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Posted on Feb 12, 2022, 6:43 pm
#21

It seems like the lack of a standard for words like "normal" is an issue. Since I had a dozen or so people PM me I want to share a video of what you can expect at 5 months post surgery with Betzbone, without IT Band release.

I hope the link works. Let me know if it does and I can upload more.

https://imgur.com/a/MLvzySF

What I can't do very well is walk on uneven surfaces. When we went to Tenerife 2 weeks post lengthening I had some trouble walking on the sand for instance or walking up and down in a mountainous region. So yeah, I can walk comfortably in my flat and at work, but imo "normal" means so much more and I have a long way to go yet.

I don't know about Stryde or Precise, maybe people recover much faster. Also people who do IT Band release maybe have fewer issues.

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Posted on Feb 14, 2022, 7:38 am
#22

Quote from: DonBones on February 12, 2022, 06:43:52 PMIt seems like the lack of a standard for words like "normal" is an issue. Since I had a dozen or so people PM me I want to share a video of what you can expect at 5 months post surgery with Betzbone, without IT Band release.

I hope the link works. Let me know if it does and I can upload more.

https://imgur.com/a/MLvzySF

What I can't do very well is walk on uneven surfaces. When we went to Tenerife 2 weeks post lengthening I had some trouble walking on the sand for instance or walking up and down in a mountainous region. So yeah, I can walk comfortably in my flat and at work, but imo "normal" means so much more and I have a long way to go yet.

I don't know about Stryde or Precise, maybe people recover much faster. Also people who do IT Band release maybe have fewer issues.


Yeah the link works for sure. And I see what you're saying. You've obviously made tremendous progress! Please do upload more if you can.

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Posted on Feb 14, 2022, 7:57 am
#23

Quote from: zaozari on February 12, 2022, 09:05:39 AMCongratulations for it has been so smooth!
What is the minimum time you have been told and still need to keep the nails in your legs?


Thanks! That was 2020. I could remove them 9 months post lengthening based on my xrays, but I did tibias a year later so I decided to wait and remove all nails all together at the end of this year.

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Posted on Feb 14, 2022, 8:34 am
#24

Quote from: BelowTheMean on February 12, 2022, 04:12:19 PMI was on the slower side of recovery too. I thought I was walking pretty normal 3 months post-lengthening, but I really wasn’t. I found out later that people had suspicions about my walk and internally I felt that it wasn’t great either.

I’d give it more like 5-6 months for a normal walk, and that’s while focusing on my legs during the walk.


After I went through the procedure and my mom watched me go through the procedure, both of us started to notice there’re many people who aren’t walking quite normal… including my dad. We both think he walks like a duck with a bit duck feet which is something we never thought before…

I think 5-6 months isn’t slow. When I just finished lengthening my doctor’s prediction for normal walk was 1 year. Any time shorter than 1 year is probably good recovery for 8 cm.

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Posted on Feb 14, 2022, 9:41 am
#25

Quote from: SuchLL on February 14, 2022, 07:57:17 AMThanks! That was 2020. I could remove them 9 months post lengthening based on my xrays, but I did tibias a year later so I decided to wait and remove all nails all together at the end of this year.

Thanks for your feedback. Hope everything goes ok and would love to hear about when you remove your nails (all four at once? They say it's a relatively simple procedure, at least in femurs).
I wish that day will be like "liberation day" for you and you will be physiologically 100% or at least requiring no more than some additional physiotherapy.

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Posted on Feb 16, 2022, 10:02 pm
#26

Quote from: DonBones on February 12, 2022, 06:43:52 PMIt seems like the lack of a standard for words like "normal" is an issue. Since I had a dozen or so people PM me I want to share a video of what you can expect at 5 months post surgery with Betzbone, without IT Band release.

I hope the link works. Let me know if it does and I can upload more.

https://imgur.com/a/MLvzySF

What I can't do very well is walk on uneven surfaces. When we went to Tenerife 2 weeks post lengthening I had some trouble walking on the sand for instance or walking up and down in a mountainous region. So yeah, I can walk comfortably in my flat and at work, but imo "normal" means so much more and I have a long way to go yet.

I don't know about Stryde or Precise, maybe people recover much faster. Also people who do IT Band release maybe have fewer issues.


Wow your gait looks amazing, this is my goal 3-4 months post length

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Posted on Feb 21, 2022, 7:15 am
#27

Quote from: zaozari on February 14, 2022, 09:41:22 AMThanks for your feedback. Hope everything goes ok and would love to hear about when you remove your nails (all four at once? They say it's a relatively simple procedure, at least in femurs).
I wish that day will be like "liberation day" for you and you will be physiologically 100% or at least requiring no more than some additional physiotherapy.


Thanks for the kind wishes! I stopped going to physiotherapy as soon as I stopped lengthening, but I’m stretching at home. Stretching is my habit and I do it no matter my muscles are tight or not  how soon walk normal after distraction? Most people who lengthened both segments chose to remove all nails at once. I could remove the nails in femurs during tibia surgery. I decided to keep them because I didn’t want any pain or swelling on upper legs to cause troubles for tibia lengthening and physiotherapy. (Swelling from LL surgeries usually last at least 3 weeks).

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Posted on Mar 8, 2022, 9:11 pm
#28

Walking normal...as in up and down stairs, uneven terrain, inclines and declines...as if I had never had CLL done...I would say it took me nearly 2 years, honestly.  I could have probably reached normal-status earlier with some extra work at the gym.  But if you just let it take its course and heal up and regain muscle without going to the gym., I'd say 1.5 to 2 years post distraction.

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Posted on Mar 8, 2022, 9:57 pm
#29

It depends on your own body and the lengthening method, as well as post-surgery caregivings, medications, your devotions into doing exercises, etc.

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Posted on Mar 8, 2022, 10:07 pm
#30

Now after the ex "Sorcerer" changed the nickname to "PET" he's creating a double profile or changing the nickname again two days after the new "PET": Now the forum cancer is called "ManWithLeukemia". You're really sick, kid. And dishonest by trying to create confusion and disguising identities for all users.

You don't respect this forum, you don't respect people with severe diseases and you don't respect anybody shorter than 162 cm.

Don't forget you truly also need psychotherapy. Your body dysphoria is severe, you run the risk of crossing the psychotic border. You just don't accept your future without 16 cm lenghtening. You're in a path of self inflicted tragedy.

Or maybe you just need to go *uck yourself and go back to your cherished Redit

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