Quote from: Activatedxx on August 11, 2021, 06:12:18 PM
Hey bro it’s been a few days and my right leg still has very high pain with movement. It’s like a tendon/sharp pain it knocks the breath out of me. Close to my IT band and by the screw lock sites. I have to use my hands to move my leg. It’s like completely limp. You think this is normal? My left leg feels fine
Absolutely normal. I still have 3/10 pain on my top pinsites, and frankly they feel inflated. I believe it will take some decent time for that to heal properly. I currently can’t close my legs so as per the IT Band tightness, you have to remember for 2.5 months we kept stretching muscles, nerves, etc. so it’s gotta heal and that won’t happen within the first month IM0.
As of Monday I couldn’t move my legs in a sitting position but now I can. You’re still fresh from removal so you’ll go through Some strangeness for the next week or two as you slowly regain mobility. Also, make sure your wife or someone is helping you with stretching and some form of PT...that stuff is important.
Today officially marks 1 week since removal. 😩🤩
LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
Guys, I know this might not be the right place to ask this question, but since I see a couple of recent CLL patients here I thought I ask it. With knowing all the experiences associated with the surgery such as pain and sleepless nights and being uncomfortable, would you have gone through the process if you were to do it again?
Quote from: chasingthedream on August 12, 2021, 09:58:34 AMGuys, I know this might not be the right place to ask this question, but since I see a couple of recent CLL patients here I thought I ask it. With knowing all the experiences associated with the surgery such as pain and sleepless nights and being uncomfortable, would you have gone through the process if you were to do it again?
Yes. Definitely not LoN , but even if you do LON ONce that pain leaves and your dopamine’ levels slowly start getting back to normal you start thinking more logical and less emotional.
But that doesn’t happen till after removal.
Knowing what I Know now, I’d have done tibia LON or Precise Femur, But oh well...we move.
Quote from: chasingthedream on August 12, 2021, 09:58:34 AMGuys, I know this might not be the right place to ask this question, but since I see a couple of recent CLL patients here I thought I ask it. With knowing all the experiences associated with the surgery such as pain and sleepless nights and being uncomfortable, would you have gone through the process if you were to do it again?
I'd do it again 1,000%. The only difference is I would book my flight a little later to squeeze in a few extra mm.
Would you go for LON again or might consider Precise instead ? How is your ROM at the moment man ?
Quote from: Fiveandsomething on August 12, 2021, 11:02:03 AMYes. Definitely not LoN , but even if you do LON ONce that pain leaves and your dopamine’ levels slowly start getting back to normal you start thinking more logical and less emotional.
But that doesn’t happen till after removal.
Knowing what I Know now, I’d have done tibia LON or Precise Femur, But oh well...we move.
Personally I would never do it again on femur, precice all the way IMO
To late to change that now, already did it but if my prior self had the same knowledge I have now from experience
It’s decent in left leg, right leg still has moderate pain waiting for it to heal
Quote from: Activatedxx on August 12, 2021, 09:19:27 PMPersonally I would never do it again on femur, precice all the way IMO
To late to change that now, already did it but if my prior self had the same knowledge I have now from experience
It’s decent in left leg, right leg still has moderate pain waiting for it to heal
Precice has a longer recovery time vs LON though right? And doesn't it take longer to lengthen. Based on my conversation with Buldu both methods are pretty painful. I guess one is just less painful than the other.
Quote from: Growing on August 12, 2021, 11:14:14 PMPrecice has a longer recovery time vs LON though right? And doesn't it take longer to lengthen. Based on my conversation with Buldu both methods are pretty painful. I guess one is just less painful than the other.
If there’s no complication with Lon yes, but actually (with my weight) I would have recovered much quicker with precice because of my complication. But even then, precice is much less painful. It’s just the nail with the screws locked at top and bottom, there is no bottom and top pins x4 each side. You can sleep comfortable, and there is no pinsites.
One of the most painful things was the pinsite infections and the removal surgery for me, but I think the most painful thing was actually the mental pain from having the fixator on for so long and not being able to have any comfort for months
Reading i realize the most important is being mentally prepared, because it not good leave istambul with fixator and being far from hospital and surgeon. And again i would no recomend leaving 1 o 2 days after fixator removal, i would stay at least a week. Luckily all will be fine and better soon for you mate. try to get good sleep and eat well
One week post removal update
Life is pretty hard. Since removal I stopped taking painkillers altogether, I went through a withdrawal where I would get very agitated and anxious and have serious mood swings/depression.
Because of my left femur I cannot weight bear for a couple more weeks. It was nice sleeping on my side however without painkillers sleeping is a lot harder. It’s easier to sleep now than with the fixators but My hips hurt after laying on my side.
My right leg pain is getting better, but has some muscle weakness and pain still. It was really bad post surgery until yesterday but now it’s just 4/10, really hoping things look better these coming weeks. Not sure if it’s the withdrawal but I was really regretful this week
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