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Posted on Mar 20, 2021, 8:57 pm
#1

I've looked at Precice diaries and a majority of them do not reach the full 8cm goal, and the ones that do have trouble straightening their legs. It seems like this is the opposite with Stryde where most people get the 8 cm.

Of course this may be due to sampling bias but has anyone else noticed this trend? I guess it makes sense considering that the ability to walk actively stretches out your hamstrings which seem to be the rate-limiting factor in CLL. There is also the psychological aspect where Precice patients may just want to walk already and 'cut their losses' or 'protect their gains'. Any thoughts on this?

I remember Dr. Assayag saying that walking helps against joint contractures as well so perhaps that may contribute?

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Posted on Mar 20, 2021, 9:52 pm
#2

My best guess is that it’s mostly psychological, not only are you more immobile and less self reliant but the recovery is almost twice as long... that’s brutal.

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Posted on Mar 20, 2021, 11:25 pm
#3

Given how long my distraction phase took, I probably would have given up around 5cm if I wasn't on a weight bearing nail.

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Posted on Mar 21, 2021, 5:01 am
#4

Quote from: BelowTheMean on March 20, 2021, 11:25:43 PMGiven how long my distraction phase took, I probably would have given up around 5cm if I wasn't on a weight bearing nail.


What was your day to day function like during distraction? Could you have worked a regular office job (ie. mostly sitting but walking a bit here and there) even 1-2 days or half days a week during this time frame? Or when would that have become possible?

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Posted on Mar 21, 2021, 5:45 am
#5

Quote from: maximize on March 21, 2021, 05:01:22 AMWhat was your day to day function like during distraction? Could you have worked a regular office job (ie. mostly sitting but walking a bit here and there) even 1-2 days or half days a week during this time frame? Or when would that have become possible?


With Stryde, if you're not afraid of being found out (like you could say you had an accident) then you could probably go into the office after a month or two with a cane. It's a lot easier to sit with your legs straight (like on a bed) than with your knees bent (like in a chair) though, so I'm not sure how hard it would be to work at a regular office desk.

I worked full time during the distraction phase, but I usually sat in bed. I would sit in a chair for 30-60 minutes at most. By that point my legs would already be hurting a bit. One week into consolidation and I can probably sit in a chair for about 2 hours now.

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Posted on Mar 23, 2021, 10:05 pm
#6

Longer time without walking is brutal. I think it is a huge difference already. It‘s like night and day

So I think it‘s actually true because. 1) PT might be harder ? 2) longer time without walking is mentally challenging. 3) Recovery time takes longer because of that 4) consiladtion phase doesn‘t matter too much if you can weight bear, if you can‘t you have to patiently wait for it.

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