Quote from: tolly on June 07, 2016, 03:48:35 AM@Dishant- Each body reacts in a different manner.However, u can Walk ( Slowly ) within a month if you Lengthen your Achilles Tendon ( Its very Painful but will remove Ballerina ) & your Bone growth is Good.
@Cheez- You need to walk with crutches, only for 2 Weeks after the Final Surgery.Atleast , i did that since my Quad muscles were very weak to hold my knees Striaght & Achilles Pain was Excruciating.
Hey tolly,i see that for the price uve paid its a very good outcome and as i too am from india i know that the hospital from which u have undergone this surgery is highly reputed one.But since this is a life altering surgery id like to meet u and discuss about this.Because i dont want to be crippled listening to one diary on this forum.If ud pm me we can arrange the meetup.Dont worry i will be the one who will get to u.Also after you have done the surgery are your femurs lost some weight??! In the sense have they become thin?! Or tibia's are the only part that have thinned?
LATIN with Dr Deepak Raina at Indian Spinal Injuries Center
@Charis - I have sent you a PM. Since , i reached 9cm even the femurs became very thin & weak along with my Tibia's .I could barely keep my knee straight while walking.
The only way to tackle this is to make your Quadriceps as strong as possible.My Quadriceps were quite weak to begin with & secondly i did not do any Physio.
However, within 2 to 3 weeks after the Final Surgery ( Fixator Removal, IM Nailing & Achilles Tendon Lengthening ) gradually my Quadriceps began to gain strength.
Basically , once you stop Lengthening the muscles on their own begin to Develop and adjust to the new Length.
Hey everyone i think this guy is surely faking something.Stay away from him and that doctor till we get some solid proof.He hasn't even responded to my message when i told that i would like to meet him.
@Charis- FYI. I have received your notification just now.
I am not active here any more, as it really messes with my mind & because of people like you, who discredit all my pain & hardwork I have been through.Despite proof ( Pictures & old Diaries ) & who dont appreciate the knowledge i am sharing.
Trust me mate, the knowledge i am giving you & everyone else is priceless, without this you & the rest will be walking in the O.T like a Headless Chicken. Nevertheless, best of luck in case you go ahead with the surgery.
I am staying in Banglore & Pune and you are more than welcome to come here. I can explain the whole process in person.
On second thoughts, F**k off. I cannot go own sharing my no. with every Tom & Harry because they 'MIGHT' one day undergo the procedures.
Even i have a Life, and have to make a living.However,I am more than happy to answer your questions here.
I only share my no. if someone is seriously in need of guidance while 'UNDERGOING' any of the Lengthening Procedures.
@OregonMade- Call me on Whatsapp.I have messaged my no.
Are you an Indian staying in India or abroad? If it's the first...how the hell did you feel short at 5'8.5? Lol
Congratulations on your journey & new height!
@Penguinn- Indian, living in India. Actually, everyone in my Family is 6 Feet.
Thank You.
Quote from: tolly on July 15, 2016, 04:17:58 PMI am not active here any more, as it really messes with my mind & because of people like you, who discredit all my pain & hardwork I have been through.Despite proof ( Pictures & old Diaries ) & who dont appreciate the knowledge i am sharing.
I feel yah bro. This is why I will never share my experience with the people here. I am thankful for those who have come before me, but there are so many uninformed and angry people here who will put you down to feel better about themselves. After consolidation, I don't really see a point to stick around.
Good luck on your recovery!
@LLCaptain- Thank you. Its good to know some genuine people like you exist here. I am now seriously considering weather i should ever visit this site again or not.
There are too many idiots on this Forum, especially inexperienced people, who think they are doctors after reading about LL here & on Google. They dont know ABC about LL & post useless comments not appreciating & realizing the knowledge we LL veterans are sharing.
@Admin aka KiloKAHN - You seriously need to look into this issue.These people who have No Experience on LL should be given either limited access to post or their posts should be run by you before being actually posted.
You are promoting them to Sr. Member, in spite of the fact that they have no LL experience & they are misleading others by posting multiple baseless comments.They are ruining to many Diaries.
Actual LL veterans here are Newbie's, because we post limited but relevant data.
Seriously ? Please do the needful.
For instance, here are some of the little twats , Slim_tim , TrueSpartan etc.The list goes on & on.Where did you 2 get your LL experience ? Reading about it ?Google i suppose ?
Well, i got mine because i underwent 3 LL Surgeries.
( Monorail Fixator )
( Additional pins )
( Fixator Removal, IM Nailing , Achilles Tendon Lengthening )
Next time, you 2 ( Slim_tim , TrueSpartan ) & the rest of your gang decide to post some bulls**t & criticize people do keep this in mind.
FYI- Never compare 2 Diaries, as they are 2 different people who have different bodies & each body reacts differently to LL. Some can recover fast , while others take their sweet time.
Quote from: tolly on July 15, 2016, 04:17:58 PM@Charis- FYI. I have received your notification just now.
I am not active here any more, as it really messes with my mind & because of people like you, who discredit all my pain & hardwork I have been through.Despite proof ( Pictures & old Diaries ) & who dont appreciate the knowledge i am sharing.
Trust me mate, the knowledge i am giving you & everyone else is priceless, without this you & the rest will be walking in the O.T like a Headless Chicken. Nevertheless, best of luck in case you go ahead with the surgery.
I am staying in Banglore & Pune and you are more than welcome to come here. I can explain the whole process in person.
On second thoughts, F**k off. I cannot go own sharing my no. with every Tom & Harry because they 'MIGHT' one day undergo the procedures.
Even i have a Life, and have to make a living.However,I am more than happy to answer your questions here.
I only share my no. if someone is seriously in need of guidance while 'UNDERGOING' any of the Lengthening Procedures.
@OregonMade- Call me on Whatsapp.I have messaged my no.
Do u think its a joke for me?? For gods sake i asked your number because if all turns out legit i was planning on having surgery with him and suddenly you dissapear and bullcrapting me??? .Lots of other diaries???This is first diary on Dr.Raina and you want me to blindly trust on this 2 page diary??Its my god damn llegs for god's sake and also you aren't a girl that i would be begging to have your number.I thought fellow LL'ers would help me in this.Damn i was wrong.If u didn't want to give your number you could have atleast replied me that but you didn't respond.Stop bullcrapting fella.How do u want me to come to bangalore or pune without your contact no. ? Stand in the middle of an unknown city?? Use your brain for god's sake.Dumb people.
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@tolly
Thank you very much for your diary, I really appreciate your personal experience with CLL and the ISIC that you have been sharing with us.
@all
I searched for reliable information about the ISIC and even talked to someone who was a patient there (not LL unfortunately).
It is a reputable clinic which is (partly) funded by the government and they indeed employ only good doctors.
If there is a place in India where they won't milk you like a foreign cash-cow and where definitely are no butchers at work, it's the ISIC.
My own research has convinced me enough to actually make me want to go there in mid December 2016 (instead of January 2017).
I'm gonna be the guinea pig and contact them sometime in August and then we will see what will happen.
I'm also going to make my own diary, a long one with lots of pictures and x-rays for everyone, so if you are considering the ISIC in 2017 or later, stay tuned.
I've already posted some mockups, where you can see my chubby body 
and I've been posting in this forum for some time now, so I'm legit too 
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