Non of the people sitting here will be able to tell you whats going on. It seems bad but not too bad. Definitely you need to get a second opinion from a different doc.
How fked am I? What to do about tibial misalignment?
That alignment is really bad man. Correction needs to be done asap before the bone starts to bridge. If that were to happen then a surgery to rebreak the bone would have to be made. Your misalignment started from day 1 of nail insertion. Your doctor should have kept the alignment in better position. Only thing to do now is instal an external frame that allows you to manipulate the degrees and angles of the bone in order to re-align them together. The nail would have to be taken out first because at this point it will be in the way and you risk the chance of fracturing the bone from unwanted pressure elsewhere. Corrections would then be able to be done but only slightly each day. Doing corrections too fast you risk the chance of nerve damage. Once corrections are done and the bone is perfectly aligned then a nail can be re inserted and locked and external frames taken off. Good luck man. Any doctor in the US should be able to help you, Dr Giotikas has done a good job on a female patient on this forum and of course Dr Kulesh and Dr Solomin my doctors in Russia will be more than happy to help you. Please get help asap.
That alignment is really bad man. Correction needs to be done asap before the bone starts to bridge. If that were to happen then a surgery to rebreak the bone would have to be made. Your misalignment started from day 1 of nail insertion. Your doctor should have kept the alignment in better position. Only thing to do now is instal an external frame that allows you to manipulate the degrees and angles of the bone in order to re-align them together. The nail would have to be taken out first because at this point it will be in the way and you risk the chance of fracturing the bone from unwanted pressure elsewhere. Corrections would then be able to be done but only slightly each day. Doing corrections too fast you risk the chance of nerve damage. Once corrections are done and the bone is perfectly aligned then a nail can be re inserted and locked and external frames taken off. Good luck man. Any doctor in the US should be able to help you, Dr Giotikas has done a good job on a female patient on this forum and of course Dr Kulesh and Dr Solomin my doctors in Russia will be more than happy to help you. Please get help asap.
Why was the bone broken so high, and why don't you wanna mention the doctor? if he is a good doctor then it's fine mistakes can happen everywhere even with the best doctors.
I got the question, why I did not react to this earlier. Well, here is what happened. First of all, I trusted the doctor not to hurt me. Is that being gullible? In hindsight, yes. But everyone involved in the surgery acted nice long after surgery was and everyone told me everything went great during surgery. I have never done this before and there were no obvious signs that they were hiding anything. I come from a country where the trust level is high, even lawyers are considered trustworthy and doctors definitely tops the list of trustworthy professions. It is inconceivable to me that doctors that swear to do no harm first, would not at least be truthful about how the operation went. Of course, all of this may not come down to deception but rather incompetence and lack of prudence on the doctor's part. Regardless, it is unacceptable.
The first x-rays we took, were taken from the front and the side. I contacted the doctor and asked him to send me them the day after. He then actually sent me femur x-rays of another person. I got back to him and he apologized and then he only sent me a picture of his computer screen where he had my frontal x-ray. But this problem is really only visible from the side, so I never saw anything that would alarm me. Truthfully, I was not looking for anything wrong, since he assured me everything went perfect during operation and I trusted him. I was also embarrassed on his part for sending me the wrong file, so I did not press it any further.
When the second x-rays were taken, for some reason, they were only taken from the front. Again, I trusted the doctor to tell me the truth at all times. I am not big on conspiracy theories, so I found an innocent explanation for it. I even thought it was positive since x-rays are not exactly healthy for you.
The third x-rays were taken from the front and the side. Interestingly, before sending me the x-rays, the doctor called me up and told me that I had reached 6 cm and because of premature consolidation I should double the distraction. We actually spoke for several minutes on the phone, until I finally convinced him that he had me confused with another patient (again!). He apologized and 3 days later, after reminding him, I got the x-rays. But the side x-ray was not taken with the tibia flat on the surface as the ones I posted at the beginning of the thread. Instead, they were taken at an angle where most of the tibia was covered by the external device. So you could not, for instance, see the posterior part of the bone at all. Because of this angle, the misalignment in the front did not show as well as in my latest x-rays. It is also probably so that the misalignment has increased the more I distracted. Still, I asked him about it, and he told me that it was not a problem, because new bone formation will correct the align.
The fourth x-rays, taken less than a week ago, I did at a completely different clinic. This time the side x-rays were taken with the foot and tibia completely flat on the side. It revealed everything. Also because I did the x-ray somewhere else, I also got another doctor's opinion for the first time. I have asked my doctor to comment on them, but the only thing he said was that I have reached my distraction goal on both legs, that the distraction is even and that new bone formation was good (!). He said he was busy with other things when I got hold of him, but promised to come back to me this Monday. There was no point in me pushing him at that point. However, as of today, Wednesday, he has still not commented on the x-rays. The only thing he said, after I contacted him on Monday through IM, is that they would arrange to remove my external fixator.
And you still don't wanna say his name, are you looking for some other patients to get cripled? go to another doctor.
Quote from: dinozzo on June 12, 2019, 05:52:08 PMAnd you still don't wanna say his name, are you looking for some other patients to get cripled? go to another doctor.
If he cannot tell us the name ... can he mention the country...
I am sorry guys
until I know where my doctor stands and what he intends to do about my situation, I will not reveal the name or the country (there are at most only a few well known LL doctors in each country anyway). I have to at least give him the opportunity to give his side of the story and explain why this happened and come up with a solution. As previously mentioned, he has always come across as a nice person, even though he often seems overworked. People say that I should just switch doctors like that. Setting the high cost aside, how do I know I can trust the next doctor? Let me assure you that there is nothing wrong with this doctor's credentials. Based on them, I would never have believed this could happen. If there is any help, I can reveal that he is not a US doctor.
Quote from: suddenurge on June 12, 2019, 07:01:35 PMI am sorry guys
until I know where my doctor stands and what he intends to do about my situation, I will not reveal the name or the country (there are at most only a few well known LL doctors in each country anyway). I have to at least give him the opportunity to give his side of the story and explain why this happened and come up with a solution. As previously mentioned, he has always come across as a nice person, even though he often seems overworked. People say that I should just switch doctors like that. Setting the high cost aside, how do I know I can trust the next doctor? Let me assure you that there is nothing wrong with this doctor's credentials. Based on them, I would never have believed this could happen. If there is any help, I can reveal that he is not a US doctor.
Thanks for telling us ... your situation... we hope you recover well... please remember everyone is here to help you as much as we can ... god bless!
I assume it's in turkey, since they all purpose the Lon method. Hope you will get better and find a better surgeon to fix it.
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