in hope for a fast response from someone. Send them your latest X-rays and explain how urgent it is (write URGENT in the subject of your mail) and ask if and how they could help you. Then you can still decide which reply sounds the best. .
Some european doctors that come to my mind are Dr. Baumgart (Experienced but expensive, Germany), Dr. Pili/Catagni (Italy), Dr. Giotikas (Greece)
A couple of hours from where I live there is a hospital that is also very experienced in limb lengthening/correcting with external fixators: (Pretty sure they also speak English)
Klinik für Unfallchirurgie
Medizinische Hochschule Hannover
Tel.: +49 511 532-2099
[email protected]
OR
those doctors in Britain who help unicorn currently
Dr giotikas seems like a good bet since he used to be a military doctor that specialised in correcting issues with limbs arising from combat so this seems like something that he'll have some experience in dealing with.
Guichet was considered a top surgeon by many on here until Unicorn's case where he severely mishandled it when complications arose. Some "top" surgeon can make mistakes in operating room, the most important thing afterwards is how they respond. There is even a video of Guichet doing a "karate chop" on patients' legs. Some surgeons employ unconventional methods to break bones, very risky to pt.
The point is some tools and nails are developed to mitigate the risks(points of cuts and insertion designated, not just randomly decided by the dr) cause less trauma to patients and less pain(subjective) which Precice and Stryde does. There is no comparison. In the end, a tool is just a tool, it lies with the person using it. The makers have done their job.
A person has to do their due diligence to choose the right doctor for themselves. It is wise to choose the surgeons who have seen it all. You have to look into their cases, their knowledge, and what they specialize in such as deformity cases. Those who are not advertising CLL but are dedicated to reconstructing deformed limbs. I hope your situation improves but do not defend monorail and your choice, it is a bad one. No one else should make this mistake.
Thanks for the suggestions. I have contacted many of the doctors suggested in this thread. Hoping to hear from them soon. Meanwhile, I am very disappointed about how this could have happened and kept in the dark.
I would still be grateful if anyone could give me an idea on how time sensitive this surgical correction is?
Do you think that TSF frames would be the only option? I would have to wear them for the whole consolidation period, right?
Quote from: suddenurge on June 11, 2019, 01:25:16 PMThanks for the suggestions. I have contacted many of the doctors suggested in this thread. Hoping to hear from them soon. Meanwhile, I am very disappointed about how this could have happened and kept in the dark.
I would still be grateful if anyone could give me an idea on how time sensitive this surgical correction is?
Do you think that TSF frames would be the only option? I would have to wear them for the whole consolidation period, right?
TSF frames can be replaced with a nail as soon as you're misalignment is corrected I guess. Because I have TSF frames on and if I wanted to I could have replaced them.
Thanks for the reply. I already have a nail, albeit not an expanding one. But since the lengthening is finished this would not matter. Is it not possible that when removing the external fixator, one could reduce the misalignment and then fixate the new alignment by locking the nail in the new position using screws?
Sorry I have no idea about the medical possibilities. Maybe someone else though. Please let us know if you find a solution with a doctor.
suddenurge why did you notice this problem only after lengthening the 5 cm?
i think you are a good example of why everyone should start a diary so that other people can notice something like this
Non of the people sitting here will be able to tell you whats going on. It seems bad but not too bad. Definitely you need to get a second opinion from a different doc.
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